The National Organization for Rare Disorders (NORD) offers support, information and a variety of events for clinicians, researchers, patients and families affected by rare diseases.

NORD’s Resource Center provides patients and caregivers with free webinars, fact sheets, infographics, links to support and advocacy groups, and referrals for many rare disorders.

NORD’s RareCare Program website provides a list of financial assistance programs that can help patients obtain life-saving or life-sustaining medication they could not otherwise afford.

NORD’s State Resource Center contains local, state and national organizations listed by state or by topic offering free or low-cost services for people impacted by rare diseases.

ComeUnity is a parent support website with resources on parenting children with special needs, adoption, child development and multiple lists of groups and organizations providing information on specific topics or areas.

Visit www.comeunity.com/index.html.

PACER Center is a parent training and information center for families of children and youth with all disabilities from birth to young adults. It serves families across the nation.

Parents can find publications, workshops and other resources to help make decisions about education, vocational training, employment and other services for their children with disabilities.

Shriners Hospitals for Children has a mission to provide the highest quality care to children with neuromusculoskeletal conditions, burn injuries and other special healthcare needs within a compassionate, family-centered and collaborative care environment.

US govt. web site with links to a wide variety of health and human services information sources. Links to online medical dictionaries, libraries, support groups, and other agencies.

ODH works to prevent secondary conditions. Mission is to maintain and improve the health of families, adults and children  with disabilites

Created by medical experts, KidsHealth has accurate, up-to-date information about growth, fitness, lab tests, medical and surgical conditions, and the latest treatments.

The American Cleft Palate – Craniofacial Association (ACPA) is a non-profit association of individuals and healthcare professionals who are interested in clinical care and research advancements for those affected by cleft and craniofacial conditions.

ACPA provides important information for families, patients and professionals on topics associated with cleft or craniofacial care as well as educational materials in English and Spanish, scholarship information and more.

The Arc of Illinois Family to Family Health Information Center is a free service for families of children and youth with special needs.  The Center is a collaborative project with Family Voices of Illinois and provides families tools to make informed decisions, advocates for improved public and private policies, builds partnerships among professionals and families, and serves as a trusted resource on health care.

Access to board certification status, location by city, state, and specialty of any physician certified by one or more of the 24 Member Boards of the ABMS.