Medical/Health Resources
PKU Resources from University of Louisville School of Medicine
The University of Louisville School of Medicine website provides a wide range of PKU (Phenylketonuria) resources to support families.
The Family PKU Booklet provides information for families after a positive newborn screening. Using illustrations and clear language, the booklet helps make complicated, scientific information easier to understand.
The site also includes:
- Caregiver and school preparation tips
- Nutrient trackers
- Downloadable PHE and protein log templates
- Recipes and low protein food suppliers
- PKU community resources
A portable medical summary is helpful for summarizing your medical information in one to two pages. You can use this summary across healthcare systems, including:
- With the emergency department
- In the transition to adult providers
- With your college campus health services and more
The summary can help provide quick and concise communication with all providers involved in your care as you transition to adulthood.
Premier Kids: Primary Care at La Rabida Children’s Hospital
Premier Kids is a medical home program for children birth to age 6 with special needs. It provides primary care services for children with medically complex conditions and/or developmental delays. To make an appointment, call (733) 256-5700, ext. 2.
Project SUN in Kankakee County
Project Strong and Unified Network (Project SUN) is a family-driven, youth-guided and community-based system of care in Kankakee County. Project SUN provides resources, training and community education about children’s behavioral health and other child and family wellness topics. Its services include:
- Helping families navigate their children’s mental, emotional and behavioral health systems of care through trained staff and volunteer Community Navigators
- Supporting families on their journey by training peer parent mentors and companions and offering appreciation events for caregivers
- Assisting parents and youth to gain the skills necessary to actively participate in their care planning and delivery
- Offering professional development training for mental, emotional and behavioral health service providers
- Providing community education with a focus on children and their families
Project Sweet Peas is a national non-profit organization providing support to families and caregivers of premature or sick infants and families impacted by pregnancy and infant loss. Programs include neonatal intensive care unit (NICU) care packages, remembrance memory boxes, peer-to-peer support groups and NICU family financial aid, hospital events, remembrance vigils and educational materials.
Project Sweet Peas also offers:
- A NICU Family Navigation & Support (Project Sweet Peas) group on Facebook
- Journal workshop for NICU and bereaved parents
- Downloadable mental health worksheets
- A list of area locations nationwide
Questions and Answers About COVID-19 Vaccines
Children’s Hospital of Philadelphia provides answers to some of the most common questions people are asking about COVID-19 and vaccines.
REACH Learning and Resource Hub
REACH Learning and Resource Hub provides free, virtual training to help educators, clinicians, parents and caregivers better support the mental health and resilience of the children and youth in their lives. The interactive, on-demand resources focus on:
- Trauma-responsive practices
- Personal and professional resilience
- Social-emotional awareness
- Self-care
Learn about the newborn screening information in Illinois and bordering states in Region 4.
Resources for Inclusion in Physical Activity and Youth with Disability
The National Center on Health, Physical Activity and Disability (NCHPAD) compiled links to a multitude of resources related to children with disabilities and their inclusion in physical activities in this guide.
The Arc’s Talk About Sexual Violence project provides materials and practical tools to help health care professionals, people with disabilities, and their families and supporters learn about the depth of the problem, support victims and work to prevent it.
Talk About Sexual Violence seeks to empower survivors with disabilities in the reporting process and give health care professionals the tools to more effectively identify victims, connect them to appropriate services, help build their self-advocacy skills and better prevent sexual violence.
In addition to the “Starting the Conversation Toolkit for Self-Advocates,” put together by Self-Advocacy Resource and Technical Assistance Center (SARTAC), resources include short training videos for healthcare professionals, tools to help guide conversations and more.