Resource Directory /

Rockford Resources

  • Travel Guide for Children with Medical Complexity

    Traveling with a child with medical complexity can be challenging. With extra planning, a family vacation can be a memorable and enjoyable experience. This travel guide from the Courageous Parents Network offers practical advice on choosing a location, what and how to pack the medical supplies your child needs, tips for traveling by car and airplane, and what precautions to take should your child have a medical emergency while on vacation.

    The guide is available in English and Spanish.

  • DSCC’s Planning Your Education & Transition for Life After High School Tip Sheet

    You play a big role in making sure you get the special education services you need. The Division of Specialized Care for Children (DSCC) created this tip sheet to help youth with special healthcare needs and their families learn more about school meetings, work and independence after high school.

    The tip sheet includes a transition planning checklist and information on:

    • Participating in your Individualized Education Program (IEP) meetings
    • Speaking up about your interests, strengths and skills
    • Feeling confident by knowing your rights

    DSCC’s Planning Your Education & Transition for Life After High School tip sheet in English

    DSCC’s Planning Your Education & Transition for Life After High School tip sheet in Spanish

  • National Down Syndrome Society

    The National Down Syndrome Society (NDSS) aims to empower individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities and shifting public perceptions.

    Its resources include information on Down syndrome across the lifespan as well as in the areas of aging, caregiving, education, employment, health and more.

  • DSCC’s Using Supplemental Security Income (SSI) to Get Ready for Your Future Tip Sheet

    The Division of Specialized Care for Children (DSCC) created this tip sheet to help youth with special healthcare needs and their families learn more about Supplemental Security Income (SSI). SSI can help pay for food, clothing and housing needs.  It also helps you keep your medical benefits.

    The tip sheet includes:

    • Steps for applying for SSI
    • Work incentives
    • Where to look for more information

    DSCC’s Using Supplemental Security Income (SSI) to Get Ready for Your Future Tip Sheet in English

    DSCC’s Using Supplemental Security Income (SSI) to Get Ready for Your Future Tip Sheet in Spanish

  • DSCC’s Self-Care Skills Assessment for Parents/Caregivers of Young Adults With Intellectual/Developmental Disabilities

    DSCC’s Self-Care Assessment for Parents/Caregivers of Youth with Intellectual/Development Disabilities is designed to help caregivers of young adults (ages 18 to 25) assess the young adult’s ability to care for their own health. The assessment will help provide information about what your young adult already knows about their health and areas where you/they need to learn more.

    If a young adult is able to fill out this information independently, they should complete the young adult version of this form instead.

    Self-Care Skills Assessment for Parents/Caregivers in English

    Self-Care Skills Assessment for Parents/Caregivers in Spanish

  • iCanConnect

    iCanConnect is a national communication equipment distribution program for people with significant combined hearing and vision loss. The program helps eligible individuals who are deaf-blind stay connected to friends, family and the world by providing equipment specific to each person’s needs.

    The iCanConnect website provides information about each local program and application requirements. The local program works with iCanConnect participants to provide an individualized assessment and help with equipment needs.

  • Brightpoint (formerly Children’s Home & Aid)

    Brightpoint provides a wide range of programs statewide to help families and their children navigate challenges such as poverty, trauma and systemic barriers to equity. Brightpoint focuses on prevention and helping families before problems become life-altering crises. Its programs include:

    • Early childhood care and education
    • Parenting support and family services
    • Foster care
    • Workforce development and youth programs
    • Mental health and wellness

    Brightpoint started as Children’s Home & Aid and has offices in Bloomington, Carpentersville, Englewood, Palatine and Schaumburg.

  • The Painted Turtle Overnight Camp for Children with Serious Medical Conditions

    The Painted Turtle is a year-round, overnight camp in California for children ages 7 to 17 with a variety of serious medical conditions, their siblings and family members. Condition-specific camp sessions and family weekends (for children ages 6 to 17) aim to encourage children to try new things and develop lasting friendships. Campers and their families attend free of charge.

    The camp has a full-time medical staff, a health center and a physician onsite at all times. The Painted Turtle provides camper eligibility guidelines and medical criteria to help determine the best session for your child and family.