Resource Directory /

Lombard Resources

  • Generation Patient

    Generation Patient is a nonprofit organization created by and for young adult patients with chronic, complex, rare or undiagnosed medical conditions. The organization’s focus includes providing peer-support groups, roundtable discussions and helping to drive systems-level change through policy work, leadership programming and advocacy initiatives across healthcare and research spaces.

    Generation Patient also offers:

  • First Hand Foundation

    First Hand Foundation‘s pediatric medical grants provide vital financial assistance to uninsured or underinsured children up to 18 years old. The grants aim to help children receive timely, life-changing treatment that improves their health and quality of life. Families can apply for grants to cover critical medical expenses such as surgeries, prescriptions, medical equipment and travel costs. Each child is eligible for one grant every 12 months.

    Learn more about applying for a grant, covered expenses and eligibility on First Hand Foundation’s website.

    There will be five opportunities to apply for First Hand Foundation 2025 grants:

    • July 16 to Aug. 15
    • Aug. 16 to Sept. 15
    • Sept. 16 to Oct. 15
    • Oct. 16 to Nov. 15
    • Nov. 16 to Dec. 15

  • Camp Hope Illinois in Lake Forest

    Camp Hope is an overnight summer camp for Chicago-area teenagers and young adults with developmental disabilities. Campers ages 15 to 30 have a one-on-one buddy providing care and participate in activities adapted to their unique needs. Campers experience five fun days filled with friendships and activities, including swimming, dancing, arts and crafts, adaptive sports, cookouts and more. Camp registration typically opens in December of each year. Space is limited.

    Check out Camp Hope’s Frequently Asked Questions page to learn more. You can also contact camphopeillinois@gmail.com for more details.

  • Child Mind Institute

    The Child Mind Institute’s Family Resource Center provides information for parents, caregivers and others supporting children struggling with mental health, behavior or learning challenges. Resources include parenting guides, a glossary of terms and up-to-date information on learning and behavior disorders, sensory processing, milestones and more.

    The Child Mind Institute offers a variety of free parenting guides in English and Spanish. Guide topics include:

  • Oracle Health Foundation

    Oracle Health Foundation’s pediatric grants cover a wide variety of clinical, equipment, travel and lodging, and vehicle modification costs related to children’s healthcare needs. The foundation accepts applications from the United States and through select international providers.

    Funding criteria include that the child must be 18 years of age or younger (the foundation may also consider individuals up to 21 with developmental disabilities). You can find more details on the Oracle website on how to request a pediatric grant.

  • CommunicationFIRST

    CommunicationFIRST advocates to ensure everyone has the support they need to express themselves effectively and be heard. Organization members include people of all ages with over two dozen known and unknown expressive communication-related conditions, congenital and developmental disabilities, and conditions acquired later in life. CommunicationFIRST resources include:

    • “The Words We Use” style guide
    • Tips for online meetings with augmentative and alternative communication (AAC) users, by AAC users
    • The “See us. Hear us.” film series
    • The AAC Counts Project

  • Camp Sunshine for Children with Life-Threatening Illnesses and Their Families in Maine

    Camp Sunshine helps children with life-threatening illnesses and their families find hope, community and a safe space for recharging together. Located in Maine, the camp offers medical support and free, year-round camping sessions for children ages 21 and under, their siblings, parents and caregivers. Campers come from all over the United States, Canada, and other parts of the world. Bereavement sessions are also available for families who have experienced the death of a child from a supported illness.

    Camp Sunshine offers sessions of varying lengths throughout the year. Supported conditions and diagnoses include:

    • A brain tumor, cancer and retinoblastoma
    • Kidney disease
    • Sickle cell disease
    • Hematologic conditions
    • Phenylketonuria (PKU) and more

  • Northwest Special Recreation Association

    Northwest Special Recreation Association (NWSRA) provides general recreation therapy programs, day camps, athletics, inclusion, trips, special events, leisure education, community adult day programs, and one-to-one therapy opportunities for children and adults with disabilities. NWSRA serves 17 northwest suburban Chicago communities in partnership with member park districts.

    NWSRA partners with Arlington Heights, Bartlett, Buffalo Grove, Elk Grove, Hanover Park, Hoffman Estates, Inverness, Mt. Prospect, Palatine, Prospect Heights, River Trails, Rolling Meadows, Salt Creek, Schaumburg, South Barrington, Streamwood, and Wheeling park districts.

  • Homocystinuria (HCU) Network America

    Homocystinuria (HCU) Network America provides free resources and connections for people impacted by this rare genetic disorder that affects the body’s ability to process the amino acid homocysteine. HCU Network America supports a wide range of research and provides educational resources, connections and practical tools to help patients and their families navigate living with HCU.

    HCU Network America resources include: