Resource Directory
Find resource information for families and children with special healthcare needs.
Some of these resources are specific for families and children enrolled in our programs. Others may be of interest to any family or child with special healthcare needs.
You can use the search box below to narrow your view. For example, you can search for support groups, respite, grant programs, a specific topic or by condition.
You can also browse by category or by region using the links on the right side of this page.
Here is a quick video showing how to use the search and display features for our resources and events.
Check back often for updates. If you don’t find what you need, please call us at (800) 322-3722 or send us an email.
Education Resources
Exceptional Learners Collaborative
The Exceptional Learners’ Collaborative (ELC) is a special education cooperative and joint agreement between four school districts in Vernon Hills (Lake County), Ill. The ELC provides services to students with special needs, ages 3 through 22. Its website offers information and resources on transition, employment, housing, mental health, parent advocacy and empowerment, the One Community parent-to-parent support group and more.
ELC provides services and support in communities that include Buffalo Grove, Kildeer, Long Grove, Lincolnshire, Riverwoods, Prairie View, Hawthorn Woods, Vernon Hills, Mundelein, Lake Zurich, Mettawa, Fox Lake and Spring Grove.
Located in Park Ridge, the Adult Down Syndrome Center offers comprehensive medical and support services to Illinois residents aged 12 and older with Down syndrome. The Adult Down Syndrome Center’s website includes:
- Resources for people with Down syndrome, families/caregivers and healthcare professionals
- A video gallery
- Information on events, classes and programs
For questions, see the Adult Down Syndrome Center’s FAQ page or call (847) 318-2303.
To schedule an appointment, call (847) 318-2303 between 8:30 a.m. and 5 p.m.
The Adult Down Syndrome Center is a part of Advocate Health.
UIC’s Institute on Disability and Human Development
The University of Illinois Chicago’s Institute on Disability and Human Development (IDHD) promotes community participation, health, empowerment and advocacy for people with disabilities and their families across all aspects of life. IDHD is part of the University Center for Excellence in Developmental Disabilities (UCEDD) network for the state of Illinois.
UIC’s IDHD supports and services include:
- Webinars
- Services and clinics for individuals with disabilities, their families and professionals
- Research
- Continuing education
Family Resources
Special Father’s Network is a dad-to-dad mentoring program for fathers raising children with special needs.
The program connects new fathers with special needs children to another father (a Mentor Father) who has experienced a similar situation. The program matches Mentor Fathers as closely as possible based on the child’s special needs, gender, ethnicity, socioeconomic group and relationship to the child e.g., .father, stepfather, grandfather).
The Special Father’s Network is available through the 21st Century Dads Foundation, which raises awareness and resources for greater father involvement and seeks to inspire dads to be present, caring and nurturing.
The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to supporting families and ensuring access to quality respite services for the residents of Illinois. The IRC assists caregivers by connecting them to resources in their area, providing training on respite topics and having funding available for emergency respite. The IRC helps caregivers of individuals across the lifespan with any disability.
The Emergency Respite Care Program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source. Emergency respite care may be for an unplanned or planned event for reasons including:
- Caregiver illness (physical, mental or emotional)
- Caregiver hospitalization
- Work-related situation
- Reduction of stress level
The website gives examples of qualifying circumstances and information on how to apply. For more details see the:
For more information, contact:
- The Illinois Respite Coalition at (866) ILL-RESP (455-7377), ext. 101, or email ilrespitecoalition@gmail.com.
- Spanish-speaking callers may call (866) 866-ILL-RESP (455-7377), ext. 103, or email ilrespitecoalition@gmail.com.
Almost Home Kids provides a bridge from hospital to home through an innovative community-based care system for children with medical complexities. It responds to the needs of families, trains caregivers, offers respite care, advocates for accessibility and inclusion and educates healthcare professionals.
Almost Home Kids offers transitional, respite and respite transportation care. It has locations in Chicago, Naperville and Peoria.
Medical/Health Resources
Get Covered Illinois - The Official Health Insurance Marketplace Resource
Get Covered Illinois is the health insurance Marketplace resource for the state of Illinois. Get Covered Illinois provides information about health insurance coverage provided under the Affordable Care Act (ACA).
Get Covered Illinois provides:
- Information and support to help Illinois residents understand insurance and the importance of health insurance coverage
- Access to health plans through Healthcare.gov
- Free enrollment help from Get Covered Illinois Navigators by phone or in person in multiple languages and in your community
Get Covered Illinois is a division of the Illinois Department of Insurance (IDOI).
New Lenox Transportation Service
New Lenox Transportation Service provides safe, affordable and reliable transportation for all New Lenox Township residents. Transportation is provided within the New Lenox Township and Village, Monday through Friday, from 7 a.m. to 3:30 p.m. Rides are also available to the Mokena, Frankfort and Joliet areas for medical and physical therapy appointments or employment for New Lenox Township residents ages 22 years and older with disabilities. You must make reservations by telephone.
Transportation office hours are 7 a.m. to 3 p.m. To schedule a ride, please call transportation services manager Debbie Cunningham at (815) 485-6431.
Generation Patient is a nonprofit organization created by and for young adult patients with chronic, complex, rare or undiagnosed medical conditions. The organization’s focus includes providing peer-support groups, roundtable discussions and helping to drive systems-level change through policy work, leadership programming and advocacy initiatives across healthcare and research spaces.
Generation Patient also offers:
- “Creating Spaces for Young Adults with Chronic Conditions,” a step-by-step toolkit with resources and strategies for finding and creating peer support
- Virtual community-led peer-support groups for young adults (ages 18 and up), including:
- A general group for young adults with chronic and rare medical conditions,
- A higher education group for patients in college or graduate school,
- A group for young adults with irritable bowel disease (IBD)

