Resource Directory
Find resource information for families and children with special healthcare needs.
Some of these resources are specific for families and children enrolled in our programs. Others may be of interest to any family or child with special healthcare needs.
You can use the search box below to narrow your view. For example, you can search for support groups, respite, grant programs, a specific topic or by condition.
You can also browse by category or by region using the links on the right side of this page.
Here is a quick video showing how to use the search and display features for our resources and events.
Check back often for updates. If you don’t find what you need, please call us at (800) 322-3722 or send us an email.
Education Resources
EngineerGirl focuses on diversity of thought and the many opportunities engineering represents for girls and women. The EngineerGirl website includes inspiration, information about women engineers and their achievements, “Try This” design challenges, a writing contest, summer study programs for high school students and more. EngineerGirl offers girls interested in problem-solving and engineering.
Visit its website for information about engineering scholarships and the EngineeringGirl annual writing contest.
Bridgeway provides a wide range of programs for people with developmental and intellectual disabilities in west-central and northern Illinois. Bridgeway offers a variety of person-centered programs that focus on greater choice, achieving independence and community participation. Bridgeway programs include:
- Day services
- Adult learning services
- School-based counseling
- Community living and supports
- Employment programs
- Substance use assessments and programs for youth and adults
Progress Center for Independent Living Serving Suburban Cook County
The Progress Center for Independent Living serves over 133 municipalities throughout suburban Cook County. It is a community-based, non-profit, non-residential service and advocacy organization operated for people with disabilities, by people with disabilities. Progress Center provides a variety of training and education services, housing assistance, and tools and resources for people with disabilities to live independently in their own homes. These include:
- Youth transition to adulthood program
- Independent living skills training
- Peer counseling
- Housing assistance
- Deaf services
- Braille classes
- Radio Independent Living 24/7
Family Resources
Special Father’s Network is a dad-to-dad mentoring program for fathers raising children with special needs.
The program connects new fathers with special needs children to another father (a Mentor Father) who has experienced a similar situation. The program matches Mentor Fathers as closely as possible based on the child’s special needs, gender, ethnicity, socioeconomic group and relationship to the child e.g., .father, stepfather, grandfather).
The Special Father’s Network is available through the 21st Century Dads Foundation, which raises awareness and resources for greater father involvement and seeks to inspire dads to be present, caring and nurturing.
The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to supporting families and ensuring access to quality respite services for the residents of Illinois. The IRC assists caregivers by connecting them to resources in their area, providing training on respite topics and having funding available for emergency respite. The IRC helps caregivers of individuals across the lifespan with any disability.
The Emergency Respite Care Program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source. Emergency respite care may be for an unplanned or planned event for reasons including:
- Caregiver illness (physical, mental or emotional)
- Caregiver hospitalization
- Work-related situation
- Reduction of stress level
The website gives examples of qualifying circumstances and information on how to apply. See the emergency care flyer for more details. (The flyer is also available in Spanish.)
For more information, contact:
- The Illinois Respite Coalition at (866) ILL-RESP (455-7377), ext. 101, or email irc.programassistant@gmail.com.
- Spanish-speaking callers may call (866) 866-ILL-RESP (455-7377), ext. 103, or email cnava@illinoisrespitecoalition.org
Almost Home Kids provides a bridge from hospital to home through an innovative community-based care system for children with medical complexities. It responds to the needs of families, trains caregivers, offers respite care, advocates for accessibility and inclusion and educates healthcare professionals.
Almost Home Kids offers transitional, respite and respite transportation care. It has locations in Chicago, Naperville and Peoria.
Medical/Health Resources
Get Covered Illinois - The Official Health Marketplace
If you are looking for health insurance for yourself or your family, or if you own a small business or lead a nonprofit organization this website is the official site in Illinois for signing up for health insurance.
The United Spinal Association empowers and advocates for wheelchair users and people with spinal cord injuries and disorders (SCI/D) nationwide. The organization provides local chapters, disability resources, peer support, a manual wheelchair guide and app, a health equity checklist and toolkit and more. Its resources include:
- The United Spinal Association of Illinois
- Peer support groups and mentorship programs (in-person or virtual)
- Equipment or supply closet/loan program
- Regular social events and activities
- Individual grants to members
- The Disability Etiquette Guide to download and share
Bryon Riesch Paralysis Foundation
The Bryon Riesch Paralysis Foundation provides financial assistance to people of all ages with spinal cord injury and neurological disorders. It also offers funding for medical research. Financial assistance includes post-high school education scholarships and charitable grants to help pay for items such as van modifications, wheelchairs and ramps.
The foundation awards scholarships annually. It reviews charitable grants quarterly in January, March, June, and September. Wisconsin residents receive priority. Individuals anywhere in the United States may receive financial assistance depending on available funds. For program applications and more information, visit: