Mokena Resources
National Center on Deaf-Blindness
The National Center on Deaf-Blindness (NCDB) is part of a network of projects for children and youth with deaf-blindness (birth through 21) providing information and learning and development tools for families and educators. NCDB resources include:
- An overview of deaf-blindness
- Practice guides and professional development
- Spanish resources
NCDB includes state deaf-blind projects in every state, Puerto Rico, the District of Columbia, the Pacific Basin and the Virgin Islands.
American Foundation for the Blind
The American Foundation for the Blind (AFB) offers information and resources for children and adults who are blind or visually impaired. AFB resources include:
- Research and initiatives
- Publications
- Digital inclusion and talent lab internships and apprenticeships
- Braille and technology resources
Funeral and Burial Benefits Program
The Illinois Department of Human Services (DHS) Funeral and Burial Benefits Program pays for funeral and burial expenses when a person’s resources and all other sources of payment are less than the DHS standard payment rates.
More information and forms for submitting a claim are available online or at your local Family Community Resource Center (FCRC). Use the DHS Office Locator to find your local FCRC.
Package of Hope for NICU Families
Lily’s Hope Foundation offers free customized care packages to families with premature babies either in the Neonatal Intensive Care Unit (NICU) or when they are being discharged.
Its Package of Hope program provides packages customized to a family’s specific needs. A sibling care package is also available.
Packages are shipped throughout the United States based on availability. One Package of Hope per family.
The Findhelp.org website allows individuals to search and connect to support no matter where they live. Share your zip code to find area resources that include financial assistance, housing, food pantries, medical care, transportation and other free or reduced-cost help.
DSCC Emergency Preparedness Tip Sheet
Emergencies like power outages and weather events can be especially dangerous for individuals with complex medical needs. This tip sheet from the Division of Specialized Care for Children (DSCC) helps with emergency knowledge and disaster planning. It includes important considerations for emergency situations as well as a resource toolbox with expert advice for pediatric, disability and/or advanced healthcare needs.
DSCC and Illinois LEND’s Transition Resources for Hispanic Teens in the Chicago Area
The transition to adulthood can be a challenging time for both adolescents and their parents. These challenges can be more difficult when the adolescent has a disability.
Illinois LEND (Leadership Education in Neurodevelopmental and related Disabilities) and the Division of Specialized Care for Children (DSCC) partnered to provide helpful information about the unique challenges Hispanic families can face during the transition to adulthood. This resource list is aimed at transition-age teenagers and their families in the Chicago area:
National Alliance for Children’s Grief (NACG)
The National Alliance for Children’s Grief (NACG) raises awareness about the needs of children and teens who are grieving a death and provides education and resources for anyone who supports them. NACG resources include:
- Free GriefTalk Live events
- Webinars and continuing education
- Peer networking
DSCC’s Emergency Plan Template
The Division of Specialized Care for Children (DSCC) developed this emergency plan template to help our participant families create an emergency plan to keep them safe and prepared in the event of a disaster or other emergencies.
Sections include emergency contacts, emergency prep tips, evacuation plans and plans for medical emergencies.
DSCC’s Paying for College Tip Sheet
The Division of Specialized Care for Children (DSCC) created this tip sheet to help youth with special healthcare needs and their families learn more about available resources to help pay for college. The tip sheet includes details about possible funding sources and scholarship opportunities: