Resource Directory
Find resource information for families and children with special healthcare needs.
Some of these resources are specific for families and children enrolled in our programs. Others may be of interest to any family or child with special healthcare needs.
You can use the search box below to narrow your view. For example, you can search for support groups, respite, grant programs, a specific topic or by condition.
You can also browse by category or by region using the links on the right side of this page.
Here is a quick video showing how to use the search and display features for our resources and events.
Check back often for updates. If you don’t find what you need, please call us at (800) 322-3722 or send us an email.
Education Resources
Parents of Extraordinary Children
Parents of Extraordinary Children (PEXC) is a nonprofit that aims to inform, empower, support and help advocate for families of children and young adults with disabilities within the southeast side of Chicago.
With the help of volunteers and representatives from city-wide organizations, PEXC provides opportunities for Individualized Education Program (IEP) training, learning to navigate the special education process, understanding terminology, initiating the process of evaluation, the transition to adulthood and more.
PEXC has a Sensory Space and Resource Center and offers an “All Inclusive Support Group” on a monthly basis for families.
For more information, call (312) 600-5479 or email admin@pexc10thward.com.
West40 Community Resources in West Cook County
West40 serves 38 school districts and three co-ops in West Cook County. West40 provides a wide range of in-school advocacy, student-centered programs and links to community resources to help students and the people surrounding them succeed.
West40 offers:
- A community resource page with links to help with food, mental health needs, special education and more
- The Heart 2 Heart Program for students in grades K-12 in the Alternative Learning Opportunities Program (ALOP)
- Family engagement, immigration and other networking and support resources
Call (708) 449-4284 or use the West40 Contact Us form for more information.
Find Help Southern Illinois connects people to area programs and services, including:
- Food and basic needs, such as food pantries, baby supplies, clothing and home goods
- Housing and shelter options
- Healthcare services, including medical, dental and vision care and transportation to health care
- Addition and recovery support
- Mental well-being services
- Financial assistance for child care, transportation, medical supplies and more
- Use the search filter to find the help you need in your community—sort by “closest” to receive the local information first
- Education and employment programs
- Legal assistance
The resource hub is an initiative of Southern Illinois Healthcare, Healthy Southern Illinois Delta Network and the Southern Illinois Coalition for Children and Families. The hub also receives support from the McKinney Vento Program for the Homeless Region V, Carbondale Elementary School District 95, Herrin Community Unit School District 4 Family Outreach Program, and the Carbondale Community Cabinet for Children and Youth with funding provided by Birth to Five Illinois.
Family Resources
Special Father’s Network is a dad-to-dad mentoring program for fathers raising children with special needs.
The program connects new fathers with special needs children to another father (a Mentor Father) who has experienced a similar situation. The program matches Mentor Fathers as closely as possible based on the child’s special needs, gender, ethnicity, socioeconomic group and relationship to the child e.g., .father, stepfather, grandfather).
The Special Father’s Network is available through the 21st Century Dads Foundation, which raises awareness and resources for greater father involvement and seeks to inspire dads to be present, caring and nurturing.
The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to supporting families and ensuring access to quality respite services for the residents of Illinois. The IRC assists caregivers by connecting them to resources in their area, providing training on respite topics and having funding available for emergency respite. The IRC helps caregivers of individuals across the lifespan with any disability.
The Emergency Respite Care Program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source. Emergency respite care may be for an unplanned or planned event for reasons including:
- Caregiver illness (physical, mental or emotional)
- Caregiver hospitalization
- Work-related situation
- Reduction of stress level
The website gives examples of qualifying circumstances and information on how to apply. See the emergency care flyer for more details. (The flyer is also available in Spanish.)
For more information, contact:
- The Illinois Respite Coalition at (866) ILL-RESP (455-7377), ext. 101, or email irc.programassistant@gmail.com.
- Spanish-speaking callers may call (866) 866-ILL-RESP (455-7377), ext. 103, or email cnava@illinoisrespitecoalition.org
Almost Home Kids provides a bridge from hospital to home through an innovative community-based care system for children with medical complexities. It responds to the needs of families, trains caregivers, offers respite care, advocates for accessibility and inclusion and educates healthcare professionals.
Almost Home Kids offers transitional, respite and respite transportation care. It has locations in Chicago, Naperville and Peoria.
Medical/Health Resources
Get Covered Illinois - The Official Health Insurance Marketplace Resource
Get Covered Illinois is the health insurance Marketplace resource for the state of Illinois. Get Covered Illinois provides information about health insurance coverage provided under the Affordable Care Act (ACA).
Get Covered Illinois provides:
- Information and support to help Illinois residents understand insurance and the importance of health insurance coverage
- Access to health plans through Healthcare.gov
- Free enrollment help from Get Covered Illinois Navigators by phone or in person in multiple languages and in your community
Get Covered Illinois is a division of the Illinois Department of Insurance (IDOI).
New Lenox Transportation Service
New Lenox Transportation Service provides safe, affordable and reliable transportation for all New Lenox Township residents. Transportation is provided within the New Lenox Township and Village, Monday through Friday, from 7 a.m. to 3:30 p.m. Rides are also available to the Mokena, Frankfort and Joliet areas for medical and physical therapy appointments or employment for New Lenox Township residents ages 22 years and older with disabilities. You must make reservations by telephone.
Transportation office hours are 7 a.m. to 3 p.m. To schedule a ride, please call transportation services manager Debbie Cunningham at (815) 485-6431.
Generation Patient is a nonprofit organization created by and for young adult patients with chronic, complex, rare or undiagnosed medical conditions. The organization’s focus includes providing peer-support groups, roundtable discussions and helping to drive systems-level change through policy work, leadership programming and advocacy initiatives across healthcare and research spaces.
Generation Patient also offers:
- “Creating Spaces for Young Adults with Chronic Conditions,” a step-by-step toolkit with resources and strategies for finding and creating peer support
- Virtual community-led peer-support groups for young adults (ages 18 and up), including:
- A general group for young adults with chronic and rare medical conditions,
- A higher education group for patients in college or graduate school,
- A group for young adults with irritable bowel disease (IBD)