Be a Part of Illinois Miss Amazing

January 16th, 2025

Illinois Miss Amazing logo

Miss Amazing is a national nonprofit program that encourages girls and women with disabilities to consider their goals, challenge themselves and take pride in who they are.

The Illinois Miss Amazing experience brings together a diverse group of participants to build friendships, build self-confidence and practice key self-advocacy skills in a fun environment.

The 2025 Illinois Miss Amazing program is accepting applications for participants through Jan. 25.

The program is also accepting application for volunteers who want to help and share in the experience.

The 2025 Illinois Miss Amazing Amplify event is on Feb. 22 at Center Stage Theater in Naperville.

Participation is open to girls and women ages 5 and older who have:

  • An Individualized Education Program (IEP) or Individualized Program Plan (IPP)
  • A 504 Plan
  • Supplemental Security Income (SSI)
  • A physician’s records proving disability

Amplify event activities will include:

  • Show rehearsal
  • Interviewing
  • Passion presentation
  • Hair, makeup and more

Are you ready to share your passion and shine?

Illinois Miss Amazing will accept applications until Jan. 25 or when all spots fill up.

Volunteers with and without disabilities can also lend a hand on and off the stage. Visit the Illinois Miss Amazing website to apply as a volunteer or learn more about volunteer options.

You can also read about our former participant, Izzy Gonzalez, an Illinois Miss Amazing alum pursuing a career in theater.

Share Your Feedback to Allow CNAs as Paid Family Caregivers

January 2nd, 2025

A father holds and plays with his son with disabilities while enjoying time together outdoors.

Families have until Jan. 30, 2025, to share their input on a state plan amendment allowing CNAs to become paid family caregivers.

Families can now share their feedback to allow more parents/legally responsible adults (LRAs) to become paid caregivers for their children at home.

The public comment period is currently open for a state plan amendment allowing parents/LRAs to become paid caregivers if they are a certified nursing assistant (CNA) and employed by a nursing agency.

Currently, parents/LRAs are paid for providing skilled nursing services to their children if they hold an active registered nurse (RN) or licensed practical nurse (LPN) license. This rule applies to parents/LRAs of all children approved for Home Care Program services, regardless of the child’s age.

Allowing parents and caregivers who are CNAs to become paid caregivers is an important step in strengthening support for families of individuals who need in-home shift nursing.

This change requires an amendment to the Medicaid Home and Community-Based Services Waiver for Those Who Are Medically Fragile, Technology Dependent (MFTD waiver). It also requires the creation of a new state plan amendment. Both approvals must be in place to allow for this change.

The public comment period for the new state plan amendment is now open until Jan. 30. You can read the public comment notice for the state plan amendment on the Illinois Department of Healthcare and Family Services (HFS) website.

Here is how you can review the amendment and share your feedback.

Review the Amendment

Share Your Feedback

HFS is accepting public input on the proposed state plan amendment through Jan. 30, 2025.

You can share your feedback in two ways:

  • Email your input to HFS.BPPC@illinois.gov.
  • Mail your written input to the Illinois Department of Healthcare and Family Services, Attention: Bureau of Program and Policy Coordination, 201 South Grand Ave. E., 2nd floor, Springfield, IL 62763

This public comment process is one of the best ways you can make your voice heard.

Next Steps

In addition to the new state plan amendment, we have worked closely with HFS to incorporate this new rule into the MFTD waiver. This waiver amendment is currently under federal review for approval.

There is currently no set timeline for the state plan amendment and the MFTD waiver amendment to be approved.

Once approved, we will notify our Division of Specialized Care for Children (DSCC) participant families as quickly as possible.

If you have any questions, please contact your DSCC Care Coordinator at (800) 322-3722. 

Sensory-Friendly and Inclusive Holiday Events for All Ages

November 23rd, 2024

A young girl with Down syndrome wearing a winter coat and hat standing outdoors in front of a Christmas tree

Experience the magic of the season with Santa visits, light displays and other fun events happening throughout Illinois.

