Marion Resources
Caregiver Action Network (CAN) is a national nonprofit organization that aims to improve the quality of life for Americans who care for loved ones with chronic conditions, disabilities, disease or the frailties old age.
CAN provides a Family Caregiver Toolbox on a variety of topics.
The Arc of Illinois Family-to-Family Health Information Center and Family Voices of Illinois provide this fact sheet on possible options for help with the cost of diapers for children, youth and adults with disabilities.
PUNS is the name for the list of the people in Illinois with developmental disabilities who want or need services but do not yet have funding. Individuals who need help from the government to pay for needed Division of Developmental Disabilities Waiver services now, or in the future, should register for PUNS.
The Arc of Illinois’ Life Span Program provides an overview of how to get on the PUNS list and how to check the approximate date when you may be selected.
Family Voices Telehealth Toolkit, Tips and New Telemedicine Family Resource Center
Family-centered telehealth can help children and youth with special healthcare needs and families access health care, improve their experience with health care, reduce stress, improve communication between all team members and across systems, and improve quality of life and well-being. During the COVID-19 outbreak, telehealth is being used more and more. Family Voices features extensive resources to help families and individuals with disabilities better understand, access, prepare for and navigate telehealth appointments.
These resources are in Spanish and English.
“Before, During, and After” is a two-part toolkit providing a checklist and worksheet to help prepare for telehealth visits, note questions or key information during a visit, and provide guidance and clear follow-up steps for each appointment.
Family Voices also provides guidance on how to use telemedicine, what to expect and policy changes. (Click here for the Spanish version.)
COVID-19 Parenting Tip Sheets and Activities
Parenting for Lifelong Health has developed open-access online parenting resources to support families during COVID-19. Their Parenting Tip Sheets are available in 100-plus languages and provide useful reminders, suggestions, strategies and activities to help caregivers support themselves, their children and their families.
RentAssistance provides a directory of rental assistance agencies and organizations that will help you pay your rent. Some listings are government organizations other are non-profits and charities that offer rental assistance programs.
Each organization has its own eligibility rules and conditions and you are encouraged to call directly to find out what you need to do.
The Illinois Department of Labor is launching Back to Business Illinois, a free, voluntary service that connects small businesses of 250 employees or less with consultants who will help them address workplace safety and health issues related to the coronavirus and create a plan to ensure a safe, healthy and productive environment for employees and visitors.
These one-hour confidential consultations take place virtually, via teleconference.
The Arc’s Center for Future Planning
The Arc’s Center for Future Planning aims to support and encourage adults with intellectual and developmental disabilities (I/DD) and their families to plan for the future.
The Center provides reliable information and assistance to individuals with I/DD, their family members and friends, professionals who support them and other members of the community on areas such as person-centered planning, decision-making, housing options and financial planning.
Find Food IL Community Food Map
Find Food IL is a community food map that provides a list of places offering free food or meals in your community. You can find food pantries, stores and markets that accept SNAP/LINK or WIC coupons, and more resources that are close to you.
Everyone’s ability to make decisions changes across a lifetime including people with intellectual and developmental disabilities (IDD).
The Arc’s Center for Future Planning created this handout to help individuals with IDD and their families learn how to make, review and adjust a decision-making plan throughout a person’s life to maximize their ability to make their own decisions.