In this video, nurses from Ann and Robert H. Lurie Children’s Hospital of Chicago describe and demonstrate emergency management for pediatric patients with tracheostomy (trach) tubes. The video covers:
- Prevention and assessment of emergency situations
- How to manage a mucous plug
- How to replace a trach tube that has become dislodged
- What to do if the trach tube is difficult to replace
- When to provide manual ventilation using bag to trach tube, bag and mask to mouth, and mouth to mouth
The Pediatric Palliative Care Coalition’s (PPCC) Sibling Grief and Bereavement Toolkit aims to address the needs and concerns of children and teens who have experienced the death of their sibling with medical complexities. The toolkit provides information to help adults understand how children and teens may process their grief and how to provide comfort to help them heal.
The toolkit can help with:
- The many feelings siblings might experience
- Therapeutic activities families can do together
- More resources for encouraging and guiding conversations
The Division of Specialized Care for Children (DSCC) has created an IMPACT Guide for Participants and Families. The guide provides helpful information for our participants and families using the Illinois Medicaid Program Advanced Cloud Technology (IMPACT) system. It includes:
- Contacts for assistance
- A list of helpful terms
- Information on All Kids/Medicaid transportation benefits
- How to enroll in IMPACT (as a Private Transportation Provider)
- Information on pre-approval and submitting a claim
For more information, visit the IMPACT Information and Resources page on our website.
Western DuPage Special Recreation Association (WDSRA) provides recreation and social opportunities for individuals with a wide range of disabilities. From ages 3 to their senior years, individuals can enjoy adaptive sports, athletics, camps, social clubs, trips and more. WDSRA is a cooperative extension of nine park districts and serves the communities/member districts of Bloomingdale, Carol Stream, Glen Ellyn, Naperville, Roselle, Warrenville, West Chicago, Wheaton, and Winfield.
WDSRA programs include:
- Rec & Roll for individuals ages 22 to 55 with an intellectual disability
- Adaptive sports and athletic programming
- Cultural arts
- Social programs and clubs
- Trips and special events
Exercise Tips and Tools for Children
These tips sheets provide resources for helping children with disabilities of all ages and abilities exercise and stay active.
Illinois Disability Benefits 101
Illinois Disability Benefits 101 is a free, user-friendly, Illinois-specific website that helps work through the myths and confusion of Social Security benefits, health care, employment and more. It is a one-stop shop for information, resources, and tools to motivate and support employment and community inclusion for individuals with disabilities, their families and professionals.
Achieving Independence and Mobility Center for Independent Living (AIM-CIL) provides training, peer support, information and referrals, community development and advocacy services to help individuals with disabilities participate in all aspects of family, social and community life. AIM-CIL serves residents with disabilities and their families in DuPage, Kane and Kendall counties.
Other AIM-CIL programs include:
- Assistive Technology Program – Individuals/families can apply to receive up to $500 for an authorized device(s). Only one device per person/per household.
- Educational Scholarship Program – Students can get up to $1,000 for college or trade school registration/application/lab fees, books and/or class tuition. Only one scholarship per student/household. Please refer AIM-CIL’s website for specific requirements and deadline dates.
Swann Special Care Center is a non-profit organization located in Champaign that offers residential and educational programs for people with severe and profound intellectual disabilities. Its programs serve residents from throughout Illinois and include residential nursing care, adult day training and an accredited year-round school. Swann Special Care Center also offers:
- Restorative and long-term habilitation
- Palliative and end-of-life care
- Evaluation on an individual and ongoing basis
- Physical, occupational and speech therapies
RCADD Back-to-School Resources / Recursos para el regreso a clases
The Resource Center for Autism & Developmental Delays’ (RCADD) Virtual Resource Room offers back-to-school resources for parents/caregivers and their children with autism and/or neurodiversity. Resources in English and Spanish to help with a new school year include:
- Tip sheets- Hojas de consejos
- Schedules and routines materials- Horarios & rutinas
Social stories- Historias sociales
Visual supports – Apoyos visuales
Structured activities- Actividades estructuradas
The non-profit Diaper Bank of Chicago provides diapers in sizes newborn through large-sized Underjams, ensuring all kids that need protection are covered. It partners with other nonprofits and social service agencies to distribute diapers. The diaper bank only accepts requests for diapers through an agency partner or social service agency.
The Diaper Bank of Chicago’s doula also offers parenting resources for agency partners on topics that include:
- Infant massage
- Stress reduction techniques