Medical/Health Resources
Getting the Care You Need: A Guide for People With Disabilities
“Getting the Care You Need: A Guide for People with Disabilities” aims to empower patients with disabilities by explaining their rights to accessible care.
The Centers for Medicare & Medicaid Services (CMS) provides this resource. It is available in multiple languages, including:
GLMA is a national organization committed to ensuring health equity for lesbian, gay, bisexual, transgender, queer (LGBTQ) and all sexual and gender minority (SGM) individuals.
GLMA provides resources for patients, including a provider directory.
Global Genes is a non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally. It aims to connect, empower and inspire the rare disease community.
The Global Genes website includes a RARE Portal, which is an online community for patients, caregivers and more to share resources and create discussion groups.
Got Transition aims to help youth and young adults move from pediatric to adult health care. Its website includes frequently asked questions and resources for youth and young adults as well as parents and caregivers.
The site also includes an animated video “What is Health Care Transition? HCT 101” for youth, young adults and families.
Hands and Voices Virtual Waiting Room
Hands & Voices virtual waiting room provides resources and connections for families with children who have been referred to or are in the care of an audiologist and who are receiving those services through technology or “telehealth.” Much of the information is also useful for families who are preparing for onsite visits.
Hands and Voices virtual waiting room includes:
- A video about the importance of next steps when your child is referred for more testing after a hearing screening
- A guidebook for parents about audiology and telehealth
- Information about tele-audiology options
- Questions to ask your audiologist, understanding your child’s audiogram, help making decisions with communication and more
- Connections to family-to-family support from trained parent leaders
- Explanations of help offered by a variety of professionals in addition to your child’s audiologist
- Resources to promote health and well-being for you and your child
- A link to email a Hands & Voices trained parent who can answer your questions and direct you to additional resources
Healing Horse Stables in Sidney, Ill., is a non-profit organization offering therapeutic riding and equine-facilitated learning for individuals of all ages and abilities. Healing Horse Stables promotes learning and physical, social and emotional well-being through programs that include:
- Therapeutic riding
- Riding for relaxation
- Horsemanship programs
- Field trips
Health Care Bureau of the Illinois Attorney General
The Bureau responds to consumer complaints regarding the health care industry and enforces related Illinois consumer fraud laws.
Health Resources and Services Administration (HRSA) COVID-19 Provider Locator
The Health Resources and Services Administration (HRSA) provides a Find a Health Center locator tool to help you find health centers and COVID-19 services in your community. The tool is available in many languages.
US govt. web site with links to a wide variety of health and human services information sources. Links to online medical dictionaries, libraries, support groups, and other agencies.
The HealthWell Foundation aims to reduce financial barriers to care for underinsured patients with chronic or life-altering diseases. It provides financial assistance to eligible individuals to cover copays, health care premiums, deductibles and out-of-pocket expenses.