Events /

Webinar in Spanish – “Living Rare, Living Stronger Patient & Family Forum”

When

Saturday, October 3, 2026    
11:00 am - 12:00 pm
iCal

Event Type

A free virtual rare disease event for patients, families and caregivers whose primary language is Spanish

The National Organization for Rare Disorders (NORD) will host its “Living Rare, Living Stronger Patient & Family Forum” on Oct. 3 from 11 a.m. to 12 p.m.

Anyone in the rare disease community, regardless of where you live, is invited to participate.

Designed for patients, families and caregivers whose primary language is Spanish, the forum will include:

  • Expert-led educational sessions on understanding genetics
  • Navigating the next steps after receiving a diagnosis
  • An opportunity to connect with families affected by rare diseases

The event is free. English translation will also be available.

Register for  the “Living Rare, Living Stronger Patient & Family Forum” on Zoom.

The National Organization for Rare Disorders/La Organización Nacional de Enfermedades Raras (NORD) organizará el evento “Living Rare, Living Stronger Patient & Family Forum” en español.

Living Rare, Living Stronger® ofrece una oportunidad única para que las personas que viven con enfermedades raras se unan en busca de educación y conexión comunitaria en un entorno de apoyo.

Los participantes pueden esperar:

  • Sesiones educativas dirigidas por expertos sobre cómo entender la genética y navegar los próximos pasos después de recibir un diagnóstico
  • Oportunidades para conectar con otras familias afectadas por enfermedades raras

Todo el programa será en español, y estamos ofreciendo interpretación simultánea al inglés

Regístrese en Zoom para participar en el “Living Rare, Living Stronger Patient & Family Forum.”