General Resources
COVID-19 Parenting Tip Sheets and Activities
Parenting for Lifelong Health has developed open-access online parenting resources to support families during COVID-19. Their Parenting Tip Sheets are available in 100-plus languages and provide useful reminders, suggestions, strategies and activities to help caregivers support themselves, their children and their families.
COVID-19 Preparedness Tool for Families and Caregivers
The Stanford Health Literacy Lab in collaboration with families and providers developed the COVID-19 Preparedness Tool for Families and Caregivers to help families of children with special healthcare needs with rpreparing for and responding to COVID-19 in a variety of settings.
The user-friendly tool, also available in Spanish, provides tips for home, healthcare settings, schools and work. It also offers advice for coping with family stress.
COVID-19 SERIES, Part 1: Put On Your Own Oxygen Mask First
This Family Voices Resources eBlast shares resources for self-care and asks us to consider what happens if we get sick, with related types of emergency planning to consider in order to be prepared.
Create Your Own Communication Card
The Illinois Deaf and Hard of Hearing Commission developed the Communication Card to provide individuals with hearing loss a simple way to inform others of their communication needs and list the name and contact information of their preferred communication provider. You can create your very own personalized Communication Card on their website.
Creative Healing for Youth in Pain
Creative Healing for Youth in Pain (CHYP) is a nonprofit organization serving youth between the ages of 13 and 24 who are experiencing pain, feelings of isolation and loneliness. CHYP provides educational resources, peer connection and exposure to creative healing experiences to help bridge the gap between common healthcare barriers such as cost, geographic location and long wait times for appointments. Resources are available for both youth and their parents.
CHYP resources include:
- Information on the science of pain
- Strategies for breaking the pain cycle
- On-demand webinars for youth and parents
- Monthly open Zoom meetings for youth (ages 13 to 24)
- Small group and Zoom meetings for parents
- Summer camp
The Crisis Text Line serves anyone in any type of crisis, 24-hours a day. Trained crisis counselors will respond and help you:
- English, text HOME to 741741
- Spanish, text HOLA to 741741 or text to 442-AYUDAME in WhatsApp
If you are a caregiver, the Crisis Text Line and the Rosalynn Carter Institute for Caregivers (RCI) have teamed up to provide free, 24/7 support to help you navigate the stresses and demands of providing care. Caregivers needing mental health support can text TOUGH to 741741.
Crosswalk Community Action Agency
Crosswalk Community Action Agency (CCAA) offers a variety of programs and services to help individuals and families in Franklin, Jackson, Jefferson and Williamson Counties. CCAA programs address the “day-to-day” needs and help individuals work to become self-sufficient.
Programs include:
- A Diaper Program
- Emergency Services
- Energy Assistance (LIHEAP)
- Food Pantry
- Homeless Prevention Services
- Home Repair and Rehabilitation
- Home Weatherization (IHWAP)
- Scholarships
Cued Speach Program for Families of Deaf and Hard-of-Hearing Children
Cue College’s Cue Family Program provides a free, online Cued Speech class to families of deaf and hard-of-hearing children.
Cued Speech combines a small number of simple hand cues with the natural mouth movements of speech to make the sounds or “phonemes” of spoken language clear through vision alone.
The Cue Family Program includes free access for one year to the online Cue College course, “CS100 – Introduction to Cued American English – Self Study”, for parents, guardians, additional family members and caregivers of a child with hearing loss or other communication challenges.
Curb Mobility – Chicago Wheelchair Accessible Taxicabs
Curb Mobility, LLC (CURB) manages Chicago’s Centralized Wheelchair Accessible Vehicle (WAV) Taxicab Dispatch Service. Passengers can call CURB or use a smartphone app to request and connect with an available WAV taxicab. Passengers can also request wheelchair accessible taxis in advance for Chicago events that may include high turnout from accessible vehicle users.
Passengers can request a CURB WAV taxicab ride by:
- Calling (888) WAV-CABS (1-888-928-2227)
- Downloading the CURB app
- Emailing a request to the City of Chicago Centralized Wheelchair Accessible Taxicab Dispatch Service, CURB, at least three business days in advance to chicagowav@gocurb.com
The Danny Did Foundation works toward its mission to prevent deaths caused by seizures with these main goals in mind: advancing public awareness of Sudden Unexpected Death in Epilepsy (SUDEP), enhancing the SUDEP communication model between medical professionals and families afflicted by seizures, and the mainstreaming of seizure detection and prediction devices that may assist in preventing seizure-related deaths.
The Danny Did Foundation’s grant program does provide financial assistance for purchasing seizure detection and seizure prediction devices to qualifying individuals.