Springfield Resources
NeuroJourney is an educational resource for parents, caregivers and clinicians navigating the ever-evolving needs of children with severe neurological impairment (SNI).
You can find both practical and medical information and insights from parents and clinicians about the social and emotional experiences common to having a child with SNI. Resources include a Caregiver Worksheet as well as guidance to help build the care team, prompts for conversations with specialists and more.
National Association for Down Syndrome
The National Association for Down Syndrome (NADS) serves individuals with Down syndrome and their families. NADS’ website provides a variety of webinars, publications and resources for the Chicago metropolitan area and beyond.
NADS also offers a “Congratulations Basket and Referral Program.” Please note that the organization can only deliver baskets to specific Chicago-area hospitals.
Jack’s Basket supports new parents of a child with Down syndrome by providing information, a support system and a welcome basket to let them know they’re not alone. Baskets are available from the time of diagnosis (prenatal or at birth) up to the baby’s first birthday. Parents, friends, family members, healthcare providers or Down syndrome organizations can request baskets.
The website also includes local and national resources to support people with Down syndrome and their families.
Lincoln Land Down Syndrome Society
Lincoln Land Down Syndrome Society (LLDSS) provides a support network for families residing in and around Sangamon County. LLDSS programs and events promote awareness, inclusion and education of people with Down syndrome.
LLDSS activities include monthly meetings, social gatherings and recreational opportunities.
Increasing Community Access to Testing (ICATT) for COVID-19
The Centers for Disease Control and Prevention’s Increasing Community Access to Testing (ICATT) testing locator can help you find no-cost COVID-19 testing locations and contact information for the providers.
Every provider handles appointments differently. Please be sure to schedule your appointment directly with the provider you choose.
The Test to Treat site can help you be tested, treated and prescribed treatment for COVID-19 at little to no cost. The site provides information on accessing lifesaving treatments for COVID nationwide and contacting the Centers for Disease Control and Prevention (CDC) COVID-19 hotline and the Disability Information and Access Line (DIAL).
eHomeCare Online Course on Caring for Children With Trachs
The eHomeCare program is a free online training program that aims to provide comprehensive information for those caring for children with a tracheostomy (trach) with/without a ventilator. The training is for:
- Nurses working in home-based environments
- Physicians
- Respiratory therapists
- Family members and caregivers of children with trachs with and without ventilators
The course is available until Sept. 30, 2026. Learners can use this course for initial training, an annual review or as an ongoing resource.
National Alliance for Children’s Grief
The National Alliance for Children’s Grief (NACG) is a nationwide, nonprofit organization that raises awareness about the needs of children and teens who are grieving a death. NACG provides education and resources for anyone supporting a child grieving the loss of a loved one.
In addition to support toolkits on a range of topics, NACG also provides:
- Information on how to talk about death to children
- Online learning and webinars
- A grief support resource library
HealthyChildren.org’s “Childhood Grief: When to Seek Additional Help”
Many children experience the death of a close family member or friend at some point during their childhood. The American Academy of Pediatrics’ website HealthyChildren.org provides information for parents about childhood grief, ways to help your child, and where to find support.
The information includes:
- Signs your child may need more help
- Important information about tweens
- Resources for more information
Health Resources and Services Administration (HRSA) COVID-19 Provider Locator
The Health Resources and Services Administration (HRSA) provides a Find a Health Center locator tool to help you find health centers and COVID-19 services in your community. The tool is available in many languages.