St. Clair Resources
DSCC’s Health Care Transition Tip Sheet
Health care transition means moving from pediatric (child) to adult health care. A good transition takes planning. This tip sheet from the Division of Specialized Care for Children (DSCC) can help you and your family plan for transition. It includes information on who should help with health care transition planning, where to find resources and steps you can take to get the services you need so you can lead the kind of life you want to have.
National Fatherhood Initiative
The National Fatherhood Initiative (NFI) is a nonprofit organization that focuses on programs and support to increase father involvement in children’s lives. NFI provides webinars, resources to help strengthen families and lead to happier, healthier, and safer communities.that aims to end father absence. They provide a variety of free resources for dads and organizations.
For questions, please call (301) 948-0599 or email info@fatherhood.org.
Developmental Disability Services
The Illinois Department of Human Services has information about how to apply for developmental disability services.
For questions, please call the Developmental Disabilities Helpline at (888) 843-6154 or (866) 376-8446 for TTY services.
Illinois Council on Developmental Disabilities
The Illinois Council on Developmental Disabilities (CDD) helps lead change in Illinois so all people with developmental disabilities exercise their right to equal opportunity and freedom.
ICDD provides information, investments and initiatives to ensure that people with developmental disabilities and their families have a part in the design of and access to culturally competent services, supports and other assistance and opportunities that promote independence, productivity and integration and inclusion into the community.
The HealthWell Foundation aims to reduce financial barriers to care for underinsured patients with chronic or life-altering diseases. It provides financial assistance to eligible individuals to cover copays, healthcare premiums, deductibles and out-of-pocket expenses.
For any questions, please call (800) 675-8416, between 8 a.m. and 4 p.m. (CST), or email grants@healthwellfoundation.org.
All grant-related documents should be mailed to the HealthWell Contact Center, P.O. Box 489, Buckeystown, MD 21717
Central Illinois Public Transit
Central Illinois Public Transit (CIPT) provides reliable and timely transportation that is wheelchair-accessible and compliant with the Americans with Disabilities Act. The program serves Christian, Clay, Effingham, Fayette, Montgomery, Moultrie and Shelby counties.
For rides or more information, call (855) 755-CIPT (2478) or TTY 7-1-1.
The National Center on Health, Physical Activity, and Disability (NCHPAD) Wheelchair Maintenance Guide offers basic tips for maintaining your wheelchair and keeping it in good working order.
Contact NCHPAD for more information at nchpad@uab.edu or (866) 866-8896.
The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to supporting families and ensuring access to quality respite services for the residents of Illinois. The IRC assists caregivers by connecting them to resources in their area, providing training on respite topics and having funding available for emergency respite. The IRC helps caregivers of individuals across the lifespan with any disability.
The Emergency Respite Care Program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source. Emergency respite care may be for an unplanned or planned event for reasons including:
- Caregiver illness (physical, mental or emotional)
- Caregiver hospitalization
- Work-related situation
- Reduction of stress level
The website gives examples of qualifying circumstances and information on how to apply. For more details see the:
For more information, contact:
- The Illinois Respite Coalition at (866) ILL-RESP (455-7377), ext. 101, or email ilrespitecoalition@gmail.com.
- Spanish-speaking callers may call (866) 866-ILL-RESP (455-7377), ext. 103, or email ilrespitecoalition@gmail.com.
Supporting Illinois Brother and Sisters (S.I.B.S.)
Supporting Illinois Brothers and Sisters (S.I.B.S.) offers support to siblings of individuals with disabilities in Illinois by connecting them with information, networking opportunities, and resources to enhance the quality of life for their entire family.
For questions, please email info@sibsnetwork.org.
Tracheostomy.com (Aaron’s Tracheostomy Page) is an independent, family-run website that provides information about home care for children with tracheostomies (trachs) as well as parent-to-parent networking and support.