The holiday season is a time for joy, connection and celebration. For individuals with sensory sensitivities and other disabilities, traditional festivities can sometimes feel overwhelming.

We’ve gathered a list of inclusive and sensory-friendly holiday events happening throughout Illinois to help families celebrate the season.

There are light displays, sensitive Santa opportunities, parades and more going on throughout Illinois.

Our Special Events page includes a roundup of opportunities designed specifically for youth with disabilities and special healthcare needs.

We hope this collection of events will help spark ideas to create your own holiday magic:

Be sure to check our Special Events page often as we add more holiday activities to the list. If you know of a good sensory-friendly event to share, please email us at dscc@uic.edu.

Happy Holidays!

Please note, the University of Illinois Chicago’s Division of Specialized Care for Children (DSCC) is not involved in the organizing or scheduling of these holiday events. If you have questions about a specific event, please contact the event sponsor or organizer.

Empowering Every Voter: Voting Resources for People With Disabilities

October 21st, 2024

Red, white and blue "I Voted" stickers scattered on a white background

Accessible guides and information on your rights and options as a voter with a disability

It’s important that individuals of all abilities have the opportunity to vote.

As the Nov. 5 election approaches, we want to highlight the resources available to help people with disabilities cast their ballots.

  • The Arc has helpful voting resources, including a Disability Voter Guide in plain language in English and Spanish on how voting works, how to register to vote, how to help others vote and more. You can also find sample questions for candidates and a guide about issues that affect the disability community. Visit https://thearc.org/vote/.
  • The American Association of People with Disabilities (AAPD) has an Election Engagement Hub that provides information and tools for disabled voters to engage as meaningfully as possible in their state, local and federal elections. You can find state-by-state voting guides, plain language definitions of voting words and more. AAPD also has the REV UP Voting Campaign, which aims to build the power of the disability vote through a national network of coalitions and organizations.
  • The Autistic Self Advocacy Network has “Your Vote Counts: A Self-Advocate’s Guide to Voting in the U.S.” that includes how to prepare to vote and how to get accommodations when voting. It also explains the difference between a primary election and a general election and how the Electoral College works.
  • Easterseals has a Voting Checklist for People with Disabilities to help people with disabilities make sure their voice is heard at the polls. The checklist explains how to learn about elections in your area, your rights as a voter with a disability,  what to do if your rights are being violated and more. You can also download a voting resource card to take with you to the polls.
  • Disability Vote IL provides voting resources and information for the disability community. The site offers updated nonpartisan videos, webinars and information on elections, how to register to vote, and promoting accessibility of voting technology and polling places. The website also includes information about transportation to the polls and the Be My Eyes app that helps people who are blind or have vision impairments with voting.
  • The National Association of the Deaf has a voter information hotline to help individuals who are deaf or hard of hearing with questions about voting.
  • The National Federation of the Blind has guides for voters who are blind and information about accessibility and the Help America Vote Act.

You can also find these tools and guides in our online Resource Directory.

Everyone’s voice matters, and there are ways to make sure your vote counts!

New Round of Free At-Home COVID Tests Now Available

September 27th, 2024

at-home rapid antigen COVID-19 test sitting on a tabletop

A federal program that provides free at-home COVID-19 tests, including tests with enhanced accessibility, has resumed.

Another round of free at-home COVID-19 tests is now available.

Starting in late September 2024, every U.S. household can order four free COVID-19 rapid tests.

Visit https://special.usps.com/testkits to place an order. (The website is available in Spanish and Chinese.) Here’s what you need to know:

  • Each order includes four individual rapid antigen COVID-19 tests.
  • Orders will ship free starting Sept. 30, 2024.

If you need help placing an order, you can call (800) 232-0233 or (888) 720-7489 (TTY).

More accessible tests are also available for individuals who are blind or have low vision as well as people who have low manual dexterity. These tests are available while supplies last.

You can visit https://special.usps.com/testkits/accessible to order the accessible tests. Here is what you need to know:

  • Each order includes one carton of four rapid antigen COVID-19 tests.
  • Supplies are limited. Please do not order the accessible tests if you have options for using the standard tests.
  • Orders will ship free starting the week of Sept. 30, 2024.

Visit the Administration for Community Living (ACL) Accessible Tests page fore more details about the features that make these tests more accessible.

Individuals with disabilities can also contact the Disability Information and Access Line (DIAL) for help with available testing options, including ordering free at-home test kits.

Contact DIAL Monday through Friday from 7 a.m. to 8 p.m. through:

For more information about COVID-19 test options, visit www.covidtests.gov/.

To learn more about how to access low- or no-cost COVID-19 tests from the federal government, you can contact any of these programs:

Still have old COVID-19 tests at home? You can check the FDA’s website to see if your COVID-19 tests have extended expiration dates.

Listening Sessions to Gather Input on HealthChoice Illinois

September 4th, 2024

HealthChoice Illinois logo

HFS invites families to participate in listening sessions to share feedback on HealthChoice Illinois managed care

The Illinois Department of Healthcare and Family Services (HFS) wants to hear about your experience with HealthChoice Illinois managed care.

The agency is holding in-person and virtual listening sessions to gather feedback from HealthChoice Illinois customers, providers, advocates and other stakeholders.

You can share your experiences, suggest improvements and also provide written feedback through an online form.

Most Medicaid customers are part of HealthChoice Illinois. You’re a HealthChoice Illinois customer if you selected a managed care organization after you joined Medicaid.

HFS wants to know:

  • What works well for you with HealthChoice Illinois?
  • Where do you see opportunities to improve?
  • How else can HFS and HealthChoice Illinois meet your needs?

There are several ways you can share your input:

In-Person Listening Sessions

  • Chicago
  • Springfield
    • Date and time: Tuesday, Sept. 17, from 1 to 4 p.m.
    • Location: John Block Building Auditorium, Illinois Department of Agriculture, 801 E. Sangamon Ave., on the Illinois State Fairgrounds at Gate 11
    • Link to register for Springfield session

Virtual Listening Sessions

HFS will also take comments during its virtual Medicaid Advisory Committee (MAC) and Subcommittee meetings on:

  • Sept. 24
  • Oct. 3
  • Nov. 1

Visit the HFS website for details and registration information.

Written Feedback

If you’re unable to attend a listening session, the HFS website also has an online form to provide written feedback.

HFS will accept feedback through Nov. 15, 2024.

Why Your Feedback is Important

HFS is preparing to procure new HealthChoice Illinois managed care contracts. Your input will help HFS better serve enrollees by improving access and quality within the Illinois Medicaid program.

If you are a Division of Specialized Care for Children (DSCC) participant, the listening sessions are also a good opportunity to share your families’ experience working with DSCC.

We partner with HealthChoice Illinois managed care organizations through contracts to provide care coordination services for their members.

More details about the procurement process are on the HFS website.

Share Your Feedback on Key MFTD Waiver Updates to Strengthen Support for Families

September 3rd, 2024

logo for the Illinois Department of Healthcare and Family Services

Families have through Sept. 28, 2024, to share input on waiver amendments allowing CNAs to become paid family caregivers and nursing rate increases.

Families have an opportunity to share feedback on several significant updates to the Medicaid Home and Community-Based Services Waiver for Those Who Are Medically Fragile, Technology Dependent (MFTD waiver).

The Illinois Department of Healthcare and Family Services (HFS) is the Medicaid agency responsible for the MFTD waiver. Many families in the Home Care Program have children who receive services through this waiver.

HFS is currently seeking approval from the federal Centers for Medicare and Medicaid Services (CMS) for waiver amendments that will:

  • Allow parents who are certified nursing assistants (CNAs) to be paid family caregivers
  • Increase rates for in-home nurses and CNA services

Read below for more details about these amendments and how to share your input.

CNAs as Paid Family Caregivers

Plans are underway to allow parents/legally responsible adults (LRAs) to become paid caregivers if they are a CNA and employed through a nursing agency.

Currently, parents/LRAs are paid for providing skilled nursing services to their children if they hold an active registered nurse (RN) or licensed practical nurse (LPN) license. This rule applies to parents/LRAs of all children approved for Home Care services, regardless of the child’s age. (Read more about our efforts to make paid licensed family caregivers a permanent benefit.)

Allowing parents and caregivers who are CNAs to become paid caregivers is an important step in strengthening our support for families of individuals who need in-home shift nursing.

This update would give more parents/LRAs the opportunity to earn payment for the caregiving they provide their children at home.

This change requires an amendment to the MFTD waiver as well as the creation of a new state plan amendment.

Nursing Rate Increase

HFS is also proposing a 7 percent rate increase for in-home nurses and CNA services to take effect on Jan. 1, 2025.

This rate increase would affect:

  • RN, LPN and CNA care
  • In-home and facility-based respite care
  • Nurse training rates

The proposed rates are as follows:

  • RN, $57.78 per hour
  • LPN, $48.15 per hour
  • CNA, $32.10 per hour

We hope this rate increase can help make more high-quality nursing options available for our participant families.

Transitional Care Services provided outside the home (not an MFTD waiver service) is expected to have a rate increase from $950 to $1,300 a day. This increase would also take effect on Jan. 1, 2025.

Other Key Updates in the Amendment Include:

  • Adds adaptive equipment and assistive technology as new services.
  • Makes pest control a post-approval process. This change means families will not need to receive prior approval for pest control services.
  • Makes the Division of Specialized Care for Children (DSCC) the entity responsible for the prior approval for home accessibility modifications, vehicle modifications, medical equipment operating expenses, adaptive equipment, placement maintenance counseling and assistive technology.
  • Removes the requirement of two bids if the cost exceeds $2,000 for waiver services. This change is necessary to help increase access to services.

Share Your Feedback

The public comment period for these proposed waiver amendments is now open.

To review the full list of proposed waiver updates, you can:

  • Review a hard copy at HFS’ offices at:
    • 201 South Grand Ave. E.,
      Springfield, IL 62763
    • 401 S. Clinton
      Chicago, IL 60607

The deadline to provide feedback is Sept 28, 2024.

You can share your feedback in two ways:

  • Via email to HFS.HCBSWaiver@illinois.gov
  • Via mail to the Illinois Department of Healthcare and Family Services, Attention: Waiver Operations Management, 201 South Grand Ave. E., 2FL, Springfield, IL 62763

This public comment process is one of the best ways you can have your voice heard.

HFS will send your comments to the federal CMS as part of the waiver approval process.

If you have questions, please contact HFS’s Waiver Operations Management Unit at (217) 524-4148 or (844) 528-8444.

Gain Resources and Strategies to Help Your Child Prepare for Adulthood

August 28th, 2024

DSCC participant Vera Lindquist gives her grandmother, Cheryl, a high five during the 2023 Illinois Statewide Transition Conference

The 2024 Illinois Statewide Transition Conference is happening on Nov. 7-8 in Springfield

Luz Diaz said she struggled emotionally before attending the Illinois Statewide Transition Conference.

She felt isolated and unsure of the future for her daughter, Ariana, now 20. Ariana has cerebral palsy and quadriplegia along with hearing loss and developmental delays.

The knowledge she gained and the connections she made with other families during the 2023 conference immediately lifted her spirits. Luz now feels more hopeful for what lies ahead.

The Diaz family – Edgar (left), Ariana (center) and Luz were happy to be able to attend the transition conference in 2023.

“Before I came here, I was depressed. I felt so lonely. Now that I’ve seen everything here, my thoughts have changed. I don’t feel lonely. I feel like I belong, and I feel like this is my family,” she said. “Now I feel like I’m not alone.”

The Diaz family were among 370 people who attended the 2023 transition conference in person in Bloomington-Normal.

The conference, titled “Stepping Stones of Transition,” returns for 2024 at the Crowne Plaza in Springfield, Ill., on Nov. 7-8. This year’s event is in person only.

