HFS invites families to participate in listening sessions to share feedback on HealthChoice Illinois managed care

The Illinois Department of Healthcare and Family Services (HFS) wants to hear about your experience with HealthChoice Illinois managed care.

The agency is holding in-person and virtual listening sessions to gather feedback from HealthChoice Illinois customers, providers, advocates and other stakeholders.

You can share your experiences, suggest improvements and also provide written feedback through an online form.

Most Medicaid customers are part of HealthChoice Illinois. You’re a HealthChoice Illinois customer if you selected a managed care organization after you joined Medicaid.

HFS wants to know:

• What works well for you with HealthChoice Illinois?
• Where do you see opportunities to improve?
• How else can HFS and HealthChoice Illinois meet your needs?

There are several ways you can share your input:

In-Person Listening Sessions

• Chicago
  • Date and time: Thursday, Sept. 12, from 1 to 4 p.m.
  • Location: College of Pharmacy, 833 S. Wood St. in Chicago, Room 134-3
  • Link to register for Chicago session
    
• Springfield
  • Date and time: Tuesday, Sept. 17, from 1 to 4 p.m.
  • Location: John Block Building Auditorium, Illinois Department of Agriculture, 801 E. Sangamon Ave., on the Illinois State Fairgrounds at Gate 11
  • Link to register for Springfield session

Virtual Listening Sessions

HFS will also take comments during its virtual Medicaid Advisory Committee (MAC) and Subcommittee meetings on:

• Sept. 24
• Oct. 3
• Nov. 1

Visit the HFS website for details and registration information.

Written Feedback

If you’re unable to attend a listening session, the HFS website also has an online form to provide written feedback.

HFS will accept feedback through Nov. 15, 2024.

Why Your Feedback is Important

HFS is preparing to procure new HealthChoice Illinois managed care contracts. Your input will help HFS better serve enrollees by improving access and quality within the Illinois Medicaid program.

If you are a Division of Specialized Care for Children (DSCC) participant, the listening sessions are also a good opportunity to share your families’ experience working with DSCC.

We partner with HealthChoice Illinois managed care organizations through contracts to provide care coordination services for their members.

More details about the procurement process are on the HFS website.

Families have through Sept. 28, 2024, to share input on waiver amendments allowing CNAs to become paid family caregivers and nursing rate increases.

Families have an opportunity to share feedback on several significant updates to the Medicaid Home and Community-Based Services Waiver for Those Who Are Medically Fragile, Technology Dependent (MFTD waiver).

The Illinois Department of Healthcare and Family Services (HFS) is the Medicaid agency responsible for the MFTD waiver. Many families in the Home Care Program have children who receive services through this waiver.

HFS is currently seeking approval from the federal Centers for Medicare and Medicaid Services (CMS) for waiver amendments that will:

• Allow parents who are certified nursing assistants (CNAs) to be paid family caregivers
• Increase rates for in-home nurses and CNA services

Read below for more details about these amendments and how to share your input.

CNAs as Paid Family Caregivers

Plans are underway to allow parents/legally responsible adults (LRAs) to become paid caregivers if they are a CNA and employed through a nursing agency.

Currently, parents/LRAs are paid for providing skilled nursing services to their children if they hold an active registered nurse (RN) or licensed practical nurse (LPN) license. This rule applies to parents/LRAs of all children approved for Home Care services, regardless of the child’s age. (Read more about our efforts to make paid licensed family caregivers a permanent benefit.)

Allowing parents and caregivers who are CNAs to become paid caregivers is an important step in strengthening our support for families of individuals who need in-home shift nursing.

This update would give more parents/LRAs the opportunity to earn payment for the caregiving they provide their children at home.

This change requires an amendment to the MFTD waiver as well as the creation of a new state plan amendment.

Nursing Rate Increase

HFS is also proposing a 7 percent rate increase for in-home nurses and CNA services to take effect on Jan. 1, 2025.

