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Resource Directory

Find resource information for families and children with special healthcare needs.

Some of these resources are specific for families and children enrolled in our programs. Others may be of interest to any family or child with special healthcare needs.

You can use the search box below to narrow your view. For example, you can search for support groups, respite, grant programs, a specific topic or by condition.

You can also browse by category or by region using the links on the right side of this page.

Here is a quick video showing how to use the search and display features for our resources and events.

Check back often for updates. If you don’t find what you need, please call us at (800) 322-3722 or send us an email.

Education Resources

  • National Federation of the Blind

    The National Federation of the Blind (NFB) is the oldest and largest nationwide organization of blind people in the United States. NFB helps create a wide range of opportunities for children and adults who are blind in all 50 states, Washington, DC, and Puerto Rico. Programs and services cover a wide range of areas, including advocacy, education, Braille certification, parent support and resources, training, employment, technology and more.

    A small sampling of NFB resources includes:

    For more information, contact NFB at (410) 659-9314 or nfb@nfb.org

    There is also an Illinois chapter. Visit the National Federation of the Blind in Illinois website, call (312) 343-8396, or email  president@nfbofillinois.org.

  • The Early Years Project

    The Early Years Project is a free online toolkit from the Illinois Early Hearing Detection and Intervention Program featuring easy-to-follow videos, activities and resources. Parents, caregivers, and educators can use these materials to help foster sensory development in young children, from birth to 6 years old.

    The Early Years Project toolkit aims to supplement home visiting and early education programs. It includes information on developmental milestones, activities, resources and more in four areas:

    • Hearing
    • Vision
    • Communication
    • Language

  • Helping Hand

    Helping Hand is a nonprofit organization empowering children and adults with intellectual and developmental disabilities across Chicagoland through person-centered education, therapy, residential and employment programs.

    Helping Hand programs and services, include:

    • An outpatient clinic
    • School
    • Community day services
    • Residential living services
    • Employment program

    For more information, call (708) 352-3580 or email info@helpinghand-il.org.

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Family Resources

  • Special Father's Network

    Special Father’s Network is a dad-to-dad mentoring program for fathers raising children with special needs.

    The program connects new fathers with special needs children to another father (a Mentor Father) who has experienced a similar situation. The program matches Mentor Fathers as closely as possible based on the child’s special needs, gender, ethnicity, socioeconomic group and relationship to the child e.g., .father, stepfather, grandfather).

    The Special Father’s Network is available through the 21st Century Dads Foundation, which raises awareness and resources for greater father involvement and seeks to inspire dads to be present, caring and nurturing.

  • Illinois Respite Coalition

    The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to supporting families and ensuring access to quality respite services for the residents of Illinois. The IRC assists caregivers by connecting them to resources in their area, providing training on respite topics and having funding available for emergency respite. The IRC helps caregivers of individuals across the lifespan with any disability.

    The Emergency Respite Care Program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source.  Emergency respite care may be for an unplanned or planned event for reasons including:

    • Caregiver illness (physical, mental or emotional)
    • Caregiver hospitalization
    • Work-related situation
    • Reduction of stress level

    The website gives examples of qualifying circumstances and information on how to apply. See the emergency care flyer for more details. (The flyer is also available in Spanish.)

    For more information, contact:

  • Almost Home Kids

    Almost Home Kids provides a bridge from hospital to home through an innovative community-based care system for children with medical complexities. It responds to the needs of families, trains caregivers, offers respite care, advocates for accessibility and inclusion and educates healthcare professionals.

    Almost Home Kids offers transitional, respite and respite transportation care. It has locations in Chicago, Naperville and Peoria.

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Medical/Health Resources

  • Get Covered Illinois - The Official Health Insurance Marketplace Resource

    Get Covered Illinois is the health insurance Marketplace resource for the state of Illinois. Get Covered Illinois provides information about health insurance coverage provided under the Affordable Care Act (ACA).

    Get Covered Illinois provides:

    • Information and support to help Illinois residents understand insurance and the importance of health insurance coverage
    • Access to health plans through Healthcare.gov
    • Free enrollment help from Get Covered Illinois Navigators by phone or in person in multiple languages and in your community

    Get Covered Illinois is a division of the Illinois Department of Insurance (IDOI).

  • New Lenox Transportation Service

    New Lenox Transportation Service provides safe, affordable and reliable transportation for all New Lenox Township residents. Transportation is provided within the New Lenox Township and Village, Monday through Friday, from 7 a.m. to 3:30 p.m. Rides are also available to the Mokena, Frankfort and Joliet areas for medical and physical therapy appointments or employment for New Lenox Township residents ages 22 years and older with disabilities. You must make reservations by telephone.

    Transportation office hours are 7 a.m. to 3 p.m. To schedule a ride, please call transportation services manager Debbie Cunningham at (815) 485-6431.

  • Generation Patient

    Generation Patient is a nonprofit organization created by and for young adult patients with chronic, complex, rare or undiagnosed medical conditions. The organization’s focus includes providing peer-support groups, roundtable discussions and helping to drive systems-level change through policy work, leadership programming and advocacy initiatives across healthcare and research spaces.

    Generation Patient also offers:

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