The Sibling Leadership Network provides siblings of individuals with disabilities the information, support and tools to advocate with their brothers and sisters. Their website offers ways to get involved, policy and advocacy information, and family-specific resources including resources for teenage/young adult siblings, resources for adult siblings and resources for parents and family members.
PACER Center has a list of Sibling Resources for families to explore that offer support, resources and stories about siblings of children with disabilities. The annotated bibliography includes articles and books written for adults, books for children, newsletters, videos and organizations.
The Danny Did Foundation works toward its mission to prevent deaths caused by seizures with these main goals in mind: advancing public awareness of Sudden Unexpected Death in Epilepsy (SUDEP), enhancing the SUDEP communication model between medical professionals and families afflicted by seizures, and the mainstreaming of seizure detection and prediction devices that may assist in preventing seizure-related deaths.
The Danny Did Foundation’s grant program does provide financial assistance for purchasing seizure detection and seizure prediction devices to qualifying individuals.
This series of videos created by the Illinois Emergency Management Agency and the Illinois Deaf and Hard of Hearing Commission provide vital information and preparedness messages in American Sign Language (ASL).
A guidebook from the Illinois Emergency Management Agency that provides preparedness tips for people with visual, cognitive or mobility impairments; people who are deaf or hard of hearing; those who utilize service animals or life support systems; and senior citizens.
The U.S. Election Assistance Commission created this comprehensive list of resources for voters with disabilities, which includes links to voting accessibility laws and regulations and the latest best practices and research pertaining to voters with disabilities.
The commission also created a tip sheet to help voters with disabilities vote privately and independently.
This checklist provides information and resources about health insurance coverage, self-care, health care transition, decision-making and career planning and management.
A free online social community of survivors and family caregivers who share information and inspiration. Support Network members trade tips, compare notes and shore each other up when the going gets rough. Members also have access to healthcare professionals who can answer their questions. Plus, specialized resources from the American Heart Association.
Autism Speaks offers parents helpful tips for establishing good sleep hygiene and tool kits targeting sleep strategies for children, teens and adults on the spectrum.
The Special Recreation Associations Network of Illinois (SRANI) is a network of therapeutic recreation agencies. Special Recreation Associations provide community-based special recreation services to children and adults with disabilities. You can see a list of special recreation cooperatives available in Illinois.
For more information, visit the SRANI website.