This rate increase would affect:

• RN, LPN and CNA care
• In-home and facility-based respite care
• Nurse training rates

The proposed rates are as follows:

• RN, $57.78 per hour
• LPN, $48.15 per hour
• CNA, $32.10 per hour

We hope this rate increase can help make more high-quality nursing options available for our participant families.

Transitional Care Services provided outside the home (not an MFTD waiver service) is expected to have a rate increase from $950 to $1,300 a day. This increase would also take effect on Jan. 1, 2025.

Other Key Updates in the Amendment Include:

• Adds adaptive equipment and assistive technology as new services.
• Makes pest control a post-approval process. This change means families will not need to receive prior approval for pest control services.
• Makes the Division of Specialized Care for Children (DSCC) the entity responsible for the prior approval for home accessibility modifications, vehicle modifications, medical equipment operating expenses, adaptive equipment, placement maintenance counseling and assistive technology.
• Removes the requirement of two bids if the cost exceeds $2,000 for waiver services. This change is necessary to help increase access to services.

Share Your Feedback

The public comment period for these proposed waiver amendments is now open.

To review the full list of proposed waiver updates, you can:

• Read the public comment notice on HFS’s website.

• Review a hard copy at HFS’ offices at:
  
  • 201 South Grand Ave. E.,
    Springfield, IL 62763
    
  • 401 S. Clinton
    Chicago, IL 60607

The deadline to provide feedback is Sept 28, 2024.

You can share your feedback in two ways:

• Via email to HFS.HCBSWaiver@illinois.gov
• Via mail to the Illinois Department of Healthcare and Family Services, Attention: Waiver Operations Management, 201 South Grand Ave. E., 2FL, Springfield, IL 62763

This public comment process is one of the best ways you can have your voice heard.

HFS will send your comments to the federal CMS as part of the waiver approval process.

If you have questions, please contact HFS’s Waiver Operations Management Unit at (217) 524-4148 or (844) 528-8444.

The 2024 Illinois Statewide Transition Conference is happening on Nov. 7-8 in Springfield

Luz Diaz said she struggled emotionally before attending the Illinois Statewide Transition Conference.

She felt isolated and unsure of the future for her daughter, Ariana, now 20. Ariana has cerebral palsy and quadriplegia along with hearing loss and developmental delays.

The knowledge she gained and the connections she made with other families during the 2023 conference immediately lifted her spirits. Luz now feels more hopeful for what lies ahead.

“Before I came here, I was depressed. I felt so lonely. Now that I’ve seen everything here, my thoughts have changed. I don’t feel lonely. I feel like I belong, and I feel like this is my family,” she said. “Now I feel like I’m not alone.”

The Diaz family were among 370 people who attended the 2023 transition conference in person in Bloomington-Normal.

The conference, titled “Stepping Stones of Transition,” returns for 2024 at the Crowne Plaza in Springfield, Ill., on Nov. 7-8. This year’s event is in person only.

The conference highlights opportunities and resources available for youth and young adults with disabilities and complex medical needs as they transition to adulthood. It’s a “one-stop shop” for gaining valuable resources, making connections and learning alongside individuals who are on the same journey.

The “Stepping Stones of Transition” conference is for youth, parents, caregivers, vocational specialists, healthcare providers, educators and others who work with youth and young adults with disabilities.

Youth and young adults can visit vendors, attend workshops and learn how to plan for their future, including:

• What happens after I leave high school?
• How do I sort through the maze of resources?
• What steps can I take now to prepare for upcoming changes?
• What skills are important for me to develop?

Highlights for 2024 will include learning about supported decision-making from keynote speaker and self-advocate Derek Heard along with Allison Cohen Hall from the Center on Youth Voice, Youth Choice.
You can also attend sessions on:

• Self-determination
• Advocacy
• Employment
• Future planning
• Post-secondary education
• Health care

The Division of Specialized Care for Children (DSCC) helps sponsor the transition conference and serves on its steering committee. We also can pay for the conference-related expenses for our participant families to attend.

DSCC paid the conference-related expenses for 25 DSCC participant families to attend the 2023 conference that took place in Bloomington-Normal.