The conference highlights opportunities and resources available for youth and young adults with disabilities and complex medical needs as they transition to adulthood. It’s a “one-stop shop” for gaining valuable resources, making connections and learning alongside individuals who are on the same journey.

The “Stepping Stones of Transition” conference is for youth, parents, caregivers, vocational specialists, healthcare providers, educators and others who work with youth and young adults with disabilities.

Youth and young adults can visit vendors, attend workshops and learn how to plan for their future, including:

  • What happens after I leave high school?
  • How do I sort through the maze of resources?
  • What steps can I take now to prepare for upcoming changes?
  • What skills are important for me to develop?

Highlights for 2024 will include learning about supported decision-making from keynote speaker and self-advocate Derek Heard along with Allison Cohen Hall from the Center on Youth Voice, Youth Choice.
You can also attend sessions on:

  • Self-determination
  • Advocacy
  • Employment
  • Future planning
  • Post-secondary education
  • Health care

The Division of Specialized Care for Children (DSCC) helps sponsor the transition conference and serves on its steering committee. We also can pay for the conference-related expenses for our participant families to attend.

DSCC paid the conference-related expenses for 25 DSCC participant families to attend the 2023 conference that took place in Bloomington-Normal.

“An Amazing Opportunity to Learn and Connect”

Cheryl Calcese, left, smiles at her granddaughter, Vera Lynn Lindquist, in the exhibitor hall at the 2023 conference.

DSCC participant Vera Lynn Lindquist, 18, attended the transition conference both in 2022 and 2023. She has autism, attention-deficit hyperactivity disorder, anxiety disorder from childhood, tinnitus and hearing loss.

Vera enjoyed exploring the transition conference’s booths and sharing about the goals she has worked on.

“I know a lot more about autism awareness and speaking up and speaking out…” Vera said. “I’ve self-advocated at school. I reached out to my teacher on my laptop, I emailed him. I was behind on a lesson and let him know. He came and helped (me). It made all my teachers very happy.”

Vera attended the conference both years with her grandmother and legal guardian, Cheryl Calcese.

“We’ve used many of the independence and decision-making strategies we learned about,” Cheryl said. “Vera got a debit card. She has a money limit on it when she goes out for pizza and other group social events. She has an app on her phone to figure out the tax and tip. She adjusts everything according to her budget. She’s doing well with that and hasn’t gone over her budget once!”

The transition conference also gave Vera an opportunity to build her self-esteem and self-advocacy skills.

“She feels very comfortable at this conference, and it shows. She’s visiting with vendors and participating in sessions. Here her independence is shining. It’s very cool,” Cheryl said.

Cheryl also gained more resources and knowledge for herself.

“It’s always an amazing opportunity to learn and connect,” she said. “Thanks to the conference, I understand more about legal guardianship for adults and where to go for the paperwork for free or low-cost.”

Cheryl also learned more about the Americans with Disabilities Act (ADA).

“Vera and other students with disabilities had to miss their school homecoming,” she said. “In one of the sessions, I learned that the ADA covers social events. I connected with an organization that can help me make sure these students won’t miss their prom.”

Ariana’s mom, Luz, said she is grateful to everyone who organizes the conference so she can help give Ariana the best quality of life as she grows into adulthood.

Ariana’s father, Edgar, said he felt like the world was closing in on him before he attended the conference. By the end of last year’s event, he said he felt motivated after learning how conference speakers with disabilities advocated for themselves to have greater independence and a better quality of life.

Register and See the 2024 Schedule

The general public and professionals can visit the Statewide Transition Conference website to register and see more details.

For DSCC families, the conference schedule and more details are available:

DSCC participants can register online:

The deadline to register is Oct. 18. Please note that space is limited. Registration may close earlier if all spaces are filled.

Need financial help to attend?

If you are a DSCC participant family, we may be able to fund the conference-related expenses for your child and family, caregivers, nurse and/or personal attendant. These expenses include the cost of the hotel and transportation.

