Resource Directory /

Peoria Resources

  • NORD: National Organization for Rare Disorders

    The National Organization for Rare Disorders (NORD) offers support, information and a variety of events for clinicians, researchers, patients and families affected by rare diseases.

    NORD’s Resource Center provides patients and caregivers with free webinars, fact sheets, infographics, links to support and advocacy groups, and referrals for many rare disorders.

    NORD’s RareCare Program website provides a list of financial assistance programs that can help patients obtain life-saving or life-sustaining medication they could not otherwise afford.

    NORD’s State Resource Center contains local, state and national organizations listed by state or by topic offering free or low-cost services for people impacted by rare diseases.

  • Comeunity

    ComeUnity is a parent support website with resources on parenting children with special needs, adoption, child development and multiple lists of groups and organizations providing information on specific topics or areas.

    Visit www.comeunity.com/index.html.

  • PACER Center

    PACER Center is a parent training and information center for families of children and youth with all disabilities from birth to young adults. It serves families across the nation.

    Parents can find publications, workshops and other resources to help make decisions about education, vocational training, employment and other services for their children with disabilities.

  • American Cleft Palate – Craniofacial Associationsun-icon

    The American Cleft Palate – Craniofacial Association (ACPA) is a non-profit association of individuals and healthcare professionals who are interested in clinical care and research advancements for those affected by cleft and craniofacial conditions.

    ACPA provides important information for families, patients and professionals on topics associated with cleft or craniofacial care as well as educational materials in English and Spanish, scholarship information and more.

  • Homemods.org

    Home modification refers to converting or adapting the environment in order to make performing tasks easier, reduce accidents, and support independent living. Homemods.org provides home modification information, where to find funding, tip sheets and checklists, and training for consumers and professionals.

  • Compassionate Friends

    The Compassionate Friends (TCF) is a self-help bereavement organization, providing support to bereaved parents, siblings, grandparents, and close family members who are going through the natural grieving process following the death of a child of any age (from pre-birth to adult) from any cause.

    TCF resources include:

    • Grief materials and information for the newly bereaved
    • A meeting locator tool to help you find a chapter near you
    • An online support community and live chats
    • A downloadable, online magazine
    • A comprehensive list of similar nonprofit organizations

  • Center for Parent Information and Resources (formerly NICHCY)

    The Center for Parent Information and Resources (CPIR) is a central “hub” for the network of Parent Centers serving families of children with disabilities nationwide. Materials on CPIR’s website are user-centered and created for and by Parent Centers around the country to help provide support and services to the families they serve. Resources include parent guides, training materials, information on special education and transition planning, webinars and more. CPIR also provides information in Spanish to help parents understand specific disabilities, the special education process and where to find help.

    CPIR also offers:

    • A family-friendly resource library
    • A monthly e-newsletter featuring new resources, upcoming events, and materials to share
    • Native American resources
    • The Office of Special Education Program (OSEP)’s Glossary of Common Individuals with Disabilities Education Act (IDEA) Terms in Spanish and in Korean
    • An events calendar
    • A Parent Center locator tool