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TZID:America/Chicago
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BEGIN:VEVENT
UID:6574@dscc.uic.edu
DTSTART;TZID=America/Chicago:20260827T140000
DTEND;TZID=America/Chicago:20260827T150000
DTSTAMP:20260819T191135Z
URL:https://dscc.uic.edu/events/webinar-innovative-approaches-to-improving
 -your-rare-disease-care/
SUMMARY:Webinar - "Innovative Approaches to Improving Your Rare Disease Car
 e"
DESCRIPTION:A free webinar to learn about different approaches to navigatin
 g and improving your rare care at each step of your journey\n\nJoin the Na
 tional Organization for Rare Disorders (NORD) for "Innovative Approaches t
 o Improving Your Rare Disease Care" on Zoom on Aug. 27 from 2 to 3 p.m.\n\
 nScientific and technological advances continue to change and impact rare 
 disease care.\n\nEnjoy a wide-ranging discussion on rare disease care with
  moderator Marybeth McAfee\, NORD Vice President of Community &amp\; Medic
 al Affairs\, and panelists:\n\n 	Michael Kraft\, MD\, with Emory Universit
 y Hospital and Emory School of Medicine\n 	Jessica Contreras\, patient adv
 ocate and clinical trial recipient\n 	David Flannery\, MD\, with the Cleve
 land Clinic and the Cleveland Clinic Lerner College of Medicine\n 	Soo Shi
 m\, MS\, MBA\, LCSW\, with Edwards Family Division of Genetics and Rare Di
 seases\, Ann &amp\; Robert H. Lurie Children's Hospital of Chicago\n\nPane
 lists will dive into different approaches to navigating and improving rare
  care at each step of the journey.\n\nThe webinar is free and open to anyo
 ne interested in learning more about rare disease care.\n\nRegister for "I
 nnovative Approaches to Improving Your Rare Disease Care."
CATEGORIES:Webinar
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TZID:America/Chicago
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DTSTART:20260308T030000
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