Medical/Health Resources
ODH works to prevent secondary conditions. Mission is to maintain and improve the health of families, adults and children with disabilites
Center for Transition to Adult Health Care for Youth with Disabilities
The Center for Transition to Adult Health Care for Youth with Disabilities offers a wide range of tools to empower youth and young adults with intellectual and developmental disabilities (ID/DD) ages 12 to 26 to direct their transition from pediatric to adult care. This national site is a one-stop shop where young people and their families, clinicians, and direct care providers can find videos and other resources for understanding and navigating the transition to adult health care.
Site resources include:
- An “Introduction to Health Care Transition (HCT)” for youth and young adults
- Videos and interactive quizzes
- Changes in insurance and legal rights
- Quick guides and infographics
Find information related to clinical trials as well as new drug therapies recently approved by the FDA.
The Cerebral Palsy Foundation is a non-profit organization that aims to be a catalyst for creating positive change for people with cerebral palsy (CP).
The Cerebral Palsy Foundation website includes expert insights on what is CP and a fact sheet library on various topics.
Children with cerebral palsy have trouble controlling their movement. The condition is the most common disability that affects a child’s motor control.
Cerebral palsy usually is caused by a brain injury or abnormal brain development before birth or early in life. Genetic causes, although less common, can also play a role.
Healthy Children, the official parenting website of the American Academy of Pediatrics, provides an overview of what families need to know about cerebral palsy and how to help children who have it reach their full potential.
Cerebral Palsy Research Network
The Cerebral Palsy Research Network aims to optimize the lifelong health and wellness of people with cerebral palsy (CP) and their families through high-quality research, education and community programming.
The Cerebral Palsy Research Network website includes educational resources for the entire CP community to inform healthcare decisions, including a CP tool kit and a well-being guide for parents and caregivers.
The Cerebral Palsy Foundation’s Cerebral Palsy Resource website provides expert insights, fact sheets, stories, blogs, videos, podcasts and more to help individuals with cerebral palsy and their families across the lifespan.
Certified Nursing Assistant (CNA) Resources
This tip sheet from the Division of Specialized Care for Children (DSCC) aims to help guide parents and caregivers through the steps to become a certified nursing assistant (CNA). It links to several websites and provides general guidelines.
Please note information may change, so be sure to go directly to the Illinois Department of Public Health’s (IDPH) website to verify information remains accurate and up to date.
The American Heart Association’s Support Network, in partnership with The Children’s Heart Foundation, provides a Congenital Heart Defect (CHD) Support Network for parents of young children diagnosed with CHDs or adults living with a CHD.
CHECK is an innovative health and behavioral health care delivery organization working to improve overall health and quality of life by making sure that patients and their families receive the resources and care they need.
The CHECK team provides comprehensive and coordinated health and behavioral health care coordination to patients across the lifespan. Its team consists of Care Coordinators and Behavioral Health Care Coordinators who provide assistance with navigation of the healthcare system, referrals to health and social services, and offer ongoing patient and family support with the goal of improving physical, behavioral, and social health.
The CHECK program is located in the Department of Pediatrics in the College of Medicine at the University of Illinois Chicago (UIC) and University of Illinois Hospital and Health Sciences System (UI Health) and operates as the Department of Pediatrics Clinical Population and Behavioral Health Program.
CHECK also provides disease-specific education modules on sickle cell disease, diabetes, asthma and prematurity.