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TZID:America/Chicago
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BEGIN:VEVENT
UID:6623@dscc.uic.edu
DTSTART;TZID=America/Chicago:20261003T110000
DTEND;TZID=America/Chicago:20261003T120000
DTSTAMP:20261002T051258Z
URL:https://dscc.uic.edu/events/webinar-in-spanish-living-rare-living-stro
 nger-patient-family-forum/
SUMMARY:Webinar in Spanish - “Living Rare\, Living Stronger Patient & Fam
 ily Forum”
DESCRIPTION:A free virtual rare disease event for patients\, families and c
 aregivers whose primary language is Spanish\n\nThe National Organization f
 or Rare Disorders (NORD) will host its "Living Rare\, Living Stronger Pati
 ent &amp\; Family Forum" on Oct. 3 from 11 a.m. to 12 p.m.\n\nAnyone in th
 e rare disease community\, regardless of where you live\, is invited to pa
 rticipate.\n\nDesigned for patients\, families and caregivers whose primar
 y language is Spanish\, the forum will include:\n\n 	Expert-led educationa
 l sessions on understanding genetics\n 	Navigating the next steps after re
 ceiving a diagnosis\n 	An opportunity to connect with families affected by
  rare diseases\n\nThe event is free. English translation will also be avai
 lable.\n\nRegister for  the "Living Rare\, Living Stronger Patient &amp\;
  Family Forum" on Zoom.\n\nThe National Organization for Rare Disorders/La
  Organización Nacional de Enfermedades Raras (NORD) organizará el evento
  “Living Rare\, Living Stronger Patient &amp\; Family Forum” en españ
 ol.\n\nLiving Rare\, Living Stronger® ofrece una oportunidad única para 
 que las personas que viven con enfermedades raras se unan en busca de educ
 ación y conexión comunitaria en un entorno de apoyo.\n\nLos participante
 s pueden esperar:\n\n 	Sesiones educativas dirigidas por expertos sobre c
 ómo entender la genética y navegar los próximos pasos después de recib
 ir un diagnóstico\n 	Oportunidades para conectar con otras familias afect
 adas por enfermedades raras\n\nTodo el programa será en español\, y esta
 mos ofreciendo interpretación simultánea al inglés\n\nRegístrese en Zo
 om para participar en el “Living Rare\, Living Stronger Patient &amp\; F
 amily Forum.” 
CATEGORIES:Support Group,Webinar
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TZID:America/Chicago
X-LIC-LOCATION:America/Chicago
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DTSTART:20260308T030000
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