Family Support Resources
Mental Health for Children With Intellectual and Developmental Disabilities
Navigate Life Texas, a project to inform and empower parents of children with disabilities or special healthcare needs, has a Mental Health for Children With Intellectual and Developmental Disabilities page. This page provides ideas on how to talk to your healthcare provider and the people working with your child if you think your child might be having mental health symptoms.
Mental Health Resources for Kids, Teens and Young Adults
The National Alliance on Mental Illness (NAMI) has resources geared toward kids, teens and young adults. NAMI also provides a coloring and activity book and step-by-step guidance to help parents explore and talk to children about emotional topics or mental health challenges.Metropolitan Family Services provides a variety of services throughout Chicago, DuPage County, Evanston, Skokie and the southwest suburbs to help families learn, earn, heal and thrive. Metropolitan Family Services programs include:
- Early learning
- Afterschool
- Job readiness
- Counseling and mental health
- Legal assistance
Mini O’Beirne Crisis Nursery Parent Support Group
Attend monthly parent support groups in Springfield, IL. Call for more information or individual support (217) 525-6800.
Miracle Flights provides free commercial airline tickets to pediatric patients ages 17 and under in need of life-changing medical care far from home. Families must meet certain requirements and apply online using the online application for requesting each flight.
The organization also provides flights for service dog retrieval and/or training. Miracle Flights’ service dog program is open to all individuals who need help retrieving/training their service dog.
Model Systems Knowledge Translation Center (MSKTC)
The Model Systems Knowledge Translation Center (MSKTC) provides free, easy to understand resources for people living with traumatic brain (TBI), spinal cord (SCI) and burn injuries and their supporters. The research-based resources aim to improve rehabilitation outcomes and quality of life for people living with SCI, TBI, and burn injuries. MSKTC resources are available in a variety of formats including printable PDF documents, videos and slideshows.
The MSKTC website features a wide range user-friendly resources divided by topic:
The website includes information about the condition Maple Syrup Urine Disease.
Muscular Dystrophy Association
The Muscular Dystrophy Association (MDA) provides comprehensive information and resources to help with understanding, managing and living day-to-day with muscular dystrophy and related neuromuscular diseases.
MDA programs and resources include:
- The MDA Resource Center providing one-on-one support by phone or email for individuals and families looking for resources, activities and more
- Nationwide summer camps
- Resources for caregivers
- Community education and services
My Heart Visit is a program from Mended Hearts that allows heart patients and their families to connect with trained volunteers who are patients themselves, a parent of a child with a heart condition or a caregiver of a loved one with heart disease.
You can connect with someone by phone, text, email or video. It includes the Heartline Hotline at (844) 432-7887 (1-844-HEART87).
myFace is a nonprofit organization that provides individuals and families affected by cleft and other craniofacial differences access to personal stories, education and support.
Resources include:
- Information on craniofacial conditions
- Parent resources
- Virtual craniofacial support groups and networking opportunities
- Educational webinars and podcasts
