Transition Resources
National Resource Center for Patient/Family-Centered Medical Home
Family members are the primary caregivers and support in a child’s life. Practices and healthcare organizations that are truly family-centered provide care in equal partnership with families, caregivers and children.
This page for families and caregivers from the National Resource Center for Patient/Family-Centered Medical Home includes tools, resources and links to information that will assist families in successfully partnering with their child’s medical home. It includes templates for how to build a care plan for your child.
National Resource Center on Supported Decision-Making
The National Resource Center for Supported Decision-Making is dedicated to protecting everyone’s right to make choices. Supported decision-making is a way people with disabilities can make their own decisions and stay in charge of their lives while receiving any help they need to do so.The National Resource Center for Supported Decision-Making can help you find information on supported decision-making, connect you with people and organizations that may be able to help you, and answer your questions.The National Resources for Access, Independence, Self-Determination and Employment (RAISE) Technical Assistance Center provides technical assistance and resources to support youth and young adults with disabilities and their families during the transition to adulthood. RAISE provides information, toolkits, webinars and support to help individuals:
- Better understand vocational rehabilitation and independent living programs and services
- Communicate more effectively with transition, rehabilitation and other professionals
- Understand the Rehabilitation Act and how it supports employment, supported employment and independent living
- Develop an Individualized Plan for Employment
RAISE’s resources include:
- The RAISE Youth Engagement Toolkit Series
- Parent Centers
- Resources for self-advocates, families, partners and parent centers
- Adult Ally Toolkit and Podcasts – to guide and empower adults in disability advocacy, post-secondary transition, education and beyond
Many of the resources are also available in Spanish.
National Technical Assistance Center on Transition: The Collaborative (NTACT:C)
The National Technical Assistance Center on Transition: The Collaborative (NTACT:C) provides a wide range of information, training and supports to build and strengthen services and instruction for secondary students and out-of-school youth with disabilities. Its website offers:
- Training and technical assistance.
- Easy-to-find transition topic areas. Each topic includes an additional list of key resources, related topics and training webinars.
- Webinars and toolkits
Navigating Health Insurance and the Health Care System
The Patient Advocate Foundation (PAF) provides valuable information and understanding to patients navigating the healthcare system.
PAF’s Education Resource Library offers information on a wide variety of individual health and health insurance-related topics including:
- Finding and Selecting Insurance
- Making the Most of Your Health Insurance
- Engaging with Insurers: Appealing a Denial
- The Insider’s Guide to Drug Formularies & Medication Benefits
The PAF also offers information and resources in Spanish.
PAF is also available by phone on Monday through Friday from 7:30 a.m. to 4 p.m. at (800) 532-5274.
Northern Will County Special Recreation Association
Northern Will County Special Recreation Association (NWCSRA) provides year-round, community-based recreational programs and inclusion services for children, teens and adults with special needs.
NWCSRA collaborates with the Bolingbrook Park District, Lockport Township Park District, Plainfield Park District, the Village of Romeoville, Brookeridge Park District and Justice Park District to provide recreation opportunities and special events for area families.
For more information, contact NWCSRA at (815) 407-1819.
Northwest Special Recreation Association
Northwest Special Recreation Association (NWSRA) provides general recreation therapy programs, day camps, athletics, inclusion, trips, special events, leisure education, community adult day programs, and one-to-one therapy opportunities for children and adults with disabilities. NWSRA serves 17 northwest suburban Chicago communities in partnership with member park districts.
NWSRA partners with Arlington Heights, Bartlett, Buffalo Grove, Elk Grove, Hanover Park, Hoffman Estates, Inverness, Mt. Prospect, Palatine, Prospect Heights, River Trails, Rolling Meadows, Salt Creek, Schaumburg, South Barrington, Streamwood, and Wheeling park districts.
Opportunities for Access – A Center for Independent Living
Opportunities for Access – A Center for Independent Living (OFACIL) is a member of the Illinois Network of Centers for Independent Living serving residents of Clay, Clinton, Edwards, Effingham, Fayette, Hamilton, Jasper, Jefferson, Marion, Wabash, Washington, Wayne and White counties. Offices are located in Mt. Vernon, Carmi and Effingham.
Programs include:
- Skills and employment training
- Support groups and advocacy
- Housing referral and community reintegration
- Youth transition and parent training program
- Adaptive equipment
OutCare aims to be a comprehensive resource for LGBTQ+ healthcare, offering provider and healthcare resource directories.
OutCare’s provider directory provides a list of providers who understand LGBTQ+ needs.
Over the Rainbow (OTR) – Housing for Individuals with Physical Disabilities
Over the Rainbow (OTR) is an Illinois non-profit organization providing independent living solutions for individuals with physical disabilities that are:
- Affordable
- Accessible
- Barrier-free
- Person-centered
OTR’s apartments are located throughout the Chicago region and Northern Illinois. Applicants must be at least 18 years of age and meet OTR apartment communities eligibility requirements.