General Resources
The Catalyst Center works with a broad range of partners to improve health care insurance coverage and address complex health care financing for Children and Youth with Special Health Care Needs (CYSHCN).
The Center for Courageous Kids Summer Camps and Family Retreats
The Center for Courageous Kids (CKC) offers free family retreat weekends and overnight summer camp sessions for youth ages 5 to 17 with complex medical conditions and disabilities. CKC welcomes children with a wide range of conditions, including heart/cardiovascular disease, blood disorders, sickle cell disease, spina bifida, and more. The camp provides 24-hour medical coverage, an on-site medical center, and program and medical staff with training and experience in all aspects of medical camping.
The Center for Courageous Kids is open to youth ages 5 to 17 diagnosed with one of the illnesses/conditions it serves and immediate family members. To learn more about the camp, you can also:
The Chicago Lighthouse is a social service organization serving the blind, visually impaired, disabled and veteran communities. It provides vision rehabilitation services, education, employment opportunities and assistive technology for people of all ages throughout Chicagoland. It also provides housing opportunities for income-eligible households for individuals with disabilities. National and statewide resources include help with college, brailler repair, employment, recreation, service animals and more.
The organization’s Lader Family Scholarship Program is open to Illinois residents who are blind or visually impaired, as well as Chicago Lighthouse employees who are blind, visually impaired, have another disability or are veterans. You can learn more about the Lader Family Scholarship and other scholarship opportunities on the Chicago Lighthouse website.
The Colette Louise Tisdahl Foundation
The Colette Louise Tisdahl Foundation provides support and financial help to families in crisis due to pregnancy complications, premature birth/neonatal intensive care unit stay and loss. This financial assistance may help cover:
- Childcare
- Medical bills
- Transportation costs
- Rent/mortgage and utilities
- Post-loss/funeral/burial expenses
- Grief counseling (individual, couple and family)
Visit the Colette Louise Tisdahl Foundation website for more details.
The Good Samaritan Inn in Decatur
The Good Samaritan Inn provides meals to all those who need them, no questions asked. Meals are served seven days a week from 11:30 a.m. to 1 p.m. Its programs also include Mercy Gardens and Mercy Market from June through October.
Good Samaritan Inn is located at 920 North Union St. in Decatur.
For more information, call (217) 429-1455.
The Guthrie-Koch Scholarship for Individuals with Certain Metabolic Disorders
The Guthrie-Koch Scholarship from flok is for individuals with one of several metabolic disorders. The scholarship is for students demonstrating character, academic achievement and engagement with their community, and who are pursuing post-secondary educational or vocational opportunities. Students from any country can apply. Scholarship applications open by mid-December each year. Applications are due in mid-March.
To be eligible for the scholarship, applicants must have one of these metabolic disorders:
- Classical HCU
- Maple Syrup Urine Disease (MSUD)
- An Organic Acidemia
- Phenylketonuria (PKU)
- Tyrosinemia
- Urea Cycle Disorder (UCD)
The Kids Equipment Network (TKEN) is a non-profit organization connecting children with disabilities with new and gently-used durable, adaptive equipment at no cost. Illinois families with children from birth to 21 can fill out an application to request equipment. TKEN then seeks equipment matching the child’s needs. The family is invited to a fitting clinic when the equipment becomes available.
Volunteers provide free monthly clinics for custom-fitting equipment in Chicago and the suburbs. Families can request items including:
- Strollers
- Wheelchairs
- Bath and toilet systems
- Crutches
- Canes and more
The Kinda Guide is designed to be a weekly survival guide for parents and families that will include expert tips on remote learning, parenting advice, virtual camp activities, simple meal and snack ideas and at-home family adventures.
The Neighbor Project (TNP) is a nonprofit, HUD-Certified Housing Counseling Agency dedicated to helping low to moderate-income families in Aurora reduce debt, build credit, save and ultimately buy their first homes.
The Painted Turtle Overnight Camp for Children with Serious Medical Conditions
The Painted Turtle is a year-round, overnight camp in California for children ages 7 to 17 with a variety of serious medical conditions, their siblings and family members. Condition-specific camp sessions and family weekends (for children ages 6 to 17) aim to encourage children to try new things and develop lasting friendships. Campers and their families attend free of charge.
The camp has a full-time medical staff, a health center and a physician onsite at all times. The Painted Turtle provides camper eligibility guidelines and medical criteria to help determine the best session for your child and family.