Rockford Resources
Adult Congenital Heart Disease (ACHD) Clinic Directory
The Adult Congenital Heart Association’s ACHD Clinic Directory provides information on ACHD Board Certified providers certified by the American Board of Internal Medicine (ABIM) and ACHA ACHD Accredited Centers.
You can search for clinics by zip code and state. You can find more details and health information on the Adult Congenital Heart Association’s website.
Mother’s Milk Bank of the Western Great Lakes
Mothers’ Milk Bank of the Western Great Lakes provides safe, pasteurized donor human milk to premature and critically ill babies.
Milk Bank WGL also supports moms who donate milk after loss and distributes reduced-cost or free donor milk to chronically ill middle and low-income children.
This non-profit organization serves over 50 hospitals and hundreds of families throughout Illinois and Wisconsin.
The Autism Collective is a collaboration of Easterseals Central Illinois and OSF HealthCare Children’s Hospital of Illinois. The collective is working to end the isolation felt by those living with autism by uniting experts and connecting families.
The collective coordinates early identification, diagnosis, therapy, services and support. Its care coordination services are available throughout Illinois (outside of Chicago).
It’s easy to view self-care as a low priority when your child is diagnosed with a serious illness. Your role as a parent and parenting partner has unexpectedly changed. The child has urgent and complex medical needs; you must manage appointments and service providers, and learn new information about the disease and medical treatment—all while tending to the needs of other family members, work and/or other responsibilities.
The Courageous Parents Network provides this guide to help parents make time and find ways to take care of themselves.
McHenry County Workforce Network Young Adult Internship Program
The McHenry County Workforce Network Young Adult Internship Program provides opportunities for young adults up to age 24, including paid internships, training, certification and more.
Paid internships at local companies throughout McHenry County including positions in retail, offices, public works departments, not-for-profit organizations and many more.
Classroom training including resume development, interview preparation, career exploration, job search training, etc.
Bilingual Parents Video Library
The Illinois Resource Center has put together a library of videos for bilingual parents with videos in French, Tagalog, Urdu, Arabic, Polish, Spanish and English.
Each video showcases subjects and information relevant to parents, caretakers and community members, such as the role of Bilingual Parent Advisory Committees, financial aid for college, tenant rights, multilingual student rights and more.
Respiratory Virus Resources for People with Disabilities
Some people with disabilities may be more likely to get very sick from the flu, COVID-19 or respiratory syncytial virus (RSV). Underlying medical conditions can add to their risk
The Centers for Disease Control and Prevention (CDC) provides a list of respiratory virus resources and tips for people with disabilities on its website.
Rare Caregiver Respite Program
The National Organization for Rare Disorders’ (NORD) Respite Program is for caregivers (parents, spouses, family members, or significant others) of a child or adult diagnosed with a rare disorder. The program provides financial assistance to allow caregivers a break to attend a conference, an event, or have an afternoon or evening away from caregiving.
The Respite Program awards are granted to eligible individuals on a first-come, first-served basis. There is no fee to apply.
For more information about this program, contact NORD at (203) 616-4328 or email CaregiverRespite@rarediseases.org.
Reading a Student’s IEP – Special Education Under the IDEA
Equip for Equality provides this guide to help understand the purpose of an individualized education program (IEP), how to read one, rules to know, special education rights, Individuals With Disabilities Education Act (IDEA) requirements and more.
Preparing For College When You Have Congenital Heart Disease
Going to college is an exciting time filled with new friends and experiences. When you have congenital heart disease (CHD), it can be overwhelming or tempting to put your care on the back burner. It’s very important that you stay in care and are as prepared as possible.
The Adult Congenital Heart Association provides this resource with tips to help you maintain good health while you further your education.