Rockford Resources
The Danny Did Foundation works toward its mission to prevent deaths caused by seizures with these main goals in mind: advancing public awareness of Sudden Unexpected Death in Epilepsy (SUDEP), enhancing the SUDEP communication model between medical professionals and families afflicted by seizures, and the mainstreaming of seizure detection and prediction devices that may assist in preventing seizure-related deaths.
The Danny Did Foundation’s grant program does provide financial assistance for purchasing seizure detection and seizure prediction devices to qualifying individuals.
This series of videos created by the Illinois Emergency Management Agency and the Illinois Deaf and Hard of Hearing Commission provide vital information and preparedness messages in American Sign Language (ASL).
Topics include:
Emergency Preparedness Tips for Those with Access and Functional Needs
A guidebook from the Illinois Emergency Management Agency that provides preparedness tips for people with visual, cognitive or mobility impairments; people who are deaf or hard of hearing; those who utilize service animals or life support systems; and senior citizens.
Resources for Voters With Disabilities
The U.S. Election Assistance Commission created this comprehensive list of resources for voters with disabilities, which includes links to voting accessibility laws and regulations and the latest best practices and research pertaining to voters with disabilities.
The commission also created a tip sheet to help voters with disabilities vote privately and independently.
Transition QuickGuide: Take Charge of Planning and Managing Your Own Health and Career Goals
The Transition QuickGuide checklist provides information and resources about health insurance coverage, self-care, health care transition, decision-making and career planning and management.
American Heart Association Support Network
A free online social community of survivors and family caregivers who share information and inspiration. Support Network members trade tips, compare notes and shore each other up when the going gets rough. Members also have access to healthcare professionals who can answer their questions. Plus, specialized resources from the American Heart Association.
Sleep Help for Individuals With ASD
Autism Speaks offers parents helpful tips for establishing good sleep hygiene and tool kits targeting sleep strategies for children, teens and adults on the spectrum.
Special Recreation Associations in Illinois
The Special Recreation Associations Network of Illinois (SRANI) is a network of therapeutic recreation agencies. Special Recreation Associations provide community-based special recreation services to children and adults with disabilities. You can see a list of special recreation cooperatives available in Illinois.
For more information, visit the SRANI website.
Illinois Student Assistance Commission
The Illinois Student Assistance Commission (ISAC)‘s mission is to provide Illinois students with information and assistance to help make education beyond high school accessible and affordable.
ISAC provides comprehensive, objective, and timely information on education and financial aid for students and their families—giving them access to the tools they need to make the educational choices that are right for them. Then, through the state scholarship and grant programs ISAC administers, ISAC can help students make those choices a reality.
The ISAC Student Portal offers free online tools and resources for students, as well as short videos about college planning and financial aid. It also offers ISAC College Q&A, a free texting service that allows any student to submit their financial aid and college planning questions and receive a response from ISAC staff.
ISAC also offers assistance through the agency’s call center at (800) 899-4722 (ISAC).
DSCC’s Health Care Transition Tip Sheet
Health care transition means moving from pediatric (child) to adult health care. A good transition takes planning. This tip sheet from the Division of Specialized Care for Children (DSCC) can help you and your family plan for transition. It includes information on who should help with health care transition planning, where to find resources and steps you can take to get the services you need so you can lead the kind of life you want to have.