Medical/Health Resources
Transition QuickGuide: Take Charge of Planning and Managing Your Own Health and Career Goals
The Transition QuickGuide checklist provides information and resources about health insurance coverage, self-care, health care transition, decision-making and career planning and management.
UIC College of Dentistry Inclusive Care Clinic in Chicago
The Inclusive Care Clinic (ICC) from the University of Illinois Chicago’s College of Dentistry offers comprehensive, preventative and integrated (multidisciplinary) dental treatment for patients 15 years or older with a wide range of physical and developmental disabilities. The ICC serves individuals with autism, physical disabilities, intellectual and developmental disabilities, and behavioral and other conditions.
The clinic includes:
- A sensory room
- A wheelchair lift
- Private treatment rooms
- Noise-cancelling headphones
- Personal entertainment tablets
- Weighted blankets
UIC The Resource Center for Autism and Developmental Delays
UIC The Resource Center for Autism and Developmental Delays (RCADD) provides support for those who care for, teach and serve children with an autism spectrum disorder or other developmental delays. RCADD serves families currently enrolled in an Early Head Start or Head Start program as well as others throughout the Chicagoland area.
Anyone can also visit RCADD’s website for:
- Free autism trainings/webinars in English and Spanish
- Printable visuals
- Activity ideas
United Cerebral Palsy (UCP) promotes a life of inclusion and provides resources for individuals with cerebral palsy and other disabilities, their families and communities.
The UCP website has resources on topics including assistive technology, housing and home modification, travel and transportation, education, caregiving and more. You can also find UCP affiliates in the state of Illinois.
United Leukodystrophy Foundation
The United Leukodystrophy Foundation (ULF) is a nonprofit providing leukodystrophy patients and their families with support and resources. ULF can help families with finding medical care, genetic counseling, networking and financial assistance. It also provides funding for medical research each year.
ULF is based in Dekalb, Ill. Its Services and supports also include:
- Leukodystrophy frequently-asked questions and a glossary of terms
- Clinical trials
- Virtual caregiver support groups
- The Hultman Memorial Fund for families facing financial hardship
- Webinars and an annual family conference
The United Spinal Association empowers and advocates for wheelchair users and people with spinal cord injuries and disorders (SCI/D) nationwide. The organization provides local chapters, disability resources, peer support, a manual wheelchair guide and app, a health equity checklist and toolkit and more. Its resources include:
- The United Spinal Association of Illinois
- Peer support groups and mentorship programs (in-person or virtual)
- Equipment or supply closet/loan program
- Regular social events and activities
- Individual grants to members
- The Disability Etiquette Guide to download and share
United Spinal Association Illinois Chapter
The United Spinal Association Illinois Chapter (USAIC) is a non-profit offering information and support resources for people paralyzed by trauma and medical conditions. It also serves family members and health care and related professionals serving the spinal cord injury community. USAIC is located in Palos Heights but provides information, events and educational programs statewide. Its programs include:
- Virtual and in person peer support groups
- The “Living with Spinal Cord Injury” program for health professionals and health science students
- “Injury Prevention” for school children, seniors and other groups featuring members’ experiences, and information on preventing injuries and falls
- Advocacy and more
University of Illinois Hospital & Clinics’ Inclusive Healthcare and Policies
The University of Illinois Hospital & Clinics is nationally recognized for its inclusive healthcare and policies related to LGBTQ patients, visitors and staff.
UI Health was named an “LGBTQ Health Care Equality Top Performer” by the Human Rights Campaign’s 2020 Health Equality Index, an annual survey that evaluates health systems on key criteria for non-discrimination policies and practices.
Vaccine Information for Parents With Children With Disabilities
Vax for All provides vaccine information and other helpful tips for parents and caregivers of a child with autism and other disabilities. Resources on the website include:
- Stories, videos and other kid-friendly disability resources
- How vaccines work – explanations for children and adults
- A vaccine appointment scheduling tool
- Information about in-home vaccine appointments for children in Illinois
Parents may text HELLO to (260) VAX-4ALL / (260) 829-425 to find information or chat.
Para obtener información sobre cómo vacunar a su hijo, envíe un mensaje de texto con HOLA al (260) 829-4255.
Hosted by the U.S. Department of Health and Human Services, the Centers for Disease Control and Prevention (CDC) and VaccineFinder from Boston Children’s Hospital, Vaccines.gov provides information and help with:
- Finding recommended vaccines for respiratory viruses, including COVID-19, the flu and RSV
- Making an appointment
- Answering frequently asked questions about the vaccines
