Family Support Resources
Epilepsy and Seizures 24/7 Helpline
The Epilepsy Foundation’s Epilepsy and Seizures 24/7 Helpline has trained information specialists to help answer your questions about epilepsy and seizures and provide you with help, hope, support, guidance and access to national and local resources. You can access the helpline in several ways:
- Online Help Form
- Phone (English): (800) 332-1000
- Phone (en español): (866) 748-8008
The helpline serves people living with epilepsy, caregivers and friends of someone with epilepsy and anyone who wants to learn more about epilepsy. It can provide information about current epilepsy treatment and alternative therapies, medication questions, support groups, seizure first aid, emotional support and more.
Epilepsy Foundation of Greater Chicago
The Epilepsy Foundation of Greater Chicago is a not-for-profit organization serving 44 counties in Illinois. It offers education, advocacy and case management to people living with epilepsy, their families and the communities in which they live.
The foundation’s client services include case management, programs for children and adults, epilepsy centers, support groups, employment, medications, and driving and transportation.
Epilepsy Foundation of Greater Southern Illinois
The Epilepsy Foundation of Greater Southern Illinois aims to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures and save lives. Its programs include epilepsy and seizure support services, home-based services, residential services, epilepsy education programs, support groups, a scholarship and more.
Its website also provides resources including a New to Epilepsy Guide, Seizure Calendar and more.
Equip for Equality is an independent agency whose primary goal is protecting the civil and human rights of citizens with disabilities.
Equip for Equality offers assistance that includes:
- Self-advocacy assistance
- Legal services
- Monitoring
- Training
Exceptional Children’s Charities
Exceptional Children’s Charities provides resources to benefit exceptional children with special needs in Chicago’s Southland.
The charity can provide financial support to supply wheelchairs, stand-up chairs, medical supplies, special learning tools and adaptive technology devices to foster learning and improve day-to-day life. Assistance can also be provided for medical and dental bills that are not covered by insurance or public aid.
FacingDisability provides stories, hundreds of paralysis resources and up-to-date information on spinal cord injury. The organization works with medical experts from major hospitals, universities and rehabilitation institutions nationwide to provide insight and inspiration. FacingDisability resource topics include:
- Disability advocates
- Family and caregiver support
- Assistive technology
- Financial assistance and government programs
- Education and employment
The Family Caregiver Alliance’s mission is to improve the quality of life for family caregivers and the people who receive their care. The Family Caregiver Alliance website provides in-depth information and tips on a variety of caregiving topics, including legal and financial planning, advanced illness and end of life, self-care and more.
Resources are available in Spanish, Chinese, Vietnamese and more.
Family Economic Mobility Toolkit
The “Family Economic Mobility: Taking Charge of Your Future” toolkit offers families help to set financial goals and create action plans for tracking progress. The toolkit includes a series of videos and an online resource guide with links to agencies and support programs.
The U.S. Department of Health and Human Services’ (HHS) Administration for Children and Families provides the toolkit.
Family Justice Center in Peoria
The Peoria County Family Justice Center is a multi-disciplinary response team designed to provide services and support to victims of domestic violence, while simultaneously holding offender’s accountable.
Family Matters Parent Training & Information Center
Family Matters Parent Training and Information Center (Family Matters PTIC) empowers parents and professionals to achieve the strongest possible outcomes and enhance the quality of life for children and young adults with disabilities. Family Matters PTIC offers coaching, referral, parent-to-parent support, Educational Surrogate Parent training and more.
Family Matters PTIC services and programs include:
- A monthly event calendar highlighting webinars and training opportunities
- Self-Advocacy resources
- Videos
- Educational coaching and support for families and self-advocates