Lombard Resources
Vaccine Information for Parents With Children With Disabilities
Vax for All provides vaccine information and other helpful tips for parents and caregivers of a child with autism and other disabilities. Resources on the website include:
- Stories, videos and other kid-friendly disability resources
- How vaccines work – explanations for children and adults
- A vaccine appointment scheduling tool
- Information about in-home vaccine appointments for children in Illinois
Parents may text HELLO to (260) VAX-4ALL / (260) 829-425 to find information or chat.
Para obtener información sobre cómo vacunar a su hijo, envíe un mensaje de texto con HOLA al (260) 829-4255.
Etiquette: Interacting with People with Disabilities
People with disabilities are individuals with families, jobs, hobbies, likes and dislikes, and problems and joys. While the disability is an integral part of who they are, it alone does not define them.
RespectAbility offers tips and resources to educate the public about etiquette and interacting with people with disabilities. Featured information includes:
- A disability sensitivity training video from the D. C. Office of Disability Rights
- The United Spinal Association’s Disability Etiquette booklet (Spanish) (Chinese)
People First: A Guide to Interacting With People With Disabilities
The Illinois Department of Human Services’ Division of Rehabilitation Services (IDHS/DRS) is dedicated to empowering people with disabilities in becoming full participants in our society.
With “People First: A Guide to Interacting with People With Disabilities,” IDHS/DRS provides general etiquette tips and information on people-first language to foster respect and inclusion for people with disabilities.
How SSI and SSDI Can Help Patients
The Patient Advocate Foundation (PAF) provides valuable information and understanding to patients navigating the healthcare system.
PAF’s Education Resource Library offers information on a wide variety of individual health and health insurance-related topics as well as understanding Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI).
Many of PAF’s resources are also available in Spanish.
PAF is also available by phone Monday – Friday, 7:30 a.m. – 4 p.m., at (800) 532-5274.
Navigating Health Insurance and the Health Care System
The Patient Advocate Foundation (PAF) provides valuable information and understanding to patients navigating the healthcare system.
PAF’s Education Resource Library offers information on a wide variety of individual health and health insurance-related topics including:
- Finding and Selecting Insurance
- Making the Most of Your Health Insurance
- Engaging with Insurers: Appealing a Denial
- The Insider’s Guide to Drug Formularies & Medication Benefits
The PAF also offers information and resources in Spanish.
PAF is also available by phone on Monday through Friday from 7:30 a.m. to 4 p.m. at (800) 532-5274.
Getting the Care You Need: A Guide for People With Disabilities
“Getting the Care You Need: A Guide for People with Disabilities” aims to empower patients with disabilities by explaining their rights to accessible care.
The Centers for Medicare & Medicaid Services (CMS) provides this resource. It is available in multiple languages, including:
How to Support a Child with Epilepsy: Information for Parents
“How to Support a Child with Epilepsy: Information for Parents” from HealthyChildren.org, the American Academy of Pediatrics’ parenting website, provides tips for encouraging and supporting a child with epilepsy from infancy to adulthood. Topics include:
- Recognizing and treating seizures as early as possible
- Talking to your child’s doctor
- Discussing epilepsy openly and honestly with your child and others
- Finding childcare
- Teens with epilepsy
- Transitioning to adulthood
Additional resources for explaining epilepsy to others, building a care notebook, asking your medical team questions and what to do if your child has a seizure are also available.
COVID-19 Vaccine Preparation Checklist for Kids
The COVID-19 vaccine is now recommended for children ages 6 months old and up. To help you prepare for your child’s vaccination, the American Academy of Pediatrics (AAP) provides information about the vaccine and a step-by-step checklist of questions or other health-related topics you may want to discuss with your child’s pediatrician or primary care doctor when scheduling your vaccine appointment.
New to Seizures and Epilepsy Toolkit
Hearing about epilepsy and seizures for the first time can be frightening and confusing. The Epilepsy Foundation’s “New to Seizures and Epilepsy Toolkit” provides a starting point for individuals, parents and caregivers to learn about:
- What epilepsy is
- Available resources
- How to make the most of doctors’ visits
- How to take control of seizures
Individual fact sheets on topics including seizure first aid and developing your own seizure response plan are also available. All materials are available in English and Spanish.
Magic Wheelchair is a nonprofit organization that builds costumes for children and youth in wheelchairs at no cost to families.
To be eligible for a Magic Wheelchair costume, a child must be between the ages of 5 and 17 and primarily use a wheelchair for mobility.