Resource Directory /

St. Clair Resources

  • Rebuilding Together

    Rebuilding Together is a nationwide nonprofit providing critical, high-impact home repair and renovation services at no cost to eligible homeowners in need. Organization affiliates focus on community projects aimed at improving safety, quality of life and independence for all people. Illinois affiliates are located in Aurora, Henry County, Metro Chicago, North Suburban Chicago, Peoria, Southwest Illinois, and Stephenson County.

    Use the Rebuilding Together locator to get up-to-date information for each location. Rebuilding Together services may include:

    • Ramps and home repair services targeting significant safety and health hazards
    • Minor repairs and modifications such as installing grab bars and securing or installing interior and exterior railings
    • Community projects based on input from residents and other stakeholders

  • Understood

    Understood is a nonprofit dedicated to helping people with learning and thinking differences thrive in school, at work and throughout life. Understood raises awareness about dyslexia, attention-deficit/hyperactivity disorder (ADHD) and neurodiversity by sharing personal stories and providing resources for understanding behaviors, supporting learning, building everyday skills and exploring careers.

    Understood’s resources include:

    • Fact sheets on myths, ADHD, bullying and more
    • Toolkits
    • Communication strategies for all stages of life
    • Podcasts featuring personal stories and perspectives

  • “All About Me” Page Templates

    It’s important for everyone involved in your child’s care to understand their needs and what makes them unique. The Division of Specialized Care for Children (DSCC) has created “All About Me” Pages that you can personalize to help anyone on your care team and beyond get to know your child. These free templates highlight what works best for your child, what they like and dislike and who they are as a person.

    There are a variety of designs to choose from to help you capture your child’s personality. You can share them with doctors, nurses, schools, other caregivers and more. Templates are available in both English and Spanish.

  • Center for Transition to Adult Health Care for Youth with Disabilities

    The Center for Transition to Adult Health Care for Youth with Disabilities offers a wide range of tools to empower youth and young adults with intellectual and developmental disabilities (ID/DD) ages 12 to 26 to direct their transition from pediatric to adult care. This national site is a one-stop shop where young people and their families, clinicians, and direct care providers can find videos and other resources for understanding and navigating the transition to adult health care.

    Site resources include:

  • Stepping Stones Bereavement Camp for Children in Eureka, Missouri

    BJC Hospice hosts Stepping Stones Bereavement Camp each year for children and teens who have experienced the death of a family member or close friend. The weekend-long, overnight camp provides a safe place for campers ages 6 to 15 to explore their grief and emotions.

    The camp usually takes place in August and is free for all children who have lost loved ones, not just families served by BJC Hospice (service areas include Macoupin, Montgomery, Jersey, Madison, Bond, Fayette, Clinton, St. Clair, Monroe, Calhoun, Marion, Greene and portions of Pike and Perry counties).

  • Different Dynamics in St. Louis

    Different Dynamics is a non-profit organization providing music programming for people of all ages, neurotypes and abilities who have a love of music.

    Different Dynamics activities and programming include:

    • The Music Exploratorium music studio space
    • The Music Workshop featuring music and movement activities for the entire family
    • Sensory-friendly performances

  • Challenged Athletes Foundation

    The Challenged Athletes Foundation (CAF) believes that involvement in sports at any level increases self-esteem, encourages independence and enhances quality of life. CAF provides several grant programs, events and support to people with physical challenges who are pursuing active lifestyles through physical fitness and competitive athletics. CAF resources include:

    • Grants to help pay for sports prostheses, adaptive sports equipment, coaching and competition expenses
    • Adaptive sports videos
    • A list of adaptive sports organizations and collegiate programs
    • Information about adaptive sports equipment

  • How to Fill Out DSCC Forms in Spanish

    There are a number of forms that our Division of Specialized Care for Children (DSCC) participants must fill out. We’ve created three instructional videos to help our Spanish-speaking families fill out some of our most commonly used forms. These videos provide step-by-step instructions:

  • Seizure Action Plan Examples and Resources

    A seizure is a medical emergency. A Seizure Action Plan (SAP) contains tailored guidelines on how to respond during a seizure, based on the patient’s medical history. It includes health and medical information specific to the patient and helps others recognize seizures and the appropriate steps to take to keep them safe from injury or damage caused by prolonged seizures.

    The Seizure Action Plan Coalition has several Seizure Action Plan examples and resources in English and Spanish to help you create your own plan. Resources are also available in other languages.

    Epilepsy Alliance America manages the Seizure Action Plan Coalition.