“An Amazing Opportunity to Learn and Connect”

DSCC participant Vera Lynn Lindquist, 18, attended the transition conference both in 2022 and 2023. She has autism, attention-deficit hyperactivity disorder, anxiety disorder from childhood, tinnitus and hearing loss.

Vera enjoyed exploring the transition conference’s booths and sharing about the goals she has worked on.

“I know a lot more about autism awareness and speaking up and speaking out…” Vera said. “I’ve self-advocated at school. I reached out to my teacher on my laptop, I emailed him. I was behind on a lesson and let him know. He came and helped (me). It made all my teachers very happy.”

Vera attended the conference both years with her grandmother and legal guardian, Cheryl Calcese.

“We’ve used many of the independence and decision-making strategies we learned about,” Cheryl said. “Vera got a debit card. She has a money limit on it when she goes out for pizza and other group social events. She has an app on her phone to figure out the tax and tip. She adjusts everything according to her budget. She’s doing well with that and hasn’t gone over her budget once!”

The transition conference also gave Vera an opportunity to build her self-esteem and self-advocacy skills.

“She feels very comfortable at this conference, and it shows. She’s visiting with vendors and participating in sessions. Here her independence is shining. It’s very cool,” Cheryl said.

Cheryl also gained more resources and knowledge for herself.

“It’s always an amazing opportunity to learn and connect,” she said. “Thanks to the conference, I understand more about legal guardianship for adults and where to go for the paperwork for free or low-cost.”

Cheryl also learned more about the Americans with Disabilities Act (ADA).

“Vera and other students with disabilities had to miss their school homecoming,” she said. “In one of the sessions, I learned that the ADA covers social events. I connected with an organization that can help me make sure these students won’t miss their prom.”

Ariana’s mom, Luz, said she is grateful to everyone who organizes the conference so she can help give Ariana the best quality of life as she grows into adulthood.

Ariana’s father, Edgar, said he felt like the world was closing in on him before he attended the conference. By the end of last year’s event, he said he felt motivated after learning how conference speakers with disabilities advocated for themselves to have greater independence and a better quality of life.

Register and See the 2024 Schedule

The general public and professionals can visit the Statewide Transition Conference website to register and see more details.

For DSCC families, the conference schedule and more details are available:

• In English at: https://go.uic.edu/DSCC2024TransitionConferenceInfo
• In Spanish at: https://go.uic.edu/DSCC2024TransitionConferenceInfoSp

DSCC participants can register online:

• DSCC Transition Conference Sign-Up in English
• DSCC Transition Conference Sign-Up in Spanish

The deadline to register for DSCC families is Oct. 11. Please note that space is limited. Registration may close earlier if all spaces are filled.

Need financial help to attend?

DSCC may be able to fund the conference-related expenses for your child and family, caregivers, nurse and/or personal attendant. These expenses include the cost of the hotel and transportation.

For more details or help with registration, please contact DSCC Title V Transition Specialist Claire Cook at (800) 322-3722, ext. 21812, or clairer3@uic.edu.

Eligible Chicago families who have children with disabilities in grades K-12 can apply for a chance to receive a one-time grant through Oct. 30

If you live in Chicago and have at least one child with disabilities enrolled in a public or private k-12 school, you may be eligible for a one-time grant.

The Chicago Mayor’s Office for People with Disabilities and Ada S. McKinley Community Services has launched the Diverse Learners Recovery Fund for students with disabilities.

The program aims to help families who were uniquely challenged by the COVID-19 pandemic.

The fund will provide one-time grants of $500 to up to 8,000 eligible K-12 students through a lottery. Students with autism, physical and developmental delays and other disabilities may be eligible.

Families can use these funds to pay for things such as medical expenses, supplemental education resources or other accommodations their student needs.

Parents and guardians can apply for the Diverse Learners Recovery Fund grant at www.AdaMOPD.com through Oct. 30.

