Medical/Health Resources
Illinois Spina Bifida Association
The Illinois Spina Bifida Association (ISBA) works to improve the quality of life of children, adults and families living with spina bifida. ISBA works to accomplish its mission with a three-part program strategy:
- Promote skills development and independence
- Support individuals and families through outreach, education and advocacy
- Invest in people by funding scholarships, mobility equipment, research and emergency help
For more information or to participate in these programs, visit ISBA’s website or call (773) 444-0305.
Illinois Spina Bifida Association Vision Referral Program
The Illinois Spina Bifida Association (ISBA) offers a vision referral program in partnership with the Illinois Eye Institute (IEI), which provides specialized services for pediatric patients and people with developmental disabilities.
If anyone in your family needs vision care, ISBA can help you set up an appointment at IEI in Chicago or refer you to other statewide providers offering affordable care regardless of insurance or financial status.
Illinois Transformative Justice Law Project
The Illinois Transformative Justice Law Project (TJLP) provides free information, training resources and life and gender-affirming legal services to everyone on the gender spectrum regardless of financial status. TJLP also provides:
- Workshops for organizations and groups wanting to learn more about allyship for trans and gender-expansive communities
- Free in-person and virtual name change services
- Name change guides
- Educational resources
Illinois Warm Line
If you or one of your family members has mental health and/or substance use challenges and would like to receive support by phone, call the Illinois Warm Line at (866) 359-7953.
Wellness support specialists are professionals who have experienced mental health and/or substance use recovery in their own lives. They are trained in recovery support, mentoring and advocacy.
The Illinois Warm Line is not a crisis hotline but is a source of support as you recover or help a family member to recover. Illinois Warm Line hours of operation are Monday through Friday, 8 a.m. to 5 p.m., except holidays.
The Immune Deficiency Foundation is a nationwide organization that can assist with finding specialists, providing financial assistance and providing educational materials. Primary immune deficiency diseases are a group of relatively rare conditions caused by intrinsic or genetic defects in the immune system.
Increasing Community Access to Testing (ICATT) for COVID-19
The Centers for Disease Control and Prevention’s Increasing Community Access to Testing (ICATT) testing locator can help you find no-cost COVID-19 testing locations and contact information for the providers.
Every provider handles appointments differently. Please be sure to schedule your appointment directly with the provider you choose.
A public health program that offers free optometric exams in the first year of life.
Informational Classes by Advocate Lutheran General Hospital
The hospital offers a broad range of informative classes such as gluten-free cooking and how illness impacts teenagers.
June Jessee Memorial Foundation
The June Jessee Memorial Foundation (JJMF) provides events, information, financial assistance and mental health services to children with medically complex neurological conditions and their families in the St. Louis area and beyond. JJMF resources include:
- Uncomplicated financial assistance for out-of-pocket medical needs
- Free mental health services
- A welcoming, understanding community
- Information to help make journeys easier
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