Peoria Resources
It’s easy to view self-care as a low priority when your child is diagnosed with a serious illness. Your role as a parent and parenting partner has unexpectedly changed. The child has urgent and complex medical needs; you must manage appointments and service providers, and learn new information about the disease and medical treatment—all while tending to the needs of other family members, work and/or other responsibilities.
The Courageous Parents Network provides this guide to help parents make time and find ways to take care of themselves.
Bilingual Parents Video Library
The Illinois Resource Center has put together a library of videos for bilingual parents with videos in French, Tagalog, Urdu, Arabic, Polish, Spanish and English.
Each video showcases subjects and information relevant to parents, caretakers and community members, such as the role of Bilingual Parent Advisory Committees, financial aid for college, tenant rights, multilingual student rights and more.
Respiratory Virus Resources for People with Disabilities
Some people with disabilities may be more likely to get very sick from the flu, COVID-19 or respiratory syncytial virus (RSV). Underlying medical conditions can add to their risk
The Centers for Disease Control and Prevention (CDC) provides a list of respiratory virus resources and tips for people with disabilities on its website.
Menard County Housing Authority – Housing Choice Voucher Program and Other Programs
The Menard County Housing Authority provides the Housing Choice Voucher Program, Project-Based Vouchers, Tenant Protection Vouchers, and Emergency Housing Vouchers in Alexander, Bond, Casey, Clinton, Coles, Crawford, Douglas, Fayette, Jackson, Jasper, Livingston, Macoupin, Massac, Menard, Monroe, Moultrie, Perry, Pulaski, Randolph, Scott and Wabash counties.
The website also includes resources for Menard County residents for help with food, utilities, employment, education, and other programs and services.
For more information and to apply, visit www.menardcha.org. You can also call (217) 632-7723.
Rare Caregiver Respite Program
The National Organization for Rare Disorders’ (NORD) Respite Program is for caregivers (parents, spouses, family members, or significant others) of a child or adult diagnosed with a rare disorder. The program provides financial assistance to allow caregivers a break to attend a conference, an event, or have an afternoon or evening away from caregiving.
The Respite Program awards are granted to eligible individuals on a first-come, first-served basis. There is no fee to apply.
For more information about this program, contact NORD at (203) 616-4328 or email CaregiverRespite@rarediseases.org.
Reading a Student’s IEP – Special Education Under the IDEA
Equip for Equality provides this guide to help understand the purpose of an individualized education program (IEP), how to read one, rules to know, special education rights, Individuals With Disabilities Education Act (IDEA) requirements and more.
Preparing For College When You Have Congenital Heart Disease
Going to college is an exciting time filled with new friends and experiences. When you have congenital heart disease (CHD), it can be overwhelming or tempting to put your care on the back burner. It’s very important that you stay in care and are as prepared as possible.
The Adult Congenital Heart Association provides this resource with tips to help you maintain good health while you further your education.
The Job Accommodation Network (JAN) provides free consulting services for all employees, regardless of the condition. Services include one-on-one consultation about all aspects of job accommodations, including the accommodation process, accommodation ideas, product vendors, referral to other resources and Americans With Disabilities Act (ADA) compliance assistance.
When Your Child Has a Heart Defect: Planning Ahead for Lifelong Heart Health
Children with congenital heart defects and disease (CHD) will need lifelong care from congenital heart experts. The Adult Congenital Heart Association provides this brochure to help parents of children born with CHDs support their child’s lifelong heart health.
Mended Little Hearts and St. Jude Medical partnered to create this digital resource guide for parents and caregivers of children with congenital heart disease or defects (CHD).
Medical professionals and parents worked together on this guide to provide accurate and honest information that addresses the tough feelings, questions and concerns parents and caregivers may have.
Go to The Mended Hearts, Inc. HeartGuides page and scroll down to see the Mended Little HeartGuide in English and Spanish.