The National PKU alliance provides information including the latest research, a guide for new parents, educational videos, cooking and food, personal stories, scholarships, and legislation and policy.
Individuals impacted by Phenylketonuria (known as PKU) may also download the PKU Handbook, a guide to help understand, organize information and manage PKU from diagnosis to adulthood.
LifeLine Pilots is a non-profit group providing free air transportation to patients seeking a second opinion or in need of treatment at a clinic far from home for non-emergency medical needs.
The organization serves individuals who may not be able to travel long distances any other way or have financial or health-related needs. Volunteer pilots fly passengers in need within a 10 state region. Lifeline Pilots also works with other volunteer pilot organizations to arrange flights beyond their service area.
If you have questions or need to determine if you qualify for services, call 800-822-7972 or fill out the mission request form.
The Illinois Assistive Technology Program (IATP) provides expertise in assistive technology and accessible information technology to all Illinois residents of all ages with disabilities and/or health conditions including family members, friends and caregivers.
IATP provides assistive technology demonstrations and allows people to see, try and borrow devices before making a purchasing decision. IATP also allows people to donate or obtain gently used assistive technology devices.
IATP’s ATLOAN$ Program provides loans to qualifying Illinois citizens with disabilities or their families for the purchase of assistive technology. Available loans include assistive technology loans, home modification loans and credit builder loans.
Equip for Equality is an independent agency whose primary goal is protecting the civil and human rights of citizens with disabilities.
Equip for Equality offers assistance that includes:
The National Organization for Rare Disorders (NORD) offers support, information and a variety of events for clinicians, researchers, patients and families affected by rare diseases.
NORD’s Resource Center provides patients and caregivers with free webinars, fact sheets, infographics, links to support and advocacy groups, and referrals for many rare disorders.
Home modification refers to converting or adapting the environment in order to make performing tasks easier, reduce accidents, and support independent living.
Homemods.org has compiled a variety of resources on home modification resources to provide education, training and information for your own home modification needs.
Linkup and Lifeline are two federally funded programs that assist families with paying for telephone installation and monthly service. Eligibility requirements apply.
The Illinois Early Intervention Clearinghouse is a lending library and information resource for families and professionals interested in or involved with the Illinois Early Intervention (EI) Program.
It offers tip sheets and guides for families, resources for EI staff and providers, and a lending library.
The Illinois Life Span (ILS) Program is a program of The Arc of Illinois that provides statewide resources and information, focused on developmental disability services and supports.
Its website includes a resource locator that can help you find resources in your county and statewide.
You can call ILS at (800) 588-7002.
The Illinois State Board of Education (ISBE) is state agency providing information and resources on all aspects of education, including early childhood, general education, special education and assistive technology.