Resource Directory /

Family Support Resources

  • Lincoln Land Down Syndrome Society

    Lincoln Land Down Syndrome Society (LLDSS) provides a support network for families residing in and around Sangamon County. LLDSS programs and events promote awareness, inclusion and education of people with Down syndrome.

    LLDSS activities include monthly meetings, social gatherings and recreational opportunities.

  • Little Friends

    Little Friends provides programs and supports to empower children and adults with autism and developmental disabilities and their families to live, learn, work and thrive in their communities. Little Friends serves individuals and families throughout ten counties and more than 50 school districts across Illinois. Programs include:

    • Schools, educational and vocational training programs
    • Respite family services
    • Community-based residential living
    • The Center for Autism
    • Inklude Studio
    • The Fun Club

  • Living Independently Now Center Incorporated of Southern Illinois (LINC Inc.)

    The Living Independently Now Center of Southern Illinois Incorporated (LINC Inc.) provides support and resources for individuals with disabilities and their families in St. Clair, Monroe and Randolph counties. LINC Inc. has offices in Swansea and Red Bud. Its resources and programs include:

    • Deaf and hard-of-hearing services
    • Assistive technology equipment loan program
    • Community reintegration
    • Computer literacy
    • Mental health resources
    • Peer-to-peer counseling and support groups
    • Respite care program for active duty Air Force and Navy families

  • Love and Logic

    Love and Logic provides tools and techniques to help adults achieve respectful, healthy relationships with their children. While some materials can be purchased, this links to the free articles and handouts for parents.

  • Love is Respect – Teen Dating and Healthy Relationships for Young Adults

    Love is Respect, a project of the National Domestic Violence Hotline, offers information, support and advocacy to young people between the ages of 13 and 26 who have questions or concerns about their romantic relationships. Free, confidential services are available anytime via:

    • Live chat
    • Call (866) 331-9474 or TTY (800) 787-3224
    • Text ‘LOVEIS’ to 22522

    Services for the deaf and hard of hearing are also available:

    Love is Respect also provides a Parent Discussion Guide on Youth Healthy Relationships.

  • Loving Bottoms Diaper Bank

    Loving Bottoms Diaper Bank works with 26 partner agencies in Fulton, Hancock, Henderson, Henry, Knox, McDonough, Mercer, Peoria, Tazewell, Stark, and Warren counties. In addition to diapers, they provide period supplies and incontinence products.

    For help, use this list to contact the partner agency closest to you. You can also visit the Loving Bottoms Diaper Bank FAQ page on their website for more information.

  • Luella’s Lodge

    Luella’s Lodge provides resources, retreats, support groups and non-traditional holistic therapies for families grieving the death of a child.

    The non-profit includes a secluded log cabin on 10 acres in Oakwood, Ill., offering a private lake, hiking and biking trails, and other amenities to help families connect with one another through grief and healing.

  • Magical Moments Foundation

    Magical Moments Foundation is a wish-granting organization for children with facial differences. Working with the children and their families, the foundation creates experiences and adventures to comfort, inspire and encourage children that face the world with a difference. Family members, medical professionals, teachers and others may nominate a child for a magical moment. To be eligible, a child must:

    • Have a congenital or acquired facial difference
    • Be between the ages of 3 and 18
    • Not yet received a wish from another wish-granting organization

    Visit the Magical Moments Foundation website for more details.

  • Margaret Hackett Family Program

    Congenital anomalies of the central nervous system (CNS) are birth defects of the physical structure of the brain or spinal cord that occur during fetal intrauterine growth such as spina bifida, hydrocephalus and other conditions. The Margaret Hackett Family Program (MHFP) at the University of Chicago provides individuals and families help with diagnosing, understanding, caring for and addressing the challenges of living with CNS congenital anomalies. MHFP also provides research and research grants.

    The Margaret Hacker Family Program also offers:

    • A monthly, virtual “Connect Group” for individuals and families affected by CNS anomalies
    • In-person quarterly socials
    • In-person events twice a year featuring food, giveaways, fun activities and resources
    • Help with finding resources and medical care

  • Maryville Children’s Healthcare Center

    Maryville Children’s Healthcare Center provides care to children with complex medical needs who are not yet able to go home. They also provide training for caregivers enabling them to care for the child when he/she transitions home. Maryville offers both transitional and respite care.