Find resource information for families and children with special healthcare needs.
Some of these resources are specific for families and children enrolled in our programs. Others may be of interest to any family or child with special healthcare needs. For resources specific to your area, go to the “Browse by Region” links on this page.
You can use the search field in the upper right-hand corner to narrow your view. For example, you can search for support groups, respite, a specific topic or by condition. Check back often for updates.
If you don’t find what you need, please call us at (800) 322-3722 or send us an email.
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The Will-Grundy Transition Planning Committee strives to connect families to community-based services and providers for students and adults with disabilities. Made up of schools, agencies and not-for-profit organizations, the group is working together to improve vocational transition from education to jobs for all learners but particularly for individuals with disabilities.
The Will-Grundy Transition Planning Committee provides:
- Educational events
- A resource directory covering Will, Grundy and Kendall counties
- Recorded videos on a variety of topics
- Information about community resources and service providers grouped by type (advocacy, assistive technology, etc.)
The Illinois Center for Transition and Work (ICTW) provides support to special educators, related services personnel and administrators by providing statewide training and technical assistance. ICTW strives to improve employment outcomes by focusing on preparing students with extensive support needs for the transition from high school to employment.
The ICTW website offers information and webinars on a wide range of resources, including:
- Customized employment
- Pathways to employment
- Building self-determination skills
- Transition assessment tools
- The Workforce Innovation and Opportunity Act
- Work-based learning experiences
The Illinois School-to-Work Transition Guide is a comprehensive resource for transition-age students and their families as they plan for the transition from school to adult life. This user-friendly guide provides clear, up-to-date information about the transition process with a focus on the transition from school to work. The guide is designed to be a key resource for Illinois students, parents/guardians, teachers, school administrators, guidance and vocational rehabilitation counselors, and other school-based and adult services providers.
The guide includes information specific to Illinois for the school-to-work (STW) transition, such as:
- Key individuals and their roles and responsibilities
- Important steps and stages in the STW transition process
- Key terms and definitions
- Legal aspects
- Helpful guidelines and resources
Special Father’s Network is a dad-to-dad mentoring program for fathers raising children with special needs.
The program connects new fathers with special needs children to another father (a Mentor Father) who has experienced a similar situation. The program matches Mentor Fathers as closely as possible based on the child’s special needs, gender, ethnicity, socioeconomic group and relationship to the child e.g., .father, stepfather, grandfather).
The Special Father’s Network is available through the 21st Century Dads Foundation, which raises awareness and resources for greater father involvement and seeks to inspire dads to be present, caring and nurturing.
The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to supporting families and ensuring access to quality respite services for the residents of Illinois. The IRC assists caregivers by connecting them to resources in their area, providing training on respite topics and having funding available for emergency respite. The IRC helps caregivers of individuals across the lifespan with any disability.
The Emergency Respite Care Program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source. Emergency respite care may be for an unplanned or planned event for reasons including:
- Caregiver illness (physical, mental or emotional)
- Caregiver hospitalization
- Work-related situation
- Reduction of stress level
For more information contact:
- The Illinois Respite Coalition at (866) ILL-RESP (455-7377)
- Statewide Coordinator Kara McCroskey at firstname.lastname@example.org
Almost Home Kids provides a bridge from hospital to home through an innovative community-based care system for children with medical complexities. It responds to the needs of families, trains caregivers, offers respite care, advocates for accessibility and inclusion and educates healthcare professionals.
Almost Home Kids offers transitional, respite and respite transportation care. It has locations in Chicago, Naperville and Peoria.
If you are looking for health insurance for yourself or your family, or if you own a small business or lead a nonprofit organization this website is the official site in Illinois for signing up for health insurance.
A seizure is a medical emergency. A Seizure Action Plan (SAP) contains tailored guidelines on how to respond during a seizure, based on the patient’s medical history. It includes health and medical information specific to the patient and helps others recognize seizures and the appropriate steps to take to keep them safe from injury or damage caused by prolonged seizures.
The Seizure Action Plan Coalition has several Seizure Action Plan examples and resources in English and Spanish to help you create your own plan. Resources are also available in other languages.
Epilepsy Alliance America manages the Seizure Action Plan Coalition.
The Illinois Transformative Justice Law Project (TJLP) provides free information, training resources and life and gender-affirming legal services to everyone on the gender spectrum regardless of financial status. TJLP also provides:
- Workshops for organizations and groups wanting to learn more about allyship for trans and gender-expansive communities
- Free in-person and virtual name change services
- Name change guides
- Educational resources