The Illinois Statewide Transition Conference Steering Committee has also set up a scholarship program to help youth with disabilities and their families attend the conference. The scholarship is open to:

  • Individuals with disabilities
  • Immediate family members of a person with a disability
  • Guardians for a person with a disability

The amount of scholarship money available depends on each person’s needs.

Please fill out this scholarship form to apply. (The scholarship form is also available in Spanish.)

The deadline to apply for the conference scholarship is Oct. 18.

For more details or help with registration, please contact DSCC Title V Transition Specialist Claire Cook at (800) 322-3722, ext. 21812, or clairer3@uic.edu.

New Diverse Learners Recovery Fund for Chicago Students with Disabilities

June 5th, 2024

A girl with dark skin sits in a wheelchair and smiles as she plays with blocks inside an inclusive classroom for children with physical and intellectual disabilities.

Eligible Chicago families who have children with disabilities in grades K-12 can apply for a chance to receive a one-time grant through Oct. 30

If you live in Chicago and have at least one child with disabilities enrolled in a public or private k-12 school, you may be eligible for a one-time grant.

The Chicago Mayor’s Office for People with Disabilities and Ada S. McKinley Community Services has launched the Diverse Learners Recovery Fund for students with disabilities.

The program aims to help families who were uniquely challenged by the COVID-19 pandemic.

The fund will provide one-time grants of $500 to up to 8,000 eligible K-12 students through a lottery. Students with autism, physical and developmental delays and other disabilities may be eligible.

Families can use these funds to pay for things such as medical expenses, supplemental education resources or other accommodations their student needs.

Parents and guardians can apply for the Diverse Learners Recovery Fund grant at www.AdaMOPD.com through Oct. 30.

Families applying for the grant must:

  • Live in Chicago
  • Have a student currently enrolled in a K-12 public or private school
  • Have an Individualized Education Program (IEP), a 504 Plan, an Individual Support Plan (ISP), or a doctor’s note verifying a disability diagnosis covered under the Americans with Disabilities Act
  • Have a household income level at or below 300 percent of the federal poverty level

Families can receive a maximum one-time payment of $500 for one student and $1,000 for two students.

The program will select recipients using a lottery system. All eligible applications will be included in the drawings on:

  • July 1
  • Sept. 16
  • On or after Nov. 30

Submitting an eligible application does not guarantee you will receive the funds. Eligible applications that are not chosen will be included in the following drawing(s).

See the Diverse Learners Recovery Fund flyer for more information on the fund and eligibility requirements. It also has a QR code to apply.

You can also visit the Diverse Learners Recovery Fund for Students with Disabilities website. The site features tools to help with the application process, including:

  • A video
  • Eligibility requirements
  • Frequently asked questions and a chart to help determine the federal poverty level
  • A list of documents necessary to complete your application
  • Contact information (phone and online)

If you’re ready to apply, be sure to set up your Diverse Learners Recovery Fund for Students with Disabilities account online.

The deadline to apply for a chance to receive a grant is Oct. 30.

The program receives funding from The Coronavirus State and Local Fiscal Recovery Funds (SLRF) program authorized by the American Rescue Plan Act (ARPA).

Inclusive Summer Camp Programs for All Ages

March 21st, 2024

The text, "Summer Camp," written with chalk on chalkboard next to chalk sticks of different bright colors

Our list of camps and activities all over Illinois can help you find the right fit for your child

Summer and the long break from school are right around the corner!

The good news is there are a variety of programs throughout the state to help keep your children engaged and learning.

We’ve gathered a list of day and overnight camps as well as virtual programs for youth of all ages with disabilities and special healthcare needs.

Does your child want to make new friends? Develop new skills? Meet others with their same condition or become more independent?

Our 2024 summer camp list can help you find the right fit.

There are several ways to search the camp opportunities on our website:

These camps are accessible and inclusive for a variety of ages and needs, including many of our program’s eligible medical conditions.

Please note that program deadlines vary, and some camps fill up quickly.

Know of a good summer camp opportunity to add to our list?

Send us the details at dscc@uic.edu. We’ll continue to update our list of camps and activities, so please check back often!