Rockford Resources
Supported Decision-Making Act in Illinois
Illinois’ Supported Decision-Making Act ensures people with disabilities can get the help they need to make decisions for their own lives. The Illinois Guardianship and Advocacy Commission has many resources to explain the Supported Decision-Making Act. These include:
DSCC’s “What Does Illinois Medicaid Cover?” Tip Sheet
Illinois Medicaid covers many services including comprehensive medical, dental, vision and pharmacy benefits. Our Division of Specialized Care for Children (DSCC) tip sheet “What Does Illinois Medicaid Cover?” offers examples of what may be covered in a variety of areas such as vision, transportation and mental health services.
What Does Illinois Medicaid Cover? tip sheet in English
What Does Illinois Medicaid Cover? tip sheet in Spanish
Illinois Medicaid is not a DSCC program. DSCC does not decide coverage or eligibility for Medicaid. This is a helpful guide. To learn more, visit the Illinois Department of Healthcare and Family Services website.
Parents Helping Parents (PHP) is a nonprofit organization providing training, individual assistance, information and resources about raising a child of any age with any disability or special needs diagnosis.
The Child Neurology Foundation provides a telehealth tip sheet to help families and children prepare for video or phone appointments and make them as comfortable and successful as possible.
Rare Sisters Batten Foundation
The Rare Sisters Batten Foundation (RSBF) supports the development of medical research for treatments and cures for CLN3 Batten Disease and also provides monetary assistance to families with children diagnosed with Batten Disease, a neurodegenerative disorder.
Families with children diagnosed with Batten Disease may apply with RSBF for financial help to cover a wide variety of needs. Funds are awarded on a case-by-case basis and contingent on the availability of funds.
COVID-19 testing can help you know if you have COVID-19 so you can decide what to do next, like getting treatment to reduce your risk of severe illness and lowering your chances of spreading the virus to others. Visit the Testing for COVID-19 page on the Centers for Disease Control and Prevention website for information on the types of COVID tests, how to get a test, and how to interpret your results.
Please note we share this resource for information purposes only. The Division of Specialized Care for Children (DSCC) does not manage or coordinate COVID-19 testing programs. Please use the contact information on the website provided.
Smart911 allows individuals to provide critical details about themselves and family members so that in emergencies 911 call takers have the information they need to quickly assess and address special concerns or safety needs.
Smart911 is a free, private and secure nationwide service that automatically delivers your safety profile to local law enforcement, medical and fire responders and public safety agencies that have installed the Smart911 technology. To determine if Smart911 is available in your city or town, visit the SMART911 website, scroll to the bottom and click “Find Services in Your Area.”
Buddy Break – Respite in McHenry County
Nathaniel’s Hope Buddy Break is a free respite opportunity for McHenry County parents of children who have a physical, cognitive, medical or other hidden disability, a chronic or life-threatening illness, or are medically fragile.
It is provided through First Church of Crystal Lake and Options & Advocacy for McHenry County. The program gives each child a trained “buddy” to be by their side for three hours of one-to-one attention and kid-centered activities. The program is open to children with special needs ages 2 – 16 and their siblings ages 4 – 11.
To register or for more information, please visit the Buddy Break webpage or contact Susan Perkins at (815) 477-4720, ext. 255, or susan.perkins@opad.org.
The Illinois Department of Public Health Vax Verify portal (also known as the Illinois Resident Immunization portal) provides access to your official immunization records.
You must be 18 years old or older to create a Vax Verify account or have legal guardianship of a minor to add them to your account.
DSCC’s Vehicle Modification Tip Sheet for MFTD Waiver Families
Vehicle modifications are an available service through the Home and Community-Based Services Waiver for Medically Fragile Technology Dependent Children (commonly called the MFTD waiver). This tip sheet from the Division of Specialized Care for Children (DSCC) includes information on the type of vehicle modifications that may be covered and the steps involved in the process.