St. Clair Resources
Rare Sisters Batten Foundation
The Rare Sisters Batten Foundation (RSBF) supports the development of medical research for treatments and cures for CLN3 Batten Disease and also provides monetary assistance to families with children diagnosed with Batten Disease, a neurodegenerative disorder.
Families with children diagnosed with Batten Disease may apply with RSBF for financial help to cover a wide variety of needs. Funds are awarded on a case-by-case basis and contingent on the availability of funds.
COVID-19 testing can help you know if you have COVID-19 so you can decide what to do next, like getting treatment to reduce your risk of severe illness and lowering your chances of spreading the virus to others. Visit the Testing for COVID-19 page on the Centers for Disease Control and Prevention website for information on the types of COVID tests, how to get a test, and how to interpret your results.
Please note we share this resource for information purposes only. The Division of Specialized Care for Children (DSCC) does not manage or coordinate COVID-19 testing programs. Please use the contact information on the website provided.
Smart911 allows individuals to provide critical details about themselves and family members so that in emergencies 911 call takers have the information they need to quickly assess and address special concerns or safety needs.
Smart911 is a free, private and secure nationwide service that automatically delivers your safety profile to local law enforcement, medical and fire responders and public safety agencies that have installed the Smart911 technology. To determine if Smart911 is available in your city or town, visit the SMART911 website, scroll to the bottom and click “Find Services in Your Area.”
The Illinois Department of Public Health Vax Verify portal (also known as the Illinois Resident Immunization portal) provides access to your official immunization records.
You must be 18 years old or older to create a Vax Verify account or have legal guardianship of a minor to add them to your account.
DSCC’s Vehicle Modification Tip Sheet for MFTD Waiver Families
Vehicle modifications are an available service through the Home and Community-Based Services Waiver for Medically Fragile Technology Dependent Children (commonly called the MFTD waiver). This tip sheet from the Division of Specialized Care for Children (DSCC) includes information on the type of vehicle modifications that may be covered and the steps involved in the process.
Home Modification Tip Sheet for MFTD Waiver Families
The Home and Community-Based Services Waiver for Medically Fragile Technology Dependent Children (commonly called the MFTD waiver) can pay for certain home modifications. The modifications must be for the individual’s primary residence and necessary to meet their medical needs. Home modifications may include:
- Permanent structural changes
- Equipment that is installed or attached to the home
- Solutions that are not permanent
This tip sheet explains what type of home modifications may be covered and the process for moving forward.
Illinois Seizure Smart School Act Resources
Effective July 1, 2020, the Seizure Smart School Act requires all Illinois school personnel to be trained in seizure first aid. It also requires the development of a Seizure Action Plan for students with epilepsy on how to best care for students with the disorder. A student’s parents or guardians will share their healthcare provider’s instructions on managing the student’s epilepsy and include a copy of any prescriptions and how and when to administer those medicines.
The Epilepsy Foundation of Greater Chicago provides resources and frequently asked questions about the law and what it means for families and schools.
The Mighty’s Digital Toolkit for Caregivers
The Mighty provides a digital toolkit to help caregivers learn more about the ins and outs of caregiving and discover helpful resources to utilize along their caregiving journey.
The Mighty’s Digital Toolkit for Caregivers includes:
- A caregiving binder, complete with worksheets to help you better organize important information
- A respite care questionnaire to help you find the perfect respite worker for your specific needs
- A self-care mini-guide to help you destress and prioritize your mental health
Everything included in the toolkit is downloadable, printable and shareable.
Early CHOICES is an inclusion initiative of the Illinois State Board of Education. It promotes increasing high-quality inclusive early care and education for each and every child from birth to age 5. Its goal is to increase the number of children with disabilities receiving specialized services in regular early care and education settings.
Early CHOICES provides planning tools for families to help them think of inclusive options and prepare for the transition from Early Intervention into early childhood services.
Illinois Unidos – Advocating for Latinx Families
Illinois Unidos provides a collection of resources developed for and focusing on Latinx families to address:
- Frequently asked questions regarding vaccinations and mitigation measures
- Accessing health, economic and mental health community services
- The devastating economic impact of COVID-19
Illinois Unidos is a consortium of more than 150 Latino elected and appointed officials, health professionals and representatives of community-based organizations.