Medical/Health Resources
The Conversation Project is an initiative of the Institute for Healthcare Improvement (IHI) to help people talk about their wishes for care through the end of life so others can understand and respect those wishes. The project offers free tools, videos and other resources to help make difficult conversations with loved ones easier. Resources are available in English, Spanish, Chinese and Audio (English). Guide topics include:
- A conversation starter guide
- Talking to your health team
- What matters to me workbook for people with serious illness
- How to start talking with a child who is living with a serious illness about the health care that is right for them
- Encouraging conversations in your community
The official site of the Hearing Improvement Kids Endowment Fund, Inc. (HIKE). The purpose of the fund is to provide hearing devices for children with hearing losses between the ages of newborn and 20 years whose parents are unable to meet this special need financially.
Children are eligible to receive a grant providing the need is verified by a prescription from an audiologist or physician.
The Humanitarian Foundation Grottoes International program helps cover the costs of dental treatment, including hospital and anesthesia costs, for children with Cerebral Palsy, Mental Retardation, Organ Transplants or Muscular Dystrophy and related neuromuscular disorders.
The Illinois Society for the Prevention of Blindness (ISPB)
The Illinois Society for the Prevention of Blindness (ISPB) promotes vision and eye health in the state of Illinois. ISPB provides:
- Eye care education programs and information
- Youth replacement glasses and low-vision equipment reimbursement services
- Research grant opportunities
- Speakers and screening events
The Importance of Healthcare Transition
Transition not only includes vocational goals and community involvement but also health care transition. This includes discussing and planning for maximizing the potential for self-management of health care, along with age-appropriate health care as they transition to adulthood.
In this short video, one of the regional managers with UIC’s Division of Specialized Care for Children (DSCC) explains the importance of healthcare transition and how DSCC is here to help youth and their families prepare for what lies ahead.
The Kids Equipment Network (TKEN) is a non-profit organization connecting children with disabilities with new and gently-used durable, adaptive equipment at no cost. Illinois families with children from birth to 21 can fill out an application to request equipment. TKEN then seeks equipment matching the child’s needs. The family is invited to a fitting clinic when the equipment becomes available.
Volunteers provide free monthly clinics for custom-fitting equipment in Chicago and the suburbs. Families can request items including:
- Strollers
- Wheelchairs
- Bath and toilet systems
- Crutches
- Canes and more
Program helps patients who may qualify to enroll in a patient assistance program. Prescription medicine is free to individuals in need if they meet the sponsor’s criteria.
The University of Illinois Chicago (UIC) College of Dentistry Pediatric Special Needs Dentistry
The University of Illinois Chicago (UIC) College of Dentistry Pediatric Dental Care provides comprehensive dental care for children including individuals with complex oral health needs and special developmental and behavioral care needs. Pediatric Dentistry clinics provide care for children from infancy through adolescence (under age 17), including:
- Comprehensive oral health examinations, teeth cleaning, fluoride treatments, sealants, restorative procedures (fillings, crowns, etc.)
- Extractions and minor surgical procedures
- Urgent care (trauma, infection, etc.) and more
These services can be completed using inhalation sedation (Nitrous oxide), moderate sedation and general anesthesia. Read more about pediatric services.
Social stories are also available to help children with autism or sensory issues get ready for a dental visit:
Thresholds provides recovery services for persons with mental illnesses and substance use disorders in Illinois. Thresholds’ services include:
- Youth and young adult services
- Deaf program
- Intensive outreach for mental illness
- Training and workforce development
- Integrated primary and behavioral health care
Thresholds offers programs at more than 75 locations throughout Chicago, the adjacent suburbs and four surrounding counties.
Thumbuddy Special is a non-profit organization that was started by a group of special education teachers and therapists to raise money to provide adaptive equipment for children with special needs.
Thumbuddy Special supplies equipment such as wheelchairs, walkers, bath chairs, adapted bikes, ramps and computers. In addition, the nonprofit offers scholarships to children to attend local special recreation camps in the summer.