St. Clair Resources
How to Support a Child with Epilepsy: Information for Parents
“How to Support a Child with Epilepsy: Information for Parents” from HealthyChildren.org, the American Academy of Pediatrics’ parenting website, provides tips for encouraging and supporting a child with epilepsy from infancy to adulthood. Topics include:
- Recognizing and treating seizures as early as possible
- Talking to your child’s doctor
- Discussing epilepsy openly and honestly with your child and others
- Finding childcare
- Teens with epilepsy
- Transitioning to adulthood
Additional resources for explaining epilepsy to others, building a care notebook, asking your medical team questions and what to do if your child has a seizure are also available.
COVID-19 Vaccine Preparation Checklist for Kids
The COVID-19 vaccine is now recommended for children ages 6 months old and up. To help you prepare for your child’s vaccination, the American Academy of Pediatrics (AAP) provides information about the vaccine and a step-by-step checklist of questions or other health-related topics you may want to discuss with your child’s pediatrician or primary care doctor when scheduling your vaccine appointment.
New to Seizures and Epilepsy Toolkit
Hearing about epilepsy and seizures for the first time can be frightening and confusing. The Epilepsy Foundation’s “New to Seizures and Epilepsy Toolkit” provides a starting point for individuals, parents and caregivers to learn about:
- What epilepsy is
- Available resources
- How to make the most of doctors’ visits
- How to take control of seizures
Individual fact sheets on topics including seizure first aid and developing your own seizure response plan are also available. All materials are available in English and Spanish.
Magic Wheelchair is a nonprofit organization that builds costumes for children and youth in wheelchairs at no cost to families.
To be eligible for a Magic Wheelchair costume, a child must be between the ages of 5 and 17 and primarily use a wheelchair for mobility.
Safe2Help Illinois offers students a safe, confidential way to share information that might help prevent suicides, bullying, school violence or other threats to school safety. The program is focused on getting students to “Seek Help Before Harm.”
Recognizing that not all students may feel safe talking to their parents, teachers, coaches or mentors, students can use a free app, text/phone, website (Safe2HelpIllinois.com) and other social media platforms to confidentially report school safety issues and seek help before harming themselves or others.
The Safe2Help website provides guidance, tips and multi-media materials for children, teens, parents and educators on topics including:
- The role and actions of a trusted adult
- Ways to get help
- Encouraging others
- Helping someone online
- Suicide prevention
Well-Child Visits and Recommended Vaccinations During COVID-19 Pandemic and Beyond
Well-child visits and recommended vaccinations are essential and help make sure children stay healthy.
Families have been doing their part by staying at home as much as possible to help stop the spread of COVID-19. Unfortunately, many children have missed check-ups and recommended childhood vaccinations. The Centers for Disease Control and Prevention (CDC) has created a website with information for families and those who care for children to help them catch up on missed vaccinations.
The site includes fact sheets, posters, social media templates, and sample newsletter articles to encourage caregivers to get back on track with childhood vaccinations in:
igrow is the Illinois symbol for quality evidence-based home visiting services to expectant parents and families with new babies and young children.
igrow home visiting provides family support and coaching to young parents who may be inexperienced and often do not have family support. Trained professionals are matched with families based on each family’s needs.
Digital Safety Resources from the Illinois Attorney General
Digital safety encompasses a wide variety of issues related to the use of computers, tablets, cell phones, games, apps and social media. The Illinois Attorney General’s “Stay Connected, Stay Informed website” provides resources for children, teenagers, parents and educators seeking information about digital safety.
Kids, teens, parents and teachers coping with cyberbullying and internet safety issues may also contact an Internet Safety Specialist at:
Grupo SALTO (Sociedad de Autismo Latina Trabajando con Optimismo) aims to provide support in Spanish for Latino families who have children who are differently abled, with a focus on autism.
Grupo SALTO provides culturally and linguistically appropriate training, education and services.
Bullying and Youth with Disabilities and Special Health Needs
Children with disabilities — such as physical, developmental, intellectual, emotional, and sensory disabilities — are at an increased risk of being bullied. Any number of factors — physical vulnerability, social skill challenges, or intolerant environments — may increase the risk.
StopBullying.Gov provides information on risk factors, strategies to create a safe environment and other resources at www.stopbullying.gov/bullying/special-needs.