BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//wp-events-plugin.com//7.4.2//EN
TZID:America/Chicago
X-WR-TIMEZONE:America/Chicago
BEGIN:VEVENT
UID:6574@dscc.uic.edu
DTSTART;TZID=America/Chicago:20260827T140000
DTEND;TZID=America/Chicago:20260827T150000
DTSTAMP:20260821T135854Z
URL:https://dscc.uic.edu/events/webinar-innovative-approaches-to-improving
 -your-rare-disease-care/
SUMMARY:Webinar - "Innovative Approaches to Improving Your Rare Disease Car
 e"
DESCRIPTION:A free webinar to learn about different approaches to navigatin
 g and improving your rare care at each step of your journey\n\nJoin the Na
 tional Organization for Rare Disorders (NORD) for "Innovative Approaches t
 o Improving Your Rare Disease Care" on Zoom on Aug. 27 from 2 to 3 p.m.\n\
 nScientific and technological advances continue to change and impact rare 
 disease care.\n\nEnjoy a wide-ranging discussion on rare disease care with
  moderator Marybeth McAfee\, NORD Vice President of Community and Medical 
 Affairs\, and panelists:\n\n 	Michael Kraft\, MD\, with Emory University H
 ospital and Emory School of Medicine\n 	Jessica Contreras\, patient advoca
 te and clinical trial recipient\n 	David Flannery\, MD\, with the Clevelan
 d Clinic and the Cleveland Clinic Lerner College of Medicine\n 	Soo Shim\,
  MS\, MBA\, LCSW\, with Edwards Family Division of Genetics and Rare Disea
 ses\, Ann &amp\; Robert H. Lurie Children's Hospital of Chicago\n\nPanelis
 ts will dive into different approaches to navigating and improving rare ca
 re at each step of the journey.\n\nThe webinar is free and open to anyone 
 interested in learning more about rare disease care.\n\nRegister for "Inno
 vative Approaches to Improving Your Rare Disease Care."
CATEGORIES:Webinar
END:VEVENT
BEGIN:VTIMEZONE
TZID:America/Chicago
X-LIC-LOCATION:America/Chicago
BEGIN:DAYLIGHT
DTSTART:20260308T030000
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
END:DAYLIGHT
END:VTIMEZONE
END:VCALENDAR