Rockford Resources
RAMP helps people with disabilities learn how to use public transportation in Rockford and Belvidere through a cooperative effort with the Rockford Mass Transit District.
Illinois Council on Developmental Disabilities
The Illinois Council on Developmental Disabilities (CDD) helps lead change in Illinois so all people with developmental disabilities exercise their right to equal opportunity and freedom.
ICDD provides information, investments and initiatives to ensure that people with developmental disabilities and their families have a part in the design of and access to culturally competent services, supports and other assistance and opportunities that promote independence, productivity and integration and inclusion into the community.
The HealthWell Foundation aims to reduce financial barriers to care for underinsured patients with chronic or life-altering diseases. It provides financial assistance to eligible individuals to cover copays, health care premiums, deductibles and out-of-pocket expenses.
The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to supporting families and ensuring access to quality respite services for the residents of Illinois. The IRC assists caregivers by connecting them to resources in their area, providing training on respite topics and having funding available for emergency respite. The IRC helps caregivers of individuals across the lifespan with any disability.
The Emergency Respite Care Program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source. Emergency respite care may be for an unplanned or planned event for reasons including:
- Caregiver illness (physical, mental or emotional)
- Caregiver hospitalization
- Work-related situation
- Reduction of stress level
The website gives examples of qualifying circumstances and information on how to apply. See the emergency care flyer for more details. (The flyer is also available in Spanish.)
For more information, contact:
- The Illinois Respite Coalition at (866) ILL-RESP (455-7377), ext. 101, or email irc.programassistant@gmail.com.
- Spanish-speaking callers may call (866) 866-ILL-RESP (455-7377), ext. 103, or email cnava@illinoisrespitecoalition.org
Tracheostomy.com (Aaron’s Tracheostomy Page) is an independent, family-run website that provides information about home care for children with tracheostomies (trachs) as well as parent-to-parent networking and support.
Illinois STAR NET Regions I & III
Illinois STAR NET provides a variety of opportunities for personal and professional growth for those who touch the lives of young children, ages birth through eight, with an emphasis on children with special needs. STAR NET supports family-centered, researched and effective practices in early childhood education and care.
STAR NET Regions I & III
Western Illinois University, Horrabin Hall 32
Macomb, IL 61455
Toll-free (800) 227-7537
Phone (309) 298-1634
Fax (309) 298-2305
DSCC’s Solving Problems and Making Your Own Decisions Tip Sheet
The Division of Specialized Care for Children (DSCC) created this tip sheet to help youth with special healthcare and their families/caregivers build important problem-solving and decision-making skills. This tip sheet includes suggestions, steps and resources for developing the skills you need to be more independent and responsible as an adult.
Solving Problems and Making Your Own Decisions tip sheet in English
Solving Problems and Making Your Own Decisions tip sheet in Spanish
Medical Grants Through United Healthcare Children’s Foundation
United Healthcare Children’s Foundation’s (UHCCF) mission is to help fill the gap between what medical services/items/equipment a child needs and what their commercial health benefit plan will pay for.
UHCCF grants provide financial help/assistance for families with children that have medical needs not covered or not fully covered by their commercial health insurance plan.
To be eligible for grants, children must be 16 years of age or younger at the time of application and have a Social Security number. Eligible families must also meet UHCCF’s economic guidelines.
Families could receive up to $5,000 annually and $10,000 a lifetime per child for eligible medical services, treatment therapies, items and equipment.
American Youth Soccer Organization VIP Program
The American Youth Soccer Organization Very Important Players (AYSO VIP) Program provides a quality soccer experience for children and adults whose physical or mental disabilities make it difficult to successfully participate on mainstream teams.
Illinois STARNET provides a variety of opportunities for personal and professional growth for those who touch the lives of young children, ages birth through eight, with an emphasis on children with special needs. STARNET supports family-centered, researched, and effective practices in early childhood education and care.
STARNET
2626 S. Clearbrook Dr.
Arlington Heights, IL 60005-4626
Phone 224-366-8579
Fax 847-278-5434
Email: starnet@cps.edu