Resource Directory
Find resource information for families and children with special healthcare needs.
Some of these resources are specific for families and children enrolled in our programs. Others may be of interest to any family or child with special healthcare needs.
You can use the search box below to narrow your view. For example, you can search for support groups, respite, grant programs, a specific topic or by condition.
You can also browse by category or by region using the links on the right side of this page.
Here is a quick video showing how to use the search and display features for our resources and events.
Check back often for updates. If you don’t find what you need, please call us at (800) 322-3722 or send us an email.
Education Resources
Special Connections of Grundy County
Special Connections of Grundy County promotes inclusion, self-determination and learning for people with disabilities in Grundy County. Programs include a wide range of Special Olympics athletics, arts and crafts, movies, games, picnics, parties, dances and family support throughout the year.
Least Restrictive Environment Inclusion Toolkit for Families of Young Children With Disabilities
Early CHOICES’ Least Restrictive Environment (LRE) Inclusion Toolkit aims to help families of children with disabilities navigate the early childhood system to ensure their child is included in the LRE. Whether you’re just beginning your journey or looking for specific support, this toolkit will empower you to champion inclusion for your child.
The LRE Inclusion Toolkit includes:
- Evidence for the benefits of inclusion
- Federal guidance for inclusion
- Resources with links and guidance to help you understand and use the tools effectively
- Bolded keywords throughout the document that you can easily find in the “Glossary” at the end of the toolkit
- QR codes for each of the embedded links
EngineerGirl focuses on diversity of thought and the many opportunities engineering represents for girls and women. The EngineerGirl website includes inspiration, information about women engineers and their achievements, “Try This” design challenges, a writing contest, summer study programs for high school students and more. EngineerGirl offers girls interested in problem-solving and engineering.
Visit its website for information about engineering scholarships and the EngineeringGirl annual writing contest.
Family Resources
Special Father’s Network is a dad-to-dad mentoring program for fathers raising children with special needs.
The program connects new fathers with special needs children to another father (a Mentor Father) who has experienced a similar situation. The program matches Mentor Fathers as closely as possible based on the child’s special needs, gender, ethnicity, socioeconomic group and relationship to the child e.g., .father, stepfather, grandfather).
The Special Father’s Network is available through the 21st Century Dads Foundation, which raises awareness and resources for greater father involvement and seeks to inspire dads to be present, caring and nurturing.
The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to supporting families and ensuring access to quality respite services for the residents of Illinois. The IRC assists caregivers by connecting them to resources in their area, providing training on respite topics and having funding available for emergency respite. The IRC helps caregivers of individuals across the lifespan with any disability.
The Emergency Respite Care Program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source. Emergency respite care may be for an unplanned or planned event for reasons including:
- Caregiver illness (physical, mental or emotional)
- Caregiver hospitalization
- Work-related situation
- Reduction of stress level
The website gives examples of qualifying circumstances and information on how to apply. See the emergency care flyer for more details. (The flyer is also available in Spanish.)
For more information, contact:
- The Illinois Respite Coalition at (866) ILL-RESP (455-7377), ext. 101, or email irc.programassistant@gmail.com.
- Spanish-speaking callers may call (866) 866-ILL-RESP (455-7377), ext. 103, or email cnava@illinoisrespitecoalition.org
Almost Home Kids provides a bridge from hospital to home through an innovative community-based care system for children with medical complexities. It responds to the needs of families, trains caregivers, offers respite care, advocates for accessibility and inclusion and educates healthcare professionals.
Almost Home Kids offers transitional, respite and respite transportation care. It has locations in Chicago, Naperville and Peoria.
Medical/Health Resources
Get Covered Illinois - The Official Health Marketplace
If you are looking for health insurance for yourself or your family, or if you own a small business or lead a nonprofit organization this website is the official site in Illinois for signing up for health insurance.
Family Voices "My Language, My Care" Language Access Rights and Services Course
Family Voices’ “My Language, My Care” is a free online, plain language course to help increase awareness, understanding and use of language access rights and services for families whose preferred language is not English. The course is available in English, Spanish, Chinese and American Sign Language.
Family Voices’ My Language, My Care course will provide:
- An understanding of their rights under the law
- Information about interpreter confidentiality
- Tools to advocate for high-quality language access services in the healthcare setting
- A certificate of completion after finishing all six modules of the training course
- Access to a free toolkit with information from the course in English, Spanish and Chinese
DSCC's Transdev Transportation Prior Approval Tip Sheet
Medicaid will pay for transportation to and from appointments that Medicaid covers. For example, Medicaid will pay the cost for a trip to see a specialist.
This tip sheet from the Division of Specialized Care for Children (DSCC) explains how to use Transdev to submit prior approvals for transportation.