Webinar – “Innovative Approaches to Improving Your Rare Disease Care”

A free webinar to learn about different approaches to navigating and improving your rare care at each step of your journey

Join the National Organization for Rare Disorders (NORD) for “Innovative Approaches to Improving Your Rare Disease Care” on Zoom on Aug. 27 from 2 to 3 p.m.

Scientific and technological advances continue to change and impact rare disease care.

Enjoy a wide-ranging discussion on rare disease care with moderator Marybeth McAfee, NORD Vice President of Community & Medical Affairs, and panelists:

• Michael Kraft, MD, with Emory University Hospital and Emory School of Medicine
• Jessica Contreras, patient advocate and clinical trial recipient
• David Flannery, MD, with the Cleveland Clinic and the Cleveland Clinic Lerner College of Medicine
• Soo Shim, MS, MBA, LCSW, with Edwards Family Division of Genetics and Rare Diseases, Ann & Robert H. Lurie Children’s Hospital of Chicago

Panelists will dive into different approaches to navigating and improving rare care at each step of the journey.

The webinar is free and open to anyone interested in learning more about rare disease care.

Register for “Innovative Approaches to Improving Your Rare Disease Care.”