Transition Resources
Every Step of the Way Resource Center for Adults with Intellectual Disabilities
Every Step of the Way (ESW) takes a hands-on, person-centered approach to providing support, networking opportunities and resources for individuals with mild to profound intellectual disabilities ages 20 and up and their parents/caregivers. ESW seeks to create a community where parents/caregivers in Chicago can:
- Find resources for recreation, education, health (mental and physical), social and daily living skills, and behavioral intervention services
- Network with each other
- Brainstorm and collaborate to create programming and develop opportunities for their adult children
- Advocate and network to accommodate the needs of their adult child and the adult children in the ESW community
Exceptional Learners Collaborative
The Exceptional Learners’ Collaborative (ELC) is a special education cooperative and joint agreement between four school districts in Vernon Hills (Lake County), Ill. The ELC provides services to students with special needs, ages 3 through 22. Its website offers information and resources on transition, employment, housing, mental health, parent advocacy and empowerment, the One Community parent-to-parent support group and more.
ELC provides services and support in communities including Buffalo Grove, Kildeer, Long Grove, Lincolnshire, Riverwoods, Prairie View, Hawthorn Woods, Vernon Hills, Mundelein, Lake Zurich, Mettawa, Fox Lake, and Spring Grove.
If you have any questions, please call (224) 513-6444.
The Family Caregiver Alliance’s mission is to improve the quality of life for family caregivers and the people who receive their care. The Family Caregiver Alliance website provides in-depth information and tips on a variety of caregiving topics, including legal and financial planning, advanced illness and end of life, self-care and more.
Resources are available in Spanish, Chinese, Vietnamese and more.
The Arc’s Center for Future Planning provides these free resources and steps to successfully make a financial plan.
Free Resources for People and Families with Type 1 Diabetes (T1D)
The JDRF (formerly known as the Juvenile Diabetes Research Foundation) has shared this one-page information sheet that lists available resources for those living with Type 1 Diabetes (T1D).
From PUNS Enrollment to DD Waiver Services Flowchart
The Arc of Illinois’ Family Advocate Program (FAP) provides information and outreach to adults with intellectual and developmental disabilities and their families who are selected from the PUNS (Prioritization of Urgency of Need for Services) or notified in advance of a future PUNS selection.
LFAP’s resources include a “Finding Your Way” flowchart roadmap that outlines the steps from PUNS enrollment to developmental disability waiver services.
Fun4theDisabled is a community created by, for and about people with disabilities to help everyone live their best lives. Fun4theDisabled creates video and content highlighting opportunities for people with disabilities in the community, connecting them with organizations, programs and events that provide accessibility in inclusive and fun ways.
Fun4theDisabled resources include:
- Tools and information on planning for emergencies and disaster
- Video tours of Chicago-area sites, including the National Museum of Mexican Art, Navy Pier, Lincoln Park Zoo and more
- Videos featuring disability leaders, health topics and more on their Fun4theDisabled YouTube channel
Future Financial Planning for People With Disabilities Video Series – ABLE and Special Needs Trusts
The Arc’s Center for Future Planning provides a series of videos to help you save money and protect public benefits. Video topics include ABLE accounts and special needs trusts. Each video overs:
- The benefits of each resource
- How they work
- What they can pay for
- How to get started
Generation Patient is a nonprofit organization created by and for young adult patients with chronic, complex, rare or undiagnosed medical conditions. The organization’s focus includes providing peer-support groups, roundtable discussions and helping to drive systems-level change through policy work, leadership programming and advocacy initiatives across healthcare and research spaces.
Generation Patient also offers:
- “Creating Spaces for Young Adults with Chronic Conditions,” a step-by-step toolkit with resources and strategies for finding and creating peer support
- Virtual community-led peer-support groups for young adults (ages 18 and up), including:
- A general group for young adults with chronic and rare medical conditions,
- A higher education group for patients in college or graduate school,
- A group for young adults with irritable bowel disease (IBD)
Getting the Care You Need: A Guide for People With Disabilities
“Getting the Care You Need: A Guide for People with Disabilities” aims to empower patients with disabilities by explaining their rights to accessible care.
The Centers for Medicare & Medicaid Services (CMS) provides this resource. It is available in multiple languages, including: