Resource Directory /

Mokena Resources

  • Childhood Tracheostomy Alliance

    The Childhood Tracheostomy Alliance is a non-profit created by families and healthcare providers working together to transform the care and quality of life of children with tracheostomy and ventilator dependence and their families. The Alliance is focused on educating communities, improving access to in-home support and supplies, helping with out-of-pocket medical expenses, and providing a network of support from both caregivers and healthcare professionals. The Childhood Tracheostomy Alliance website includes:

    • Frequently asked questions and terms about tracheostomy and mechanical ventilation
    • Annual caregiver grants
    • A list of resources by state

  • PKU Organization of Illinois Andrew Craig Memorial Scholarship

    The PKU Organization of Illinois awards the Andrew Craig Memorial Scholarship annually to qualified individuals with phenylketonuria (PKU) or allied disorders. Eligible applicants may receive scholarships of up to $2,000. The scholarship applicant requirements include:

    • Having PKU or an Allied Disorder diagnosis
    • Currently residing in Illinois
    • Enrolling to attend an accredited college, university or vocational school for the fall semester of the current calendar year

    A student may receive more than one scholarship during their secondary education but not in consecutive years.

  • BRIC Foundation

    BRIC Foundation (Break, Reinvent, Impact and Change) is a non-profit company focused on increasing representation in entertainment, gaming, media and tech. BRIC works with leaders across these industries, and government and education partners to create inclusive opportunities for women and underrepresented people to be successful. BRIC Foundation’s student programming includes:

    • Summer Internships
    • Creative academies
    • BRIC Student Communities providing virtual Art Jams and industry speakers

  • The Conversation Project

    The Conversation Project is an initiative of the Institute for Healthcare Improvement (IHI) to help people talk about their wishes for care through the end of life so others can understand and respect those wishes. The project offers free tools, videos and other resources to help make difficult conversations with loved ones easier. Resources are available in English, Spanish, Chinese and Audio (English). Guide topics include:

    • A conversation starter guide
    • Talking to your health team
    • What matters to me workbook for people with serious illness
    • How to start talking with a child who is living with a serious illness about the health care that is right for them
    • Encouraging conversations in your community

  • Fun4theDisabled

    Fun4theDisabled is a community created by, for and about people with disabilities to help everyone live their best lives. Fun4theDisabled creates video and content highlighting opportunities for people with disabilities in the community, connecting them with organizations, programs and events that provide accessibility in inclusive and fun ways.

    Fun4theDisabled resources include:

  • UIC College of Dentistry Inclusive Care Clinic in Chicago

    The Inclusive Care Clinic (ICC) from the University of Illinois Chicago’s College of Dentistry offers comprehensive, preventative and integrated (multidisciplinary) dental treatment for patients 15 years or older with a wide range of physical and developmental disabilities. The ICC serves individuals with autism, physical disabilities, intellectual and developmental disabilities, and behavioral and other conditions.

    The clinic includes:

    • A sensory room
    • A wheelchair lift
    • Private treatment rooms
    • Noise-cancelling headphones
    • Personal entertainment tablets
    • Weighted blankets

  • Jill’s House Weekend Adventures

    Jill’s House House Weekend Adventures (JHWA) and Covenant Harbor in Lake Geneva, Wis., provide a two-day camping experience for kids and teens ages 6 to 17 with intellectual disabilities in the Chicagoland area. The program designs activities around campers’ needs. These activities include playing games, having cookouts, enjoying nature and making new friends.

    The camp cannot support certain health and behavioral conditions. Please visit JHWA’s website for the specific eligibility requirements and intake application process.

  • The Center for Chronic Illness

    The Center for Chronic Illness (CCI) is a nonprofit organization offering support and education to promote well-being and decrease isolation for people affected by chronic illness. CCI offers adults and teens living with chronic illness a variety of support groups and programs focusing on emotional well-being, health education and community. ​CCI provides:

  • Creative Healing for Youth in Pain

    Creative Healing for Youth in Pain (CHYP) is a nonprofit organization serving youth between the ages of 13 and 24 who are experiencing pain, feelings of isolation and loneliness. CHYP provides educational resources, peer connection and exposure to creative healing experiences to help bridge the gap between common healthcare barriers such as cost, geographic location and long wait times for appointments. Resources are available for both youth and their parents.

    CHYP resources include:

    • Information on the science of pain
    • Strategies for breaking the pain cycle
    • On-demand webinars for youth and parents
    • Monthly open Zoom meetings for youth (ages 13 to 24)
    • Small group and Zoom meetings for parents
    • Summer camp