Families applying for the grant must:

• Live in Chicago
• Have a student currently enrolled in a K-12 public or private school
• Have an Individualized Education Program (IEP), a 504 Plan, an Individual Support Plan (ISP), or a doctor’s note verifying a disability diagnosis covered under the Americans with Disabilities Act
• Have a household income level at or below 300 percent of the federal poverty level

Families can receive a maximum one-time payment of $500 for one student and $1,000 for two students.

The program will select recipients using a lottery system. All eligible applications will be included in the drawings on:

• July 1
• Sept. 16
• On or after Nov. 30

Submitting an eligible application does not guarantee you will receive the funds. Eligible applications that are not chosen will be included in the following drawing(s).

See the Diverse Learners Recovery Fund flyer for more information on the fund and eligibility requirements. It also has a QR code to apply.

You can also visit the Diverse Learners Recovery Fund for Students with Disabilities website. The site features tools to help with the application process, including:

• A video
• Eligibility requirements
• Frequently asked questions and a chart to help determine the federal poverty level
• A list of documents necessary to complete your application
• Contact information (phone and online)

If you’re ready to apply, be sure to set up your Diverse Learners Recovery Fund for Students with Disabilities account online.

The deadline to apply for a chance to receive a grant is Oct. 30.

The program receives funding from The Coronavirus State and Local Fiscal Recovery Funds (SLRF) program authorized by the American Rescue Plan Act (ARPA).

Our list of camps and activities all over Illinois can help you find the right fit for your child

Summer and the long break from school are right around the corner!

The good news is there are a variety of programs throughout the state to help keep your children engaged and learning.

We’ve gathered a list of day and overnight camps as well as virtual programs for youth of all ages with disabilities and special healthcare needs.

Does your child want to make new friends? Develop new skills? Meet others with their same condition or become more independent?

Our 2024 summer camp list can help you find the right fit.

There are several ways to search the camp opportunities on our website:

• Use the search box and filter option on our Events page to search for camps and other related keywords and locations
• View our full 2024 summer camp list
• Use our Events Calendar view to see summer camps listed by date

These camps are accessible and inclusive for a variety of ages and needs, including many of our program’s eligible medical conditions.

Please note that program deadlines vary, and some camps fill up quickly.

Know of a good summer camp opportunity to add to our list?

Send us the details at dscc@uic.edu. We’ll continue to update our list of camps and activities, so please check back often!

Programs offering free tax preparation and help filing tax returns are available to eligible individuals and families across Illinois.

People with disabilities, families with low income, taxpayers who speak limited English, and individuals over the age of 50 can receive tax help through in-person and online programs.

Many of the programs will provide help through April 15, the deadline for filing your 2023 tax return. The type of services and programs available will vary by region.

The Internal Revenue Service’s (IRS) Volunteer Income Tax Assistance (VITA) and Tax Counseling for the Elderly (TCE) programs offer free basic tax return preparation to qualified individuals.

VITA sites offer free tax help to individuals, including:

• People who genrally make $64,000 or less
• People with disabilities
• Taxpayers who speak limited English
• People 60 years of age or older

The AARP Foundation Tax-Aide Service focuses on providing in-person and online tax help to people over the age of 50 or who have low-to-moderate income. You do not need to be an AARP member to receive assistance.

The AARP Tax-Aide Site Locator can help you find a site where an IRS-certified volunteer can help you prepare and file your taxes.

Tax-Aide also offers free virtual coaching and software for state and federal returns if you prefer to do your own taxes. You must:

• Have an income between $16,000 and $79,000
• Be an active-duty military member making $79,000 or less

In the Chicagoland area, taxpayers can also access the Ladder Up Tax Assistance Program (TAP). The program provides free basic tax return preparation for:

• Families earning up to $64,000 and individuals earning up to $32,000 per year
• Full-year Illinois residents

You can also contact your local library and government offices for information about free tax preparation services in your area.

This free training program prepares graduate students, self-advocates and family members to be leaders in improving health services for people with disabilities.

Family members, self-advocates and graduate students can apply for a free training program to build your skills and improve the quality of life for people with disabilities.

The University of Illinois Chicago’s (UIC) Leadership and Education in Neurodevelopmental and related Disabilities Program (IL LEND) training program is now accepting applications for the 2024-25 school year.

This yearlong interdisciplinary program will provide participants a deep dive into areas that include:

• Cultural competence
• Emerging issues
• Family-centered care
• Leadership
• Advocacy
• Serving children with autism and other disabilities and their families
• Services and systems change

IL LEND is housed in the Department of Disability and Human Development at UIC. It is part of LEND’s nationwide network providing interdisciplinary training to improve the health and well-being of individuals with disabilities. LEND focuses on providing individuals with the skills necessary to create positive change on all levels, from the individual to systems.

The IL LEND fellowship program brings together trainees from diverse backgrounds. Trainees will participate in classroom learning and a wide variety of hands-on experiences.

Training will focus on serving individuals with disabilities and their families through coordinated, culturally competent and family-centered care and gaining a deeper understanding of public health services and policy systems change.

Training will include:

• An individually tailored mentorship
• Weekly didactic (classroom) sessions
• Research or leadership projects
• Community outreach
• Policy and advocacy training
• Clinical training with a focus on Autism

There is no cost to participate in the fellowship program. Eligible trainees can receive a stipend.

This program is open to graduate students, adults with developmental disabilities, parents and/or siblings of individuals with developmental disabilities, and individuals from diverse backgrounds.

IL LEND trainees from the Chicago metropolitan area meet in person at UIC for their LEND training. Trainees can also join remotely through training sites at the University of Illinois at Urbana-Champaign (UIUC) and Southern Illinois University Carbondale (SIU).

The program gives priority to the following applicants:

• Family members
• Self-advocates
• Graduate students in the represented disciplines, which include nursing, social work, developmental pediatrics, disability studies, and public health.

See the IL LEND graduate program brochure for more details and a complete list of study areas.

Download the IL LEND Fellowship Program application flyer to review or share.

Read more about applying on the IL LEND website. You can also click on the links below to download the:

• Self-advocate application
• Family member application
• Graduate student application

The deadline to apply is March 25.

If you have questions about the fellowship program, contact Kruti Acharya at acharyak@uic.edu or (312) 413-1495.

To learn more about IL LEND, visit www.illinoislend.org.

The annual academic scholarship program is taking applications for the upcoming school year through March 31.

The Illinois Department of Children and Family Services (DCFS) is currently accepting applications for the 2024 DCFS Scholarship Program. The program offers tuition money and academic fee waivers to current and former youth in care attending Illinois colleges after high school.

The program is available to youth:

• Who have an open DCFS case
• Whose cases were closed through adoption or guardianship
• Who aged out of care at 18 or older

Students interested in attending Illinois trade schools, community colleges, or traditional colleges or universities and who are at least 16 years old on March 31 may apply.

The scholarship application is available online.

Scholarship recipients will receive:

• Up to five consecutive years of tuition and academic fee waivers to be used at participating Illinois state community colleges and public universities
• A monthly grant to offset other expenses
• A medical card

The program will select scholarship recipients based on:

• Their scholastic record and aptitude
• Community and extracurricular activities
• Three letters of recommendation from non-relatives
• A personal essay illustrating their purpose for higher education

This DCFS Scholarship Program tip sheet has more details about eligibility requirements, available benefits and what the scholarship does not cover.

DCFS encourages students to submit their applications before the March 31 deadline.

Last year, DCFS awarded scholarships to 259 college-bound youth, the most in the agency’s history.

For questions about the application process or for more information, contact the DCFS Office of Education and Transition Services at (217) 557-2689 or DCFS.Scholarship@illinois.gov.

See the 2024 scholarship press release for more details.

Increased rates for in-home nurses will take effect on Jan. 1, 2024.

We have an exciting update for our participants enrolled in the Home Care Program.

The Centers for Medicare and Medicaid have approved a rate increase for in-home nurses in the new year.

