Family and Caregiving Support Resources
Love is Respect – Teen Dating and Healthy Relationships for Young Adults
Love is Respect, a project of the National Domestic Violence Hotline, offers information, support and advocacy to young people between the ages of 13 and 26 who have questions or concerns about their romantic relationships. Free, confidential services are available anytime via:
- Live chat
- Call (866) 331-9474 or TTY (800) 787-3224
- Text ‘LOVEIS’ to 22522
Services for the deaf and hard of hearing are also available:
- Videophone (855) 812-1001
- Instant messenger at DeafHotline
- Email nationdeafhotline@adwas.org
Love is Respect also provides a Parent Discussion Guide on Youth Healthy Relationships.
Loving Bottoms Diaper Bank works with 26 partner agencies in Fulton, Hancock, Henderson, Henry, Knox, McDonough, Mercer, Peoria, Tazewell, Stark, and Warren counties. In addition to diapers, they provide period supplies and incontinence products.
For help, use this list to contact the partner agency closest to you. You can also visit the Loving Bottoms Diaper Bank FAQ page on their website for more information.
Luella’s Lodge provides resources, retreats, support groups and non-traditional holistic therapies for families grieving the death of a child.
The non-profit includes a secluded log cabin on 10 acres in Oakwood, Ill., offering a private lake, hiking and biking trails, and other amenities to help families connect with one another through grief and healing.
Magical Moments Foundation is a wish-granting organization for children with facial differences. Working with the children and their families, the foundation creates experiences and adventures to comfort, inspire and encourage children that face the world with a difference. Family members, medical professionals, teachers and others may nominate a child for a magical moment. To be eligible, a child must:
- Have a congenital or acquired facial difference
- Be between the ages of 3 and 18
- Not yet received a wish from another wish-granting organization
Visit the Magical Moments Foundation website for more details.
Margaret Hackett Family Program
Congenital anomalies of the central nervous system (CNS) are congenital disabilities of the physical structure of the brain or spinal cord that occur during fetal intrauterine growth, such as spina bifida, hydrocephalus and other conditions. The Margaret Hackett Family Program (MHFP) at the University of Chicago provides individuals and families with help in diagnosing, understanding, caring for, and addressing the challenges of living with CNS congenital anomalies. MHFP also provides research and research grants.
The Margaret Hacker Family Program also offers:
- A monthly, virtual “Connect Group” for individuals and families affected by CNS anomalies
- In-person quarterly socials
- In-person events twice a year featuring food, giveaways, fun activities and resources
- Help with finding resources and medical care
For questions, please call (773) 795-0622 or email mhfcp@bsd.uchicago.edu.
Maryville Children’s Healthcare Center
Maryville Children’s Healthcare Center provides care to children with complex medical needs who are not yet able to go home. They also provide training for caregivers enabling them to care for the child when he/she transitions home. Maryville offers both transitional and respite care.
Medical Grants Through United Healthcare Children’s Foundation
United Healthcare Children’s Foundation’s (UHCCF) mission is to help fill the gap between what medical services/items/equipment a child needs and what their commercial health benefit plan will pay for.
UHCCF grants provide financial help/assistance for families with children that have medical needs not covered or not fully covered by their commercial health insurance plan.
To be eligible for grants, children must be 16 years of age or younger at the time of application and have a Social Security number. Eligible families must also meet UHCCF’s economic guidelines.
Families could receive up to $5,000 annually and $10,000 a lifetime per child for eligible medical services, treatment therapies, items and equipment.
For questions, visit the Contact UHCCF website page, email uhccfcustomerservice@uhc.com, or call 1 (855) 698-4223.
Menard County Housing Authority – Housing Choice Voucher Program and Other Programs
The Menard County Housing Authority provides the Housing Choice Voucher Program, Project-Based Vouchers, Tenant Protection Vouchers, and Emergency Housing Vouchers in Alexander, Bond, Casey, Clinton, Coles, Crawford, Douglas, Fayette, Jackson, Jasper, Livingston, Macoupin, Massac, Menard, Monroe, Moultrie, Perry, Pulaski, Randolph, Scott and Wabash counties.
The website also includes resources for Menard County residents for help with food, utilities, employment, education, and other programs and services.
For more information and to apply, visit www.menardcha.org. You can also call (217) 632-7723.
The Mended Hearts program is a national peer-support program for patients with cardiovascular disease, their caregivers, and their families. Mended Hearts provides support and education, raises awareness of the issues faced by those living with heart disease, and advocates to improve quality of life across the lifespan.
It includes Mended Little Hearts, which provides support to families of children with congenital heart defects (CHDs) or other heart conditions, and Young Mended Hearts, which supports young adults ages 18 to 55 who have heart disease, including CHDs.
For questions or to request support, please call (888) 432-7899 or email info@mendedhearts.org.
Mended Little Hearts and St. Jude Medical partnered to create this digital resource guide for parents and caregivers of children with congenital heart disease or defects (CHD).
Medical professionals and parents worked together on this guide to provide accurate and honest information that addresses the tough feelings, questions and concerns parents and caregivers may have.
Go to The Mended Hearts, Inc. HeartGuides page and scroll down to see the Mended Little HeartGuide in English and Spanish.