Marion Resources
Assistive Technology Devices and Services for Children With Disabilities Under the IDEA
The U.S. Department of Education’s Assistive Technology (AT) and Individuals with Disabilities Education Act (IDEA) resource page can help guide parents and professionals who support children with disabilities who need AT devices and services for meaningful access and engagement in education. Information is available in English and Spanish.
The page also includes “Myths and Facts Surrounding Assistive Devices and Services.” This publication aims to increase understanding of the AT requirements under IDEA. It also aims to:
- Dispel common misconceptions about AT
- Provide examples of the use of AT devices and services for children with disabilities
- Highlight the different requirements under Part C and Part B of IDEA
You can also review “Myths and Facts Surrounding Assistive Devices and Services” in Spanish.
G-Tube Notebook Videos from Children’s Wisconsin
Children’s Wisconsin’s G-tube Notebook videos offer information and step-by-step help for taking care of a child’s feeding tube. The videos include an introduction to understanding feeding tubes as well as videos specific to caring for and changing tubes. A G-tube refresher class is also available in English and Spanish.
Children’s Wisconsin’s PEG tube video provides information and demonstrations on what to expect after the tube is placed, including:
- Care after surgery and helping the site heal
- Types of PEG tubes
- Tips for caring for and stabilizing the tube
- Primary tube change
- Common problems
The Oley Foundation is a non-profit home nutrition therapy community and advocacy group working to enrich the lives of people living with home IV nutrition or tube feeding. The Oley Foundation provides a wide range of resources covering education, community, awareness and innovation.
Caring for a Child with a Gastrostomy Video from St. Louis Children’s Hospital
The “Caring for My Child with a Gastrostomy” video from St. Louis Children’s Hospital provides information on understanding your child’s gastrostomy appliance and how to care for it at home.
This educational video focuses on the gastrostomy tube (g-tube), the gastrostomy button appliance and answering a variety of frequently asked questions.
“Caring for My Child with a Gastrostomy” is broken into segments and available in full. Be sure to select the appropriate video based on whether you want to learn about the gastrostomy tube (g-tube) or the gastrostomy button appliance.
Gastrostomy Tube and Feeding Information from Lurie Children’s Hospital
Ann and Robert H. Lurie Children’s Hospital of Chicago provides resources for understanding and caring for a child’s gastrostomy tube. This webpage also includes an easy-to-download parent guide, “Supporting Nutrition: Understanding Tube Feeding.” The reference guide includes personal stories and information on:
- Administering feedings through the feeding tube
- Changing the dressings and cleaning around the tube
- Problems that may occur with the gastrostomy tube or the insertion site
Please note this information is not a substitute for the medical care and advice of your physician. There may be individual circumstances of your child’s healthcare that cause a variation in treatment.
Homework Tip Sheets for Families and School Staff
The Illinois State Board of Education (ISBE) has created a useful tip sheet with strategies to support parents and guardians who help children complete homework. The “Homework Help Strategies for Caregivers” tip sheet includes a link to a database of helpful homework support websites. It can be found under “Family and Community Resources” on ISBE’s Family and Community Engagement webpage.
School and district professionals as well as school board members can also find tip sheets on how they may help with best practice regarding homework.
Inclusion Brochure from the Illinois State Board of Education
The Illinois State Board of Education’s Inclusion Brochure provides an overview of early childhood inclusion, the benefits of high-quality inclusive programs, teaching models that support inclusion, and more. It can also help families and professionals to better explain least restrictive environment (LRE) and inclusion.
The brochure is also available in these languages: Arabic Inclusion Brochure, Cantonese Inclusion Brochure, French Inclusion Brochure, Japanese Inclusion Brochure, Mandarin Inclusion Brochure, Polish Inclusion Brochure and Spanish Inclusion Brochure.
Illinois Dyslexia Guide: A Handbook for Parents, Educators, and Students and Dyslexia Toolkit
The Illinois State Board of Education’s (ISBE) Dyslexia Guide: A Handbook for Parents, Educators, and Students provides information and guidance about dyslexia and related disorders for educational professionals, school leaders, families, guardians, and students. The handbook seeks to empower stakeholder groups to better understand dyslexia and strengthen programs to meet the educational and social-emotional needs of children and adolescents who struggle to learn to read.
You can use the handbook alone or with the Dyslexia Toolkit. The toolkit’s ever-evolving collection of additional resources includes laws, websites, videos, and podcasts for families and educators.
Visit the Specific Learning Disability Support Project (SLD Supports) website for these resources and more.
Miracle Flights provides free commercial airline tickets to pediatric patients ages 17 and under in need of life-changing medical care far from home. Families must meet certain requirements and apply online using the online application for requesting each flight.
The organization also provides flights for service dog retrieval and/or training. Miracle Flights’ service dog program is open to all individuals who need help retrieving/training their service dog.
The Sunshine Foundation helps make dreams come true for children ages 3 to 18 who have severe or profound illnesses or conditions. Referrals can come from anywhere in the United States for children with severe or profound physical/developmental/intellectual challenges or trauma from physical/sexual abuse and whose families have limited income.
Dream requests can include:
- Staying at the Sunshine Foundation Dream Village and visiting area theme parks and attractions
- Funding towards a special gift or item of interest
- Funding towards medical or adaptive equipment that insurance may not cover