Marion Resources
Tracheostomy.com (Aaron’s Tracheostomy Page) is an independent, family-run website that provides information about home care for children with tracheostomies (trachs) as well as parent-to-parent networking and support.
Epilepsy Foundation of Greater Southern Illinois
The Epilepsy Foundation of Greater Southern Illinois aims to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures and save lives. Its programs include epilepsy and seizure support services, home-based services, residential services, epilepsy education programs, support groups, a scholarship and more.
Its website also provides resources including a New to Epilepsy Guide, Seizure Calendar and more.
DSCC’s Solving Problems and Making Your Own Decisions Tip Sheet
The Division of Specialized Care for Children (DSCC) created this tip sheet to help youth with special healthcare and their families/caregivers build important problem-solving and decision-making skills. This tip sheet includes suggestions, steps and resources for developing the skills you need to be more independent and responsible as an adult.
Solving Problems and Making Your Own Decisions tip sheet in English
Solving Problems and Making Your Own Decisions tip sheet in Spanish
Medical Grants Through United Healthcare Children’s Foundation
United Healthcare Children’s Foundation’s (UHCCF) mission is to help fill the gap between what medical services/items/equipment a child needs and what their commercial health benefit plan will pay for.
UHCCF grants provide financial help/assistance for families with children that have medical needs not covered or not fully covered by their commercial health insurance plan.
To be eligible for grants, children must be 16 years of age or younger at the time of application and have a Social Security number. Eligible families must also meet UHCCF’s economic guidelines.
Families could receive up to $5,000 annually and $10,000 a lifetime per child for eligible medical services, treatment therapies, items and equipment.
United Way supports 211 a free and confidential service that helps people across North America find the local resources they need 24 hours a day, 7 days a week.
A toll-free call to 211 connects you to a community resource specialist in your area who can put you in touch with local organizations that provide critical services that can improve and lives. You can find information about supplemental food and nutrition programs, shelter and housing options, utility assistance, disaster relief, employment and education opportunities, and more.
College Scholarships for Students with Disabilities
Information from College Scholarships.org about college scholarships available to students with disabilities.
Job Corps is a comprehensive program that provides essential academics and career skills training. The program helps eligible youth ages 16 through 24 complete their high school education, trains them for meaningful careers, and assists them with obtaining employment.
Illinois Department of Employment Security Youth Program
The Hire the Future Program at the Illinois Department of Employment Security (IDES) is designed to provide youth ages 16 to 24 with employment assistance, job readiness and career development services. You c an find out what careers match your skills and interests by using IDES’ online job resources.
Infinite Potential Through Technology (Infinitec)
Infinite Potential Through Technology (Infinitec) brings assistive technology to people with disabilities in Illinois. Infinitec provides information about assistive technology as well as training, equipment and access to specialists and resources.
Infinitec includes information about mobility devices, home modifications, independent living, orthotics and prosthetics, adaptive toys, adaptive sports, hearing resource guides, vision resource guides and more.
DSCC’s Health Care Transition Readiness Assessment for Youth
DSCC’s Health Care Transition Readiness Assessment for Youth with Intellectual/Developmental Disabilities provides a checklist for youth to use to identify what they know about their health, self-care skills and abilities they have met, and areas where they may need additional focus. The skills list also includes medication and treatment management, and managing insurance benefits. Some of these activities may not apply to everyone.
Health Care Transition Readiness Assessment for Youth in English
Health Care Transition Readiness Assessment for Youth in Spanish