The Early Intervention Clearinghouse (EI) offers books, videos, articles and web resources to help with toilet training your child. This site provides information that can be used for most children, with and without disabilities.
Medical/Health Resources
The Maternal and Child Health Services Block Grant, Title V of the Social Security Act, is a federal program that aims to improve the health of all women, children and families. Each state has a Title V program that serves children with special health care needs.
The Maternal and Child Health Bureau of the Health Resources and Services Administration provides this list of state Title V program contact information.
Toilet Training Children With Special Needs – Early Intervention Clearinghouse
Toilet Training Children with Special Needs – HealthyChildren.org
The American Academy of Pediatrics’ website HealthyChildren.org provides parents of children with disabilities information for determining when to start and how to begin the toilet-training process.
The information includes:
An overview of physical and developmental challenges and how they can impact toilet training
Tips on when and how to begin toilet training
The importance of having a parent support network and focusing on celebrating your child’s overall growth, not the mistakeThis information is also available in Spanish.
Ann and Robert H. Lurie Children’s Hospital’s Tracheostomy Care at Home page aims to help parents learn how to take care of their child’s tracheostomy (trach). Topics include:
- The Tracheostomy
- Tracheostomy Skin Care
- How to Suction the Tracheostomy
- How to Change a Tracheostomy Tube
- Emergency Care
Please note: This information is for informational purposes only and is not intended to substitute in any way for medical education, training, treatment, advice or diagnosis by a healthcare professional.
Transition Information Sheet for Families
The Transition Information Sheet for Families (05.92) provides guidance for parents to know when and how to support their child/youth to begin managing their own health conditions and health care services.
Transition QuickGuide: Take Charge of Planning and Managing Your Own Health and Career Goals
The Transition QuickGuide checklist provides information and resources about health insurance coverage, self-care, health care transition, decision-making and career planning and management.
UIC College of Dentistry Inclusive Care Clinic in Chicago
The Inclusive Care Clinic (ICC) from the University of Illinois Chicago’s College of Dentistry offers comprehensive, preventative and integrated (multidisciplinary) dental treatment for patients 15 years or older with a wide range of physical and developmental disabilities. The ICC serves individuals with autism, physical disabilities, intellectual and developmental disabilities, and behavioral and other conditions.
The clinic includes:
- A sensory room
- A wheelchair lift
- Private treatment rooms
- Noise-cancelling headphones
- Personal entertainment tablets
- Weighted blankets
UIC The Resource Center for Autism and Developmental Delays
UIC The Resource Center for Autism and Developmental Delays (RCADD) provides support for those who care for, teach and serve children with an autism spectrum disorder or other developmental delays. RCADD serves families currently enrolled in an Early Head Start or Head Start program as well as others throughout the Chicagoland area.
Anyone can also visit RCADD’s website for:
- Free autism trainings/webinars in English and Spanish
- Printable visuals
- Activity ideas
United Cerebral Palsy (UCP) promotes a life of inclusion and provides resources for individuals with cerebral palsy and other disabilities, their families and communities.
The UCP website has resources on topics including assistive technology, housing and home modification, travel and transportation, education, caregiving and more. You can also find UCP affiliates in the state of Illinois.
United Leukodystrophy Foundation
The United Leukodystrophy Foundation (ULF) is a nonprofit providing leukodystrophy patients and their families with support and resources. ULF can help families with finding medical care, genetic counseling, networking and financial assistance. It also provides funding for medical research each year.
ULF is based in Dekalb, Ill. Its Services and supports also include:
- Leukodystrophy frequently-asked questions and a glossary of terms
- Clinical trials
- Virtual caregiver support groups
- The Hultman Memorial Fund for families facing financial hardship
- Webinars and an annual family conference
