Parent & Educator Partnership

Lists many educational and other resources for parents as well as a mentoring program.

Illinois Network of Centers for Independent Living

The Illinois Network of Centers for Independent Living (INCIL) supports 22 Centers for Independent Living (CILs) across the state. The goal of these non-profit organizations is to provide community-based, non-residential support for people with disabilities so they may achieve independence in every aspect of their lives, including home, work and school. 

INCIL also oversees the Home Modification Program that provides funding for improvements to make eligible homes and rental properties more accessible.

Attention Deficit Disorder Resources

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) is a national non-profit organization that helps people with ADD/ADHD achieve their potential through education, support and networking.

Sibling Support Project

The Sibling Support Project is a  national program dedicated to the lifelong and ever-changing concerns of millions of brothers and sisters of people with special health, developmental and mental health needs.

The project offers support, resources, opportunities to connect with other siblings and “Sibshops” for school-age brothers and sisters of kids with special needs.

Chicago Dental Society

Amtryke

AMBUCS is a non-profit organization that makes and gives away therapeutic tricycles called Amtrykes. For parents, the Amtryke fills the need of every child to have a bike—just like their siblings and friends. Many riders not previously considered capable of riding a bike will be successful riding an Amtryke. Amtrykes are designed to look like bikes, not medical equipment, and to be age-appropriate.

Information about how to either purchase or request a donated Amtryke, visit https://ambucs.org/parents/.

National Resource Center for Patient/Family-Centered Medical Home

The National Resource Center for Patient/Family-Centered Medical Home provides information, support, and advocacy for families and pediatric healthcare professionals who care for children with special needs in managed care arrangements. The “medical home” isn’t a place. It is an approach focusing on strengthening and improving the system of care for children and youth with special health care needs and their families.

Located on the American Academy of Pediatrics website, the National Resource Center for Patient/Family-Centered Medical Home offers:

  • Information on why a medical home is important
  • A medical home overview and FAQs
  • Tools and resources for families
  • Resources for medical professionals
  • Care coordination resources

Region 4 Genetics

Learn about the newborn screening information in Illinois and bordering states in Region 4.

Brain Injury Association of Illinois

The Brain Association of Illinois (BAI) is a statewide, non-profit organization providing advocacy, information and support to people with brain injuries, family members, friends and rehabilitation professionals.

The BIA of IL is part of a network of brain injury associations across the United States, and is an affiliate of the Brain Injury Association of America (BIAA).

United Spinal Association Illinois Chapter

The United Spinal Association Illinois Chapter (USAIC)  is a non-profit offering information and support resources for people paralyzed by trauma and medical conditions. It also serves family members and health care and related professionals serving the spinal cord injury community. USAIC is located in Palos Heights but provides information, events and educational programs statewide. Its programs include:

  • Virtual and in person peer support groups
  • The “Living with Spinal Cord Injury” program for health professionals and health science students
  • “Injury Prevention” for school children, seniors and other groups featuring members’ experiences, and information on preventing injuries and falls
  • Advocacy and more