We hope this rate increase can help expand available and high-quality nursing options for our participant families.

This rate increase affects:

• Registered nurse (RN), licensed practical nurse (LPN) and certified nursing assistant (CNA) care
• In-home and facility-based respite care
• Nurse training rates

This increase will take effect Jan. 1, 2024. The rates are as follows:

• RN, $54 per hour
• LPN, $45 per hour
• CNA, $30 per hour

You can see the updated Home Health Fee Schedule on the Illinois Department of Healthcare and Family Services (HFS) website.

The following rate increases are for participants who are in the Home and Community-Based Services Waiver for Those Who Are Medically Fragile, Technology Dependent (MFTD):

• Nurse training for an RN, $54 per hour
• Nurse training for an LPN, $45 per hour
• In-home respite for an RN, $54 per hour
• In-home respite for an LPN, $45 per hour
• In-home respite for a CNA, $30 per hour

HFS will also increase the maximum amount for nurse training service hours from four to 32 hours per nurse per waiver year.

As a reminder, parents and legally responsible adults who have an RN or LPN license can be paid caregivers. (Parents and legally responsible adults who are CNAs cannot be paid caregivers at this time.)

HFS will increase your nursing resource allocation amounts to reflect the increase.

Your Division of Specialized Care for Children (DSCC) care coordination team can help you with any questions about the rate increase or nursing services.

You can also find more helpful information about Home Care Program services on our website’s Home Care Information Hub.

Fun, inclusive events the whole family can enjoy throughout Illinois!

How will you make memories this holiday season?

There are light displays, sensitive Santa opportunities, parades and more going on throughout Illinois.

Our Special Events page includes a roundup of opportunities designed specifically for youth with disabilities and special healthcare needs.

You can also browse this collection of special programs and event guides for opportunities to create some holiday magic and plenty of smiles:

• Autism Speaks and Cherry Hill Programs will provide sensory-friendly Santa experiences in Illinois and the St. Louis area on Dec. 3. These visits are free. Keepsake photo packages will be available for purchase. You must sign up to attend. Visit the Santa Cares website for a complete list of Santa’s stops. Be sure to select “Santa Cares”, “Caring Santa” or “Sensitive Santa” when checking your location. (Note some event dates and times may vary. Please check your location to confirm your date and time.)
• The National Federation of the Blind is offering letters from Santa and winter celebration letters in Braille to children who are blind or have low vision. The program is for children ages 10 and younger. Please complete the letter request form before Dec. 15. If you have any questions, call (410) 659-9314, ext. 2236, or email education@nfb.org.
• The Secret Sleigh Project is coordinating volunteers to provide in-home Santa visits to children who are medically fragile. Use the “Request a Santa Visit” form on the project’s website to request a visit.
• For families in the southern Illinois area, SI Families’ event calendar provides a great list of fun, seasonal activities. Other events in the area include Sensitive Santa at Heartland Regional Medical Center in Marion, the Carbondale Lights Fantastic Parade, and the DuQuoin Holiday Lights Fair.
• For options in central Illinois, check out these lists from ChambanaMoms.com and Springfieldmoms.org. Great places to see lights include Chatham Lights up the Park, Festival of Lights in East Peoria, and Mattoon Lightworks.
• For Chicagoland residents, WTTW Public Television, Chicago Parent Magazine and Kidlist have some great suggestions for things to do and see. Want to catch a show? Chicago Children’s Theatre features accessible weekends for children and their families.
• Don’t forget to check with your local zoos! The St. Louis Zoo and Lincoln Park Zoo will offer a sensory-friendly viewing option. Contact your local zoo to see what’s happening and when.

We will continue to add holiday events and activities, so please check our Special Events page often throughout the season.

If you know of a good sensory-friendly event to share, please email us at dscc@uic.edu.

Please note, the University of Illinois Chicago’s Division of Specialized Care for Children (DSCC) is not involved in organizing or scheduling these holiday events. If you have questions about a specific event, please contact the event sponsor or organizer.