St. Clair Resources
For parents and teachers who wish to learn more about autism to better support children and families in the autism community, the Illinois Early Learning Project (IEL) provides “What is Autism?”
This question-and-answer style document includes information about the prevalence and defining characteristics of autism, community- and school-based supports and links to additional resources.
Future Financial Planning for People With Disabilities Video Series – ABLE and Special Needs Trusts
The Arc’s Center for Future Planning provides a series of videos to help you save money and protect public benefits. Video topics include ABLE accounts and special needs trusts. Each video overs:
- The benefits of each resource
- How they work
- What they can pay for
- How to get started
The Pediatric Palliative Care Coalition (PPCC) and Courageous Parents Network (CPN) provide resources to help parents, caregivers and medical professionals focus on giving special attention to siblings who are living and sharing their lives with a brother or sister with medical complexities.
Their Sibling Support Toolkit provides videos, activities, podcasts, a guided pathway and other resources to support parents and siblings as they navigate the ups, downs, setbacks and joys that make up their day-to-day lives.
Developmental Disabilities Transition Resources for Southern Illinois
Southern Illinois Case Coordination Services (SICCS) provides this Developmental Disability Transition Resources guide to provide an overview of the person-first services and supports for individuals with developmental disabilities and their families.
SICCS serves Alexander, Bond, Clay, Clinton, Crawford, Edwards, Fayette, Franklin, Gallatin, Hamilton, Hardin, Jackson, Jasper, Jefferson, Johnson, Lawrence, Marion, Massac, Monroe, Perry, Pope, Pulaski, Randolph, Richland, Saline, Union, Wabash, Washington, Wayne, White and Williamson counties.
Available services include PUNS (Prioritization for Urgency of Need for Services). PUNS is the name for the list of the people in Illinois with developmental disabilities who want or need services but do not yet have funding.
From PUNS Enrollment to DD Waiver Services Flowchart
The Arc of Illinois’ Ligas Family Advocate Program (LFAP) provides information and outreach to adults with intellectual and developmental disabilities and their families who are selected from the PUNS (Prioritization of Urgency of Need for Services) or notified in advance of a future PUNS selection.
LFAP’s resources include a “Finding Your Way” flowchart roadmap that outlines the steps from PUNS enrollment to developmental disability waiver services.
“Born for Business” Disability Entrepreneurship Toolkit
Entrepreneurship and self-employment can be valuable and viable options for people with disabilities looking to enter the job market on their own terms. RespectAbility’s Born for Business toolkit provides an inventory of existing materials, advice and guides for job seekers with disabilities who are ready to become self-employed, launch a new enterprise or develop their entrepreneurial skills.
This toolkit was developed along with the Born For Business docuseries that focuses on the talents, innovations and impact of entrepreneurs with varying disabilities.
Illinois Network of Child Care Resource and Referral Agencies
The Illinois Network of Child Care Resource and Referral Agencies (INCCRRA) is a statewide organization that partners with the state’s 16 local Child Care Resources and Referral (CCR&R) agencies. It is a recognized leader, catalyst and resource for making high-quality, affordable early care and education and school-age care options available for children and families in Illinois.
CCR&R’s connect and coordinate programs and services for young children and their families. CCR&R’s manage the application and information for families to receive child care assistance, allowing them to work and/or go to school while their children have access to quality early care and education.
Visit www.inccrra.org/about/sdasearch to find your local CCR&R.
Illinois Telecommunications Access Corporation
The Illinois Telecommunications Access Corporation (ITAC) is a not-for-profit that issues equipment to provide telephone access to Illinois residents who are hard of hearing, late deafened, deaf-blind or speech-disabled.
ITAC provides both the Illinois Relay phone service and an equipment program, which are both required by state law. Its equipment is designed specifically for people who are having difficulty hearing on the standard phone system. Information is also available in Spanish.
Federal Guidance on Developing and Implementing IEPs During the Pandemic
This guidance from the U.S. Department of Education addresses many considerations for Individualized Education Program (IEP) teams and offers input on how IEPs should be modified to address changes brought on by COVID-19.
The document “Return to School Roadmap: Development and Implementation of Individualized Education Programs in the Least Restrictive Environment Under the Individuals with Disabilities Education Act” covers a wide range of topics using a question-and-answer format.
Topics include meeting timelines, ensuring implementation of initial evaluation and reevaluation procedures, determining eligibility for special education and related services, and providing the full array of special education and related services that children with disabilities need in order to receive a free appropriate public education (FAPE).
The Arc@School Special Education Initiative
Through The Arc@School initiative, The Arc provides training and resources to help families and others navigate the special education system.
Arc@School offers information on the supports, services and rights for students with disabilities. It also includes information on advocating for students with disabilities during the COVID-19 pandemic as well as a nationwide directory of special education advocacy resources.
Arc@School materials are also available in Spanish.