Helpful information and tips to find formula and keep children healthy

The infant formula shortage continues to affect families across the country.

Formula is not only important for babies’ nutrition but also for some young children, teens and adults with medical needs.

Several resources are available nationwide and here in Illinois to help families during the shortage:

• The U.S. Department of Health and Human Services (HHS) website has resources in a variety of languages to help families find infant formula during the shortage. These resources include information on safe substitutes, formula company contacts and community programs.
• The Illinois Department of Human Services (IDHS) has trained caseworkers to help families with formula questions. You can contact the IDHS Help Line at (800) 843-6154. The Help Line is primarily for Supplemental Nutrition Assistance Program (SNAP) and Women, Infants and Children (WIC) participants but is open to all Illinois residents.
• For Illinois WIC participants, a waiver now allows for flexibility in the size and type of formula available to buy with WIC benefits. More details are on IDHS’ “Having Trouble Finding Formula” page.
  • Illinois WIC programs also provide a wide range of support for breastfeeding mothers and funds for healthy foods, including fresh fruits and vegetables. More information and updates can be found on the Illinois WIC website. Families can also call (217) 782-2166 for additional support
• HealthyChildren.org, the parenting website of the American Academy of Pediatrics, provides tips on finding baby formula during the shortage and what you may safely consider if you can’t find any. The site is updated regularly with helpful information and the latest guidance.
• The U.S. Food and Drug Administration (FDA) has released information on the international formulas that will soon be on store shelves in the United States. Some of these formulas have different mixing guidance and will require conversion from milliliters to ounces. The FDA has a “Tips for Preparing Imported Infant Formula” handout available to help. (The handout is also available in Spanish.)

Remember that you should not water down your baby’s formula to stretch it out. You also should not make formula at home or discard formula unless it is expired or part of the recall.

HHS notes that in most cases, you can feed your baby any brand of formula that is available.

If your child has special health needs, be sure to check with their doctor about medically appropriate and safe feeding alternatives. Your doctor may have samples in stock or know of other local organizations that can help.

Please contact your pediatrician for guidance on adjusting feeding practices and be sure to stay in touch about any issues or concerns with your child’s nutrition.

A new licensure process for nursing agencies will help provide more options for children and adults in need of in-home nursing care

The nationwide nursing shortage has affected many Illinois families in need of in-home shift nursing care for their children with complex medical needs.

There is a constant demand for more in-home nursing care options in all parts of the state, both rural and urban.

The University of Illinois Chicago’s Division of Specialized Care for Children (DSCC) has partnered with the Illinois Department of Public Health (IDPH) to help meet this need and give families more nursing care options.

DSCC worked with IDPH to change how our enrolled nursing agencies are licensed to serve Illinois counties. Nursing agencies can now be licensed to serve all of Illinois instead of only individual counties.

This change should make it easier for nursing agencies to serve more parts of the state.

Before this change, nursing agencies could only operate within their approved service county area. Nursing agencies had to request approval for each county they wanted to serve.

This process made it difficult for nursing agencies to expand coverage to areas in need. Our participants who receive in-home shift nursing through the Home Care Program could only receive services from nursing agencies licensed for their specific county.

Now all nursing agencies who are licensed and enrolled with DSCC in good standing may serve all Home Care participants in any part of the state.

This broader statewide approach to nursing agency licenses will offer more available nursing options to our participant families.

Please note that each nursing agency must decide if it wants to expand its service area to other parts of the state. This decision is based on nursing staff availability.

We are thankful for IDPH’s partnership to help meet this important need for our participants and their families!

The deadline to share feedback is June 30.

Families have an opportunity to share feedback on proposed updates to the Medicaid Home and Community-Based Services Waiver for Medically Fragile, Technology Dependent (MFTD) Children.

The Illinois Department of Healthcare and Family Services (HFS) is the Medicaid agency responsible for the MFTD waiver. Many families in the Home Care Program have children who receive services through the MFTD waiver.

HFS must renew Illinois’ MFTD waiver every five years. HFS and the Division of Specialized Care for Children (DSCC) have partnered to make several changes as part of this year’s renewal process.

To review the full list of waiver updates, you can:

• See page 2 of the electronic copy of the proposed renewal application.
• Review a hard copy at HFS’ offices at:
  • 201 South Grand Ave. E.,
    Springfield, IL 62763
  • 401 S. Clinton
    Chicago, IL 60607

HFS now seeks public input on these changes. (You can read the public comment notice on the HFS website.)

The deadline to provide feedback is June 30.

You can share your feedback in two ways:

• Via email to HFS.HCBSWaiver@illinois.gov
• Via mail to the Illinois Department of Healthcare and Family Services, Attention: Waiver Operations Management, 201 South Grand Ave. E., 2FL, Springfield, IL 62763

HFS will send your comments to the federal Centers for Medicare and Medicaid Services as part of the waiver approval process.

If you have questions, please contact HFS’s Waiver Operations Management Unit at (217) 524-4148 or (844) 528-8444.