Mokena Resources
Model Systems Knowledge Translation Center (MSKTC)
The Model Systems Knowledge Translation Center (MSKTC) provides free, easy to understand resources for people living with traumatic brain (TBI), spinal cord (SCI) and burn injuries and their supporters. The research-based resources aim to improve rehabilitation outcomes and quality of life for people living with SCI, TBI, and burn injuries. MSKTC resources are available in a variety of formats including printable PDF documents, videos and slideshows.
The MSKTC website features a wide range user-friendly resources divided by topic:
Margaret Hackett Family Program
Congenital anomalies of the central nervous system (CNS) are birth defects of the physical structure of the brain or spinal cord that occur during fetal intrauterine growth such as spina bifida, hydrocephalus and other conditions. The Margaret Hackett Family Program (MHFP) at the University of Chicago provides individuals and families help with diagnosing, understanding, caring for and addressing the challenges of living with CNS congenital anomalies. MHFP also provides research and research grants.
The Margaret Hacker Family Program also offers:
- A monthly, virtual “Connect Group” for individuals and families affected by CNS anomalies
- In-person quarterly socials
- In-person events twice a year featuring food, giveaways, fun activities and resources
- Help with finding resources and medical care
Illinois Help Stop Hate provides meaningful support to help victims and witnesses of hate acts in reporting what happened and connecting them and their communities with vital resources. The service is free, confidential and not affiliated with law enforcement. Individuals can make online reports in seven languages. Callers can report in the language of their preference and receive assistance from call specialists trained in trauma-informed care.
You can make reports anonymously by calling (877) 458-4283 or (877) 458-HATE, Monday to Friday from 12 to 9 p.m. or online any time by visiting ILStopHate.org.
BACKBONES – Connecting People With Spinal Cord Injury
BACKBONES connects people with spinal cord injury and their families to others with similar backgrounds, injuries and interests. BACKBONES provides inspirational stories and programs that include events, a youth program for teenagers (ages 15 to 18), leader development and monthly online meetups for people in the spinal cord injury and disease (SCI/D) community looking to connect with their peers.
FacingDisability provides stories, hundreds of paralysis resources and up-to-date information on spinal cord injury. The organization works with medical experts from major hospitals, universities and rehabilitation institutions nationwide to provide insight and inspiration. FacingDisability resource topics include:
- Disability advocates
- Family and caregiver support
- Assistive technology
- Financial assistance and government programs
- Education and employment
A Place for Us provides students with disabilities and their allies a space to connect, network and empower one another through peer mentoring that spans from high school through college. This nationwide nonprofit helps students with disabilities succeed in higher education by unifying disability rights activists in colleges across the country. A Place for Us provides:
- A digital network of students with disabilities and their allies to be mentors for high school students and underclassmen with disabilities
- Students with disabilities and disability advocates willing to share their stories
- Nationwide mentors who can help you navigate your higher education journey
- Mentorship opportunities
Stress and Coping Skills Resources
If left unmanaged, stress can negatively impact our physical health, emotional well-being, relationships, work, and many other things in our lives. To effectively manage stress, one must identify the stressor and take active steps to reduce the impact of the stressor by using effective and individualized coping tools.
Illinois Extension provides this list of resources to help reduce stress and enhance coping skills.
National Maternal Mental Health Hotline
The National Maternal Mental Health Hotline is free, confidential and here to help 24 hours a day, seven days a week in English and Spanish for anyone who is pregnant or just had a baby.
Trained counselors can listen to what you’re going through, connect you with local support groups and organizations, and refer you to other healthcare professionals if you need more care.
Call or text (833) 852-6262 or (833) TLC-MAMA.
Postpartum Support International
Postpartum Support International (PSI) provides a worldwide network of peer support, information, professional trainings and coordinators in all U.S. states. Its mission is to promote awareness, prevention and treatment of mental health issues related to childbearing in every country worldwide. PSI has more than 400 local support volunteers who provide support, information, encouragement and connection with local providers and support groups.
PSI offers 50-plus free online support groups to connect with other parents, including groups for special needs and medically fragile parenting, birth trauma support, neonatal intensive care unit (NICU) postpartum parents and more. PSI also moderates closed Facebook groups for moms and dads.
PSI also has a helpline for anyone to get basic information, support and resources. You can call or text daily from 7 a.m. to 10 p.m. central standard time at:
- Call (800) 944-4773 for English and Spanish support
- Text in English to (800) 944-4773
- Text en Español to (971) 203-7773
Resources are available in English and Spanish.
The Shirley Ryan AbilityLab is a nonprofit hospital providing patient care, a research community focused on physical medicine and rehabilitation, clinical trials and a wide range of resources to help with caregiving, adapting and accessibility. Based in Chicago, the Shirley Ryan AbilityLab provides help with pediatric and adolescent rehabilitation, spinal cord injuries, brain injury recovery, limb loss and impairment, stroke and more.
Shirley Ryan Abilitylab’s Henry B. Betts, MD, Learning, Innovation, Family and Empowerment (LIFE) Center also offers resources to help empower people living with chronic, cognitive and physical impairments and diseases affecting function. Resource topics include:
- Caregiving and equipment
- Housing and transportation
- Inspiration and hope
- Support and wellness
- Recreation and leisure
- Medical information and care
- Education and employment