Resource Directory
Find resource information for families and children with special health care needs.
Some of these resources are specific for families and children served by our program, while others may be of interest to any family or child with special health needs. For resources specific to your area, go to the Browse by Region links on this page.
You can use the search field in the upper right hand corner to narrow your view. For example, you can search for support groups, respite, a specific topic, or by condition. Check back often for updates. If you don’t find what you need, call us at (800) 322-3722 or send us an email.
- Icon indicates condition covered by Specialized Care for Children
Education Resources
The Autism Program is an initiative that offers resource information & promotes best practice in the diagnosis, treatment and education of children with ASD.
Special Education Rights: A Guide for Parents
This guide developed by the Illinois State Board of Education (ISBE) informs parents and others about the educational rights of children with disabilities that receive special education services. Available in Spanish or English.
Understood.org gives parents step-by-step instructions for how to create an individualized education program (IEP) binder that sorts their child’s evaluation reports, IEP, report cards and other paperwork. The site includes an IEP binder checklist, school contact sheet, parent-school communication log and IEP goal tracker that parents can download and print.
Family Resources
This organization’s emergency respite program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source. The website gives examples of qualifying circumstances and a contact to apply.
Illinois Assistive Technology Project (IATP) helps people find the types of assistive technology they need and provide lists of funding sources available .
A Federal protection and advocacy system for Illinois citizens with disabilities. They offer self advocacy training, one-on-one self advocacy assistance, legal and public policy advocacy. Visit the website to find local offices.
Medical/Health Resources
Almost Home Kids is a short-term, community based pediatric healthcare facility. They provide transitional care in a home-like setting to children with complicated health needs and they train families to provide care in preparation for going home. Almost Home Kids also provides respite care. They are located in Chicago and Naperville.
Maryville Children's Healthcare Center
The center provides care to children with complex medical needs who are not yet able to go home. They also provide training for caregivers enabling them to care for the child when he/she transitions home. Maryville offers both transitional and respite care.
Get Covered Illinois - The Official Health Marketplace
If you are looking for health insurance for yourself or your family, or if you own a small business or lead a nonprofit organization this website is the official site in Illinois for signing up for health insurance.