Family Support Resources
National Alliance for Caregiving
The National Alliance for Caregiving (NAC) is a non-profit coalition of national organizations providing research, advocacy and innovation to make life better for family caregivers. The Alliance’s research, programs and resources include:
- Guidebooks including its Circle of Care Guidebook for Caregivers of Children with Rare and/or Serious Illnesses
- Stories from caregivers nationwide
- Research, data and reports focusing on different aspects of caregivers
- Advocacy and policy initiatives
National Alliance for Children’s Grief (NACG)
The National Alliance for Children’s Grief (NACG) raises awareness about the needs of children and teens who are grieving a death and provides education and resources for anyone who supports them. NACG resources include:
- Free GriefTalk Live events
- Webinars and continuing education
- Peer networking
National Alliance on Mental Illness (NAMI)
The National Alliance on Mental Illness (NAMI) is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness.
The national NAMI website provides information on supports, services and treatment options that may help. The NAMI National Helpline is (800) 950-NAMI (6264). You can also text “HELPLINE” to 62640 or go to NAMI.org/help to chat with a HelpLine specialist.
Visit the NAMI Illinois website for information about Illinois programs and services.
National Association for Down Syndrome
The National Association for Down Syndrome (NADS) serves individuals with Down syndrome and their families. NADS’ website provides a variety of webinars, publications and resources for the Chicago metropolitan area and beyond.
NADS also offers a “Congratulations Basket and Referral Program.” Please note that the organization can only deliver baskets to specific Chicago-area hospitals.
National Center for Cultural Competence
Supports family participation and satisfaction and strives to increase the capacity of health and mental health programs.
National Center on Deaf-Blindness
The National Center on Deaf-Blindness (NCDB) is part of a network of projects for children and youth with deaf-blindness (birth through 21) providing information and learning and development tools for families and educators. NCDB resources include:
- An overview of deaf-blindness
- Practice guides and professional development
- Spanish resources
NCDB includes state deaf-blind projects in every state, Puerto Rico, the District of Columbia, the Pacific Basin and the Virgin Islands.
National Child Traumatic Stress Network Resources for Parents and Caregivers
The National Child Traumatic Stress Network provides a variety of resources for parents, caregivers and youth related to different types of childhood trauma, including coping with hard times, grief, hospitalizations and more.
Resources are available in English and Spanish.
The National Diaper Bank Network connects and supports the country’s more than 200 community-based diaper banks that collect, store and distribute free diapers to struggling families. The website includes a list of member diaper banks in Illinois.
National Domestic Violence Hotline
Twenty-four hours a day, seven days a week, 365 days a year, the National Domestic Violence Hotline provides essential tools and support to help survivors of domestic violence so they can live their lives free of abuse.
Contacts to The Hotline can expect highly-trained, expert advocates to offer free, confidential, and compassionate support, crisis intervention information, education and referral services in over 200 languages.
Call (800) 799-SAFE (7233) or (800) 787-3224 (TTY). You can also text “START” to 88788 or chat live on The Hotline website.
National Down Syndrome Society
The National Down Syndrome Society (NDSS) aims to empower individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities and shifting public perceptions.
Its resources include information on Down syndrome across the lifespan as well as in the areas of aging, caregiving, education, employment, health and more.