Lombard Resources
The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to supporting families and ensuring access to quality respite services for the residents of Illinois. The IRC assists caregivers by connecting them to resources in their area, providing training on respite topics and having funding available for emergency respite. The IRC helps caregivers of individuals across the lifespan with any disability.
The Emergency Respite Care Program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source. Emergency respite care may be for an unplanned or planned event for reasons including:
- Caregiver illness (physical, mental or emotional)
- Caregiver hospitalization
- Work-related situation
- Reduction of stress level
The website gives examples of qualifying circumstances and information on how to apply. For more details see the:
For more information, contact:
- The Illinois Respite Coalition at (866) ILL-RESP (455-7377), ext. 101, or email ilrespitecoalition@gmail.com.
- Spanish-speaking callers may call (866) 866-ILL-RESP (455-7377), ext. 103, or email ilrespitecoalition@gmail.com.
Elmhurst Learning and Success Academy (ELSA)
Elmhurst Learning and Success Academy (ELSA) is a four-year, post-secondary certificate program for young adults aged 18-28 with disabilities. Elsa students can live on campus or commute and participate in on-campus activities alongside their degree-seeking peers.
If you have any questions, please call (630) 617-3752 or email elsa@elmhurst.edu.
The Center for Enriched Living
The Center for Enriched Living (CEL) provides a wide range of services to enrich the lives of teens, adults and seniors with intellectual and developmental disabilities (IDD). CEL programs include social, recreational and employment programs, events, adult day programs, and mental health and wellness support to people with IDD, their families and caregivers.
CEL is independently funded and partners with the community for donations, regular volunteers, advocacy and collaborations that support people with IDD.
For questions, please contact (847) 948-7001 or info@CenterForEnrichedLiving.org.
Supporting Illinois Brother and Sisters (S.I.B.S.)
Supporting Illinois Brothers and Sisters (S.I.B.S.) offers support to siblings of individuals with disabilities in Illinois by connecting them with information, networking opportunities, and resources to enhance the quality of life for their entire family.
For questions, please email info@sibsnetwork.org.
Tracheostomy.com (Aaron’s Tracheostomy Page) is an independent, family-run website that provides information about home care for children with tracheostomies (trachs) as well as parent-to-parent networking and support.
Create Your Own Communication Card for People With Hearing Loss
The Illinois Deaf and Hard of Hearing Commission (IDHHC) provides a template to create a personalized Communication Card for people with hearing loss. The card helps others understand your communication needs and lists your preferred communication provider’s name and contact information. To create a personalized Communication Card, visit the “Create my own Communication Card” page on IDHHC’s website.
For more information, contact the IDHHC:
- Voice: (217) 557-4495
- Video: (217) 303-8010
- TTY: (888) 261-2698
- DHH.Communications@Illinois.gov
DSCC’s Solving Problems and Making Your Own Decisions Tip Sheet
The Division of Specialized Care for Children (DSCC) created this tip sheet to help youth with special healthcare and their families/caregivers build important problem-solving and decision-making skills. This tip sheet includes suggestions, steps and resources for developing the skills you need to be more independent and responsible as an adult.
Solving Problems and Making Your Own Decisions tip sheet in English
Solving Problems and Making Your Own Decisions tip sheet in Spanish
Medical Grants Through United Healthcare Children’s Foundation
United Healthcare Children’s Foundation’s (UHCCF) mission is to help fill the gap between what medical services/items/equipment a child needs and what their commercial health benefit plan will pay for.
UHCCF grants provide financial help/assistance for families with children that have medical needs not covered or not fully covered by their commercial health insurance plan.
To be eligible for grants, children must be 16 years of age or younger at the time of application and have a Social Security number. Eligible families must also meet UHCCF’s economic guidelines.
Families could receive up to $5,000 annually and $10,000 a lifetime per child for eligible medical services, treatment therapies, items and equipment.
For questions, visit the Contact UHCCF website page, email uhccfcustomerservice@uhc.com, or call 1 (855) 698-4223.
Wrightslaw Special Education Law and Advocacy
Wrightslaw provides resources, an A to Z Topic Library and information for parents, educators, advocates and attorneys on special education law, education law, and advocacy for children with disabilities.
Dental Coverage for Illinois Medicaid
Find out what dental services are covered by Illinois Medicaid and where you